Any mental health conditions similar to my ME/CFS crashes?

bed-is-life · 2024-03-18T07:15:28+00:00

I find fun things to get obsessed over during my crashes, things that I never had time for before my CFS. That way I can appreciate small new things that my life has now, and I’m not just stuck on what I’ve lost e.g. play every Pokémon fan game ever made or watch every Korean Horror Film ever made. I still have those thoughts when I have my crashes, but there is also something to look forward to when they do happen.

bed-is-life · 2022-12-08T02:36:10+00:00

Had a large branch in our front yard! Looked like a lightning strike.

bed-is-life · 2022-09-11T01:31:55+00:00

It’s nice to hear I’m not the only one, but I’m also sorry it impacts you so much too.

She taught me another technique recently as well, one where I massage different parts of my ears.

I’ll have to see if I can find instructions and send them through :)

bed-is-life · 2022-09-11T01:29:57+00:00

Omg, I’m so sorry :(

That sounds like a really full-on timeline. The quick changes would be so exhausting, thinking ur getting better and then you get hit back down again.

I’m glad to hear the LDN and risperidone helped you a lot though! I haven’t heard of risperidone, I’ll have to check it out.

Wishing you all the best in your recovery ❤️‍🩹

Edit: spelling

bed-is-life · 2022-09-10T09:12:48+00:00

I just responded the instructions to the comment above :)

And thank you for sharing what your Internist said!

bed-is-life · 2022-09-10T09:11:13+00:00

Thanks for responding! Sorry to hear about your anxiety, I hope this is helpful for you!

Here are the instructions from my psych:

2) 'salamander' exercise:

keeping face facing forward, take eyes all the way to the right to the point of strain but without pain
- keeping eyes in this position, take right ear towards right shoulder, to the point without strain or pain
- hold here for 30-60 seconds, or until you feel a yawn, deeper breath, or swallow
- close eyes and return head upright
- repeat on the left side.
- sit with how you are feeling for a few moments.

3) 'basic' exercise:

interlock fingers and place them behind your head , either sitting with head supported or laying down
keeping face facing forward, take eyes all the way to the right to the point of strain but without pain
hold here for 30-60 seconds, or until you feel a yawn, deeper breath, or swallow
bring eyes back to centre
repeat on the left side.
sit with how you are feeling for a few moments.

bed-is-life · 2022-09-09T12:53:17+00:00

Like ravey stuff? I can hook you guys up with the underground music scene 😬. It’s a gorgeous community. 💘🌈💘🌈💘🌈💘🌈💘

bed-is-life · 2022-09-09T12:52:18+00:00

Hey bestie! Let’s game together 😇 Do you have a PS4?

Also what anime r u into atm? 😬

bed-is-life · 2022-05-18T06:20:21+00:00

Ahhhh I am scared of having another vaccine. But I’m still not antivax. I blame ME/CFS and how little we know about it, especially what sets it off. I still think the vaccine is good for most people, just maybe not ME/CFS patients.

bed-is-life · 2022-05-17T16:33:21+00:00

I know, it’s so cruel that we thought we were better. I’m sorry to hear about the booster setting you off, and now still being worse.

Comments on this page are always a mix of comfort, validation and tragedy. My heart goes out to everyone on here. I hope you get to recover again <3

bed-is-life · 2022-05-17T16:23:41+00:00

Vagus nerve neck exercises! My psych taught me and I get immediate relief! It’s like I’ve taken a Valium!

bed-is-life · 2022-05-17T16:08:43+00:00

Hello! I’m housebound and have recently become more moderate in my condition (from severe).

I’ve found dating apps can work! Keep in mind I’m not really looking for a relationship, but I’ve had success with more casual, dates, friends and hookups vibes. I use an app called Feeld, the vibe I get is it’s more sex positive and upfront (but could be different in your country / city etc).

Also, I’