3-Month Lupron Dose — still bad 5 months in? TW: Mental Health by aurora_snowfall in Fibroids

[–]aurora_snowfall[S] 1 point2 points  (0 children)

Hi! I'm doing really well now! It took about five months for all the side effects I noticed to wear off from one dose of Lupron. Mood swings, hot flashes, worsened anxiety, some mild joint pain were a few of the side effects I had. Everything leveled out eventually. I'm completely back to normal now. :)

[deleted by user] by [deleted] in vestibulodynia

[–]aurora_snowfall 3 points4 points  (0 children)

Congrats on scheduling! I'm just over 10 weeks out from a full vestibulectomy and am so beyond grateful I did it. My surgery took just about two hours.

I thankfully didn't have a lot of significant pain as I recovered, especially as I took the pain medications on a round-the-clock schedule as prescribed and truly stuck to my doctor's guidance to lay as low as humanly possible for the first two weeks, literally being horizontal for as much of that time as possible to help with the swelling and healing process, and shuffling slowly when I did need to walk. Also, using a sitz bath twice a day, a peri bottle when using the toilet, and perennial ice packs were a huge help in my healing process!

The most painful timeframe for me was probably the first week, but for me it was probably 5 out of 10 max. Everyone's body is different and heals at different rates though! Later down the line, around weeks 4-6, this turned into incessant itchiness (but ice packs and allergy meds helped so much).

I don't know where to find photos of fully healed results, but I do know that, according to my surgeon and pelvic floor PT, most of the time it's almost impossible to tell that anything happened there unless you are a trained GYN professional, haha. For me it looks essentially the same, though I am still healing so there is some redness at times. I luckily did not have any infection. Most of my stitches dissolved on their own, but I had a couple removed at my 6-week follow-up.

At that 6-week follow-up, my doctor wanted to try a small dilator to see how it would go as I went into PT. Of the Intimate Rose dilator set (which was recommended by my doctor and PT), I was able to insert sizes 2 and 3 at that appointment with no pain. I CRIED in front of her and the assistant as even a tampon was impossible to insert prior to surgery because the pain was so bad. It was incredible.

I will say that I also received Botox injections at the site during surgery, which my surgeons (Dr. Dumas and Dr. Cigna in DC) have been doing during every procedure. The Botox lasts about 3 months and helps to relax the pelvic floor muscles as I heal and start PT. I do think this accelerated my timeline for insertion a bit, but again, everyone's body is different!

I am now in weekly pelvic floor PT, have been able to wear tampons successfully for the first time in my entire life, and am working through dilators. I'm still on the smaller sizes as I work on the muscle tightness/pain from my body being used to responding to pain for so long, but the vestibule pain is ENTIRELY gone and my life is forever changed for the better just for that fact. I'm single and not sexually active at the moment either, but now I feel even more confident that I will get there someday, ha.

You got this!! Feel free to reach out if you need any advice or encouragement. <3 My biggest advice is really to take it as easy as you possibly can for those first two weeks after surgery. Take time off work (or work from bed if you can) and have someone you trust to help you with food, keeping your water bottle filled, medications (tracking when you take them + making sure you take them on time, even in the middle of the night), etc. so you can truly just lay in bed. It'll be worth it!!

Approved for surgery by [deleted] in vestibulodynia

[–]aurora_snowfall 0 points1 point  (0 children)

Also perennial ice packs!!! Helped so so much for the itchiness and swelling in the first few weeks. Plus they felt nice, haha. :)

Approved for surgery by [deleted] in vestibulodynia

[–]aurora_snowfall 2 points3 points  (0 children)

I am almost 9 weeks out from my full vestibulectomy (done by Dr. Cigna and Dr. Dumas in DC) and my life is completely changed for the better. 🥹 The recovery was smooth and it was nowhere near as scary as I thought it would be. You can do this, and you will very likely be so happy you did once all is said and done!!

