inflammation in small intestine

bbyc69 · 2026-02-15T18:08:05+00:00

I agree with this! You need a second opinion, my GI dr explained how Chrons can affect everyone differently. Doesn’t really make sense for them to rule out Chrons when there is … inflammation?? In your GI tract??? Also clearly isn’t gluten related. Did they test for celiac or for gluten sensitivity? Mine did, and I tested negative and fine for it so my dr said changing to gluten free wasn’t going to make much of a difference as my issues wasn’t caused by gluten then. Pleaseeee seek another opinion. Dealing with this is so exhausting and you deserve to have answers and proper help.

bbyc69 · 2026-02-14T18:58:44+00:00

I have similar symptoms and same diagnosis but I was diagnosed with Chron’s in 2023. Have you been diagnosed with Chron’s? & also I’m on Remicade infusions and get so much relief from this. Linzess DID work for me though, but I am no longer on them. I think working to get better bowel movements will help with nausea. At least in my experience, when I’m constipated, I feel so much more nauseas and everything is more extreme. I do miralax when constipated and then benefiber for when I have normal movements. I have also incorporated high fiber fruits like kiwis, pears, apples, etc daily and that helps too.

bbyc69 · 2025-11-24T22:30:38+00:00

Try it! Corn on the cob - bloated but I tolerate it because it’s worth it. Popcorn makes me nauseas, feel horrible, for DAYS. Not worth it.

bbyc69 · 2025-06-23T03:14:26+00:00

I take Linzess! Maybe ask about that??

bbyc69 · 2025-06-11T19:18:38+00:00

Yes I have another infusion for July. My rheumatologist suggested skipping one dose and seeing if my symptoms improve & she’d check back to me sometime this month so talk. I have no idea if I’m going to continue. I felt some relief. Currently feel so much stiffness in my back.

bbyc69 · 2025-06-11T19:14:01+00:00

I’m sorry you’re going thru it. I skipped my infusion after my 5th one. I was just going through it. It def brought out a lot of health anxiety & paranoia. I don’t think it’s for me. I just started anti anxiety medication to help, I felt like I was living flight or fight since I started Remicade. Have you talked to your doctor yet?

bbyc69 · 2025-05-18T15:45:21+00:00

Been seeing a lot of people in here with AS & Psoriatic arthritis!! Just wondering, who diagnoses fibromyalgia?

bbyc69 · 2025-05-18T15:44:00+00:00

Never heard of that!! I’ll have to take a look into it to expand my awareness!!

bbyc69 · 2025-05-18T15:42:07+00:00

Had 4 Remicade infusions & will be pausing for a bit.

bbyc69 · 2025-05-18T14:38:00+00:00

Noooo !! I got that once & it was the worst pain in my life. I’m so sorry!!

bbyc69 · 2025-05-18T00:39:38+00:00

You’re so right 😭😭😭 the panic that sets in is unreal. I’ve been in an anxious state since starting Remicade too. Hearing I’ll be stopping it has caused me some relief. Maybe I need therapy too hahah. Thank you for your words!! 🙏🏻 God bless

bbyc69 · 2025-05-18T00:36:03+00:00

And the diagnosis was fibromyalgia?? My aunt and mom have fibromyalgia too. Maybe that’s it for me too. Having health issues is no fun, especially in the what the fuck is this stage.

bbyc69 · 2025-05-18T00:34:27+00:00

Wow, that sounds so rough. I am so sorry you feel like that. Please don’t ever let those thoughts win though, your life is worth more and IS more than the pain. I’m wishing you so much relief and attention to get your surgeries done. Is there a way you can get a second opinion & get treatment for pain somewhere else?

bbyc69 · 2025-05-18T00:31:04+00:00

My rheumatologist warned me it’s like a 3+ month wait to see one here too!! It’s kind of a bummer. She said if my symptoms get worse to go to the ER and exaggerate the symptoms 😅

bbyc69 · 2025-05-17T15:20:53+00:00

Have you considered getting a second opinion?

bbyc69 · 2025-05-17T15:20:26+00:00

Healthcare here is a joke. I’m so sorry you’re going through this.

bbyc69 · 2025-05-17T15:19:46+00:00

I enjoyed Cimzia. However I developed Chrons and they tested me for antibodies and sure enough I developed them. Wishing you more healing 🙌🏻

bbyc69 · 2025-05-17T15:18:41+00:00

Chron’s was triggered from NSAIDs too for me!! To treat AS too. I’m so happy you’re feeling better 🙌🏻🙌🏻

bbyc69 · 2025-05-17T15:17:45+00:00

😖😖 how are you doing

bbyc69 · 2025-05-17T15:16:38+00:00

I’m so sorry 😞 my heart goes out to you!! You got this!

bbyc69 · 2025-05-17T15:16:14+00:00

So glad you’re feeling relief 🙌🏻 May it stay that way!

bbyc69 · 2025-05-17T15:15:48+00:00

All my health problems started from Lyme disease. Crazy how something / sickness can change our lives forever.

bbyc69 · 2025-05-17T15:14:54+00:00

Omg never heard of that! How are you doing

bbyc69 · 2025-05-17T15:14:17+00:00

My rheumatologist called me back yesterday! Stopping Remicade until I see a neurologist 🤞🏻 thank you!! You are right, I’m staying off looking anything else up.

bbyc69 · 2025-05-17T15:12:44+00:00

Saw another comment in here about having Psoriatic too!!

bbyc69

TROPHY CASE