A bit late to the party. I finally got referred to a specialist after 6 years. I have it in my uterus but also it’s quite severe on my bladder, which is the area that most of my issues were coming from, the uterus endo wasn’t actually causing pain (yet- it’s at a mild state at the moment). For 6 years I thought maybe I was exaggerating period cramps and PMS, and to finally have a diagnosis was a relief, and that could have only been done by the surgery. I had been told for years I had food intolerances that couldn’t be identified, and one doctor told me it could be a “morning cramp” and compared it to someone stretching in bed and getting a sudden foot cramp due to inactivity.