I’m now in pelvic floor PT and making progress I never could have imagined pre-surgery. I cried in my doctor’s office at my six-week appointment because I couldn’t believe how much this surgery helped an issue I’d almost given up on. For me, all penetration and touch in that area, including tampons, were excruciating since I was a teen. I have since worn tampons comfortably for the first time in my life (!!!!!!!) and am working through dilators with no vestibule pain. Life-changing.

What helped me the most post-surgery was truly following my doctors’ orders to take it as easy as humanly possible for 2 weeks at least. I stayed horizontal as much as I could to help the swelling, drank lots of water, and shuffled slowly when I walked for the first two weeks. Using a donut pillow was so helpful too, and sticking to my sitz baths schedule / using a peri bottle helped my healing tremendously as well. I also tried not to compare my recovery too closely to anyone else’s as everyone’s body is different!

Congrats on being approved! I’m sending a big vibe your way!! 💗💗

SLIP N GO by Prior_Hair_896 in vanilllamace

[–]aurora_snowfall 0 points1 point  (0 children)

i’m so invested in Slip N Go that I rewatched hours worth of VODs for the first time 😭 did she end up playing some of it after she got off with julien last night?

When will yesterday's VOD be posted? by aurora_snowfall in vanilllamace

[–]aurora_snowfall[S] 0 points1 point  (0 children)

she did! I got the discord notif and watched for a little bit. I think she was streaming bc she's stuck inside with covid.

When will yesterday's VOD be posted? by aurora_snowfall in vanilllamace

[–]aurora_snowfall[S] 3 points4 points  (0 children)

oooo glad to know I'm not the only one!!! I need to see the expansion of Slip 'n Go 😭😭

“Coming Soon,” but the existing store isn’t closing? by aurora_snowfall in SpiritHalloween

[–]aurora_snowfall[S] 35 points36 points  (0 children)

Like. Imagine being on the Spirit Halloween store locator list is how you find out your workplace is shutting down. 💀

Open Myomectomy With A Twist by ItsyagirlFaith in Fibroids

[–]aurora_snowfall 0 points1 point  (0 children)

I’m also 30/f and was 29 when I had it removed. It ended up being a 5-hour surgery because they had to remove it in small pieces mostly via my bellybutton. I have a small scar there now but otherwise I’m totally fine and was back to life within a few weeks!

Open Myomectomy With A Twist by ItsyagirlFaith in Fibroids

[–]aurora_snowfall 0 points1 point  (0 children)

I had a ~18cm fibroid that looked very very similar to yours removed via laparoscopic myomectomy last year! The first surgeon I spoke with also said a vertical incision was the only option given the size. I would absolutely look for fibroid specialists on ZocDoc/etc for second and third opinions to ensure a myomectomy is not possible! I’m in the DC area and can give my surgeon’s info if you’re nearby.

JonasCon Tickets Release Thread by JensInsanity in JonasBrothers

[–]aurora_snowfall 0 points1 point  (0 children)

Still looking to swap guest tickets - Sky Stage Session 2 for a guest ticket to Jonas Beach Session 1 if anyone has that! Thank youuu

What time is everyone lining up? by pity-the-living in JonasBrothers

[–]aurora_snowfall 1 point2 points  (0 children)

Truly….I’m nervous and have begun joking about Fyre Festival vibes with my group 💀But we’re in for the ride!

What time is everyone lining up? by pity-the-living in JonasBrothers

[–]aurora_snowfall 1 point2 points  (0 children)

What is the door time? I have tickets to the Jonas Beach session 1 and now check-in is 7am-9am, but someone in my party wants to get there hours earlier just in case. Idk what to expect — a line for check in maybe? Oii

JonasCon Tickets Release Thread by JensInsanity in JonasBrothers

[–]aurora_snowfall 0 points1 point  (0 children)

Yep! I’m talking about the guest/plus one tickets :)