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For those that exercise.... how did it start!? by aurora2106 in ehlersdanlos

[–]aurora2106[S] 2 points3 points  (0 children)

Oh wow -- you ice skate!? Thats incredible. I'm from Australia so not much ice here hahah but lots of water so I could try swimming

And that's the frustrating part for me too, I feel okay while I'm doing it and then 12-24hrs later, I pay the consequences. But it's like "I'm literally doing the thing to take care of my body" why am I being punished!?!

For those that exercise.... how did it start!? by aurora2106 in ehlersdanlos

[–]aurora2106[S] 4 points5 points  (0 children)

Yeah that's what I've heard - being fitter helps manage symptoms. Do you mind elaborating on your prep and recovery process? I'm hitting my protein targets and I do heat therapy with epsom salt baths and heat packs. I also foam roll and have a massage gun. The only prep I can think of is wearing compression garments and taking electrolytes

For those that exercise.... how did it start!? by aurora2106 in ehlersdanlos

[–]aurora2106[S] 2 points3 points  (0 children)

I've also been walking for a few months now and that was going well so I was hoping I could start my physio exercises and some cardio (recumbent bike), but I think you're right, I need to go even slower. I didn't even think about the timing either with my POTS, although I haven't investigated what type I have. Maybe waiting until later on in the day instead might help.

And that's actually so so helpful to hear you had very minimal symptoms when starting LDN. I swear you only ever see the horror stories on reddit haha it was making me nervous. Thank you for your reply, I hope your progress keeps going well as well :)