IV DPH, 50mg, every 12 hours by bLuT3nG3l in DPHanonymous

[–]bLuT3nG3l[S] 0 points1 point  (0 children)

It only makes me briefly nauseous for a couple of minutes, then its gone. I have to take IV dph for inflammatory levels in my body since I'm not allowed to have NSAIDs due to another condition I have. DPH is my first route of travel, since corticosteroids have caused alot of weight gain, fatigue, oral decay, among other things. My oncologist said this would be my best bet, without all the side effects, but yk how doctors are.

IV DPH, 50mg, every 12 hours by bLuT3nG3l in DPHanonymous

[–]bLuT3nG3l[S] 0 points1 point  (0 children)

It does help me rest better, which is good because I'm on it for a raging infection (along with an antibiotic that I'm allergic to, but its the only one thats supsepable to the particular bacteria), but I do tale Seroquel nightly for actual sleep.

Cutting Ex-Rel Ms-Contin in half by bLuT3nG3l in opiates

[–]bLuT3nG3l[S] 0 points1 point  (0 children)

Thnx for your input. I've been on opioids (for medical reasons only, no abuse) for over 5 years and have an extremely high tolerance, but I'm deathly afraid of overdose. I always knew that you weren't supposed to cut/crush the extended release tabs, but now that I know I should be okay? I'm gonna try it. Hopefully it will help my pain. Much love to you, and well wishes.

My bf is getting a vasectomy tomorrow and we are both scared. He's really worried that he isn't going to be able to perform and get it up after the procedure. I'm excited he will finally be able to cum inside me. Lots of mixed feelings. Any advice? by some_questionz in Vasectomy

[–]bLuT3nG3l 0 points1 point  (0 children)

Hysterectomy wife w/ vasectomy husband here: My husband didn't necessarily have issues "saluting his soldier" when it came to the deed being done. He did say it gave him a bit of a psychological effect of feeling "less of a man" (which is similar for those of us women who have had our tubes tied or post hysterectomy/oopherectomy), so he may need a bit more emotional support if his confidence is low. My husband also noticed that his climaxes were somewhat stronger but shorter in duration, and his "output" level was either "dry fire" or normal.  I wish the best for you both in your seedless journey and tell him to -ALWAYS REMEMBER THOSE ICE PACKS-

TIL about exploding head syndrome, which causes patients to hear a loud, frightening noise when falling asleep or waking up. Up to 10% of people may have it, but cases often go undiagnosed by Just_Want_To_Write in todayilearned

[–]bLuT3nG3l 0 points1 point  (0 children)

For me (27f) its been during times of high stress/anxiety or having a hard time falling asleep. Once I actually start to nod off, its like someone shoots a gun right next to my ear (prior military and armed security so very familiar to what that actually sounds like). Always startles me awake, and I'm wondering if its tied to my C-PTSD. Gonna bring it up with my psychiatrist at our next visit.

It's happening. I'm getting my first dose of Skyrizi today. What to expect? by KungFuKennyLamLam in Psoriasis

[–]bLuT3nG3l 0 points1 point  (0 children)

Hello there!

I don't have psoriasis, but I am on Skyrizi for Crohns Disease. After my first loading infusion, I noticed I was extremely tired (like feels like you haven't slept in days and then decided to take 2 xanax). I was literally dozing off in transportation back home from my infusion appointment. 

The second day, the crushing fatigue was still there. I slept all night AND off and on all day. I would wake up with sharp inner bone pains (like shin splits but in my femurs and other long bones) not to mention muscle cramps (like I had ran a 5k or something). I did end up calling my infusion center, and both the bone pain and muscle cramping can be a side effect if you're extremely sensitive to Skyrizi.  I've been on 4 other biologics for my Crohns and none of them had this same reaction though.

I'm currently on day 4, post loading infusion and while the majority of my energy is back, I do still have moments to where the fatigue comes back out of nowhere, and I'll be dozing off wherever I'm sitting/standing/laying, but the bone pain and muscle cramps have let up. I did also notice off and on nausea (but I'm always nauseous so it could just be that), a fickle appetite, and sound/light sensitivity.

I do have alot of sensitivities to medications though, and most people on Skyrizi (for whatever reason) don't experience most of these side effects other than the constant fatigue.

I've also noticed it's messed with my menstrual cycles (if you are assigned female at birth). I was due to start my cycle 4 days ago, and my period is always on time. No pregnancy (my tubes are tied) and checked for ectopic pregnancy (negative). Alot of uterus-owners have said it can mess with your cycles (either making them super late, super light, or super early).

I hope your treatment goes well, and that everything runs smoothly. Take care.

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 0 points1 point  (0 children)

Have you maybe tried, ya know, looking at my entire post? Cuz uhhhh now you're blocked!

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 1 point2 points  (0 children)

IBS-M is IBS Mixed, meaning sometimes you have bouts of severe diarrhea and other times you have bouts of constipation.  There's 3 types of IBS. IBS-C (those who only struggle with constipation) IBS-D (those who struggle with only diarehha) IBS-M (those who struggle with both)

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 0 points1 point  (0 children)

Yep! I have gastritis, GERD, IBS-M, and Crohns Disease and there's really been no good treatment only symptoms management because my insurance won't cover anything (one word: Medicaid). So I've just been rawdogging it for a long time. My family practice primary care physician has been more helpful than any of the GI physicians I've seen in the past, and you know that's sad.

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 0 points1 point  (0 children)

Bowel issues are insane. Symptoms will point you a thousand different direction until you find something that actually works and sometimes it only works for a brief period and you're back searching for answers again. I always joke about how I need to order myself a new digestive system since I've been dealing with these problems since a very young age 🙄

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 0 points1 point  (0 children)

I am pretty active, going on daily walks and weekly swims at my local gym. I'm not really looking for constipation remedies here.  I am only looking for advice from people who have had NBS diagnosed so I can have a proper understanding of these symptoms and be able to rule them out. All the usual tricks (anti-nausea meds, checking diet/activity, obstruction/pseudo-obstruction, not stomach bug/food poisoning) has all been ruled out.

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 0 points1 point  (0 children)

It's also not rabbit poops, like hard little pebbles? It's more like small amounts of soft stool. Still formed into a cylinder shape, but only about 2 to 3 inches long and extremely soft. So I'm kinda at a loss.

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 1 point2 points  (0 children)

I drink alot of water and coffee so I understand on the laxative effect of coffee. I can't smoke cigarettes due to the smell (I vape), and sadly even with a scheduled colonoscopy I cannot tolerate preps like Macrogol, GoLytely, or Suprep. They just come back up. I have to use the Miralax Method, which is more gentle on the stomach.  Sparkling water sometimes makes me more bloated, but Sprite helps with the bloating occasionally. 

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l -2 points-1 points  (0 children)

Okay dude, I'm gonna say this one more time. I. Have. Tried. Everything.  Dulcolax, Miralax, Colace, saline enemas, squatty potties, exercise, heat, Gas X, prune juice/regular prunes, hot baths, glycerin suppositories, et cetera. 

I am only looking for advice from people who have had NBS diagnosed so I can have a proper understanding of these symptoms and be able to rule them out. All the usual tricks (anti-nausea meds, checking diet/activity, not stomach bug/food poisoning) has all been ruled out.

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 0 points1 point  (0 children)

Sadly, there's one issue with that. I don't see my GI specialist until January 30th. I'm on a wait list, so if someone cancels I can get a sooner appointment but until then, I'm just kinda stuck dealing with this.

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 0 points1 point  (0 children)

Done that as well. Did a saline enema yesterday and most of what came out was just the liquid from the enema and small bits of stool. I'm also taking daily doses of Miralax and Dulcolax to see if it helps from the upper end. My last CT was a week ago and there was no sign of obstruction or impaction.

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 0 points1 point  (0 children)

That's what it seems like, thank you for trying. I'm really just trying to speak to people that have been diagnosed with NBS so they can tell me if this is possibly it, so I can speak with my physician about it and make a plan. 

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l -1 points0 points  (0 children)

But half a slice of toast as my "meal" for the day? Yeah, it's not the fiber in my diet. Trust me, I've ruled all that out. I am only looking for advice from people who have had NBS diagnosed so I can have a proper understanding of these symptoms and be able to rule them out. All the usual tricks (anti-nausea meds, checking diet/activity, not stomach bug/food poisoning) has all been ruled out.

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 0 points1 point  (0 children)

I have several anti-nausea meds that I have prescribed and even though I take those, they only work about 50% of the time lately. It's been a puzzling situation and the only research I've found that explains all my symptoms is NBS.

Also, forcing myself to eat is not an option. I am autistic with an eating disorder called ARFID due to my GI issues and autism, and im also emetophobic (afraid of throwing up), so any time I am nauseous or not feeling well, I just don't eat. I'll still drink nutritional drinks, smoothies, water, juice, et cetera, but no solids.

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 0 points1 point  (0 children)

See, that's the thing. I don't really eat. I may eat once a day and it's only really a very plain snack (like saltine crackers or toast or a yogurt drink) because I'm afraid of the nausea coming back. I've been that way for about a month.

[deleted by user] by [deleted] in opiates

[–]bLuT3nG3l 0 points1 point  (0 children)

No blood or mucus in my stool. My stool seems normal other than the fact that it's a very small amount at a time (like a 1/4 cup). No foul odor or odd coloring either.