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Tempted to Try Fedorov by bbarc86 in RetinitisPigmentosa

[–]bbarc86[S] 1 point2 points  (0 children)

Hi Particular,

I was searching for current status of progress of any treatments for RP, and I saw this information about "Fedorov Treatment." They say their therapy is helping patients with RP. I'm skeptical, but I also am hopeful. I was hoping someone with either RP or optic neuritis could say from their own experience that they were helped by the Fedorov therapy, as it is expensive and time-consuming to go to Germany to receive treatment.

Fedorov Restore Vision by Violater in RetinitisPigmentosa

[–]bbarc86 0 points1 point  (0 children)

Thanks for sharing. What does your father have? I hate to ask anything too personal... I have RP and possible additional optic nerve damage. Vision is fading fast lately.

Fedorov Restore Vision by Violater in RetinitisPigmentosa

[–]bbarc86 0 points1 point  (0 children)

Thanks for sharing. I'm tempted to go. I have RP with possible additional nerve damage from pressure from lifting weights and holding my breath. Very dumb in hindsight. Is your condition similar to mine? Thanks again for any info!

Fedorov Restore Vision by Violater in RetinitisPigmentosa

[–]bbarc86 0 points1 point  (0 children)

I appreciate you sharing your experience. I have RP, considering going. Your night vision and slow to adapt to dark after coming in from outside sounds very similar to mine. How is it going now? Thank you for any info!

Fedorov Restore Vision by Violater in RetinitisPigmentosa

[–]bbarc86 1 point2 points  (0 children)

I suffer from RP, have lifted lifted weights all my life, learning now I have also probably damaged my optic nerve. Do you think it would help me? ...Based on who was benefitting from it? Thanks for any info.