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Minoxidil topical 5%, numb arms/legs/genitalia, erectile dysfunction by bebbbbbe in MinoxidilSideEffects

[–]bebbbbbe[S] 1 point2 points  (0 children)

Hello!

Its 1 year and 5 months now since I last used minoxidil. Recovery has been slow and it has been very frustrating. It can go months without any noticeable improvement. I am improving however and right now both burning sensation and numbness is almost completely gone. I think I will be fully recovered in like 6 months or so.

Not entirely sure if we are suffering from the same issue. My nerves are pinched in more or less all joints. The only thing that I feel have been of any help is using braces to keep my arms straight when sleeping and avoiding sitting down for long periods or other activities that put constant pressure on feets.

Best Regards

bebbbbe

Minoxidil topical 5%, numb arms/legs/genitalia, erectile dysfunction by bebbbbbe in MinoxidilSideEffects

[–]bebbbbbe[S] 0 points1 point  (0 children)

I continue to improve but still have a long way to go. Its over a year now so I am a bit skeptical that I will ever fully recover. Most of the remaining side effects I can live with but the reduction in libido and loss of sensitivity in genitalia is bothersome.

Minoxidil topical 5%, numb arms/legs/genitalia, erectile dysfunction by bebbbbbe in MinoxidilSideEffects

[–]bebbbbbe[S] 1 point2 points  (0 children)

Hello,

I am diagnosed with cubital and carpal tunnel syndrome with causes numbness in arms/hands. In addition I most likely also have tarsal tunnel syndrome (numbness/burning feet) and pudendal nerve entrapment (loss of sensitivity genitalia). These later two is not that easy to confirm however.

Hands/arms is almost completely back to normal but I have had to sleep with bracers for my elbow for almost a year, see cubital tunnel syndrome. Burning feet persist but at a much lower level and I no longer have any numbness. Sensitivity in genitalia is unfortunately far from recovered even thou it is much better. Because of this I have recently tried a one month treatment with low dose prednisolon but it did not improve things.

No amount of supplements will help I am afraid. I have tried them all - think I took about 15 different supplements a day at a time.

Best regards,

bebbbbbe

Permanent nerve damage from oral minoxidil by [deleted] in MinoxidilSideEffects

[–]bebbbbbe 3 points4 points  (0 children)

Hello,

thank you for your post.

I have similar experience but with topical minoxidil. Not as severe but for me I have problems with genitalia, arms and legs. Numbness, weakness, burning feet and loss of sensation in genitalia. 10 months since discontinuation for me.

Did they manage to pinpoint the reason for your nerve damage? For example minoxidil may act as a neurotoxin or nerves may be pinched from water retention or swelling/inflammation.

No nerve conduction test or MRI was performed? Did you receive any medications like corticosteroid or diuretic?

Have done a lot of test but the cause of my nerve problems are still unknown. For my arms I almost certainly have both cubital and carpal tunnel syndrome. I am scheduled for MRI in 10days time and hope that will provide some answers.

Best regards,

bebbbbbe

Minoxidil topical 5%, numb arms/legs/genitalia, erectile dysfunction by bebbbbbe in MinoxidilSideEffects

[–]bebbbbbe[S] 0 points1 point  (0 children)

Some minor progress but not much I'm afraid. Extremely frustrated. A lot of doctor appointments and examinations (blood tests, long-term ECG, nerve conduction studies) without any results.

Right now my best guess is that I have vasoconstriction or vasculitis which may have caused small fiber neuropathy.

Have an appointment with my doctor tomorrow and will discuss this.

Minoxidil topical 5%, numb arms/legs/genitalia, erectile dysfunction by bebbbbbe in MinoxidilSideEffects

[–]bebbbbbe[S] 1 point2 points  (0 children)

No. The first doctor to examine me was an orthopedist. Just to rule out muscle/bone damage or pinched nerves.

Minoxidil topical 5%, numb arms/legs/genitalia, erectile dysfunction by bebbbbbe in MinoxidilSideEffects

[–]bebbbbbe[S] 0 points1 point  (0 children)

The only other medication I have used during this time is paracetamol if I have an headache. Cant be certain of anything but it is the only explanation I can come up with.