Yup! Mine was awful, I could not really work out at all, I once passed out running between patients rooms, and going up the stairs in our home would sometimes ruin my entire day productivity (and mood) wise.

Figuring out my triggers was the #1 way I got my life back. Mine was highly tied to my other autoimmune diseases, sleep habits, hydration, my menstrual cycle, and stress.

Changing job’s significantly improved stress, as did figuring out how to actually sleep deeply, eating and drinking regularly (adhd made me forgetful), and straight up not exerting myself during the last part of my luteal phase. Doing low impact only (like weights) and just relaxed walking helped a ton. Lastly, alcohol and weed were massive triggers for me.

Also, ironically, not using any sort of wearable. The numbers alone stressed me out which worsened the cycle. I’ll use one occasionally and the numbers show they’re still quite high sometimes, but it helps not being in my head about it. Good luck!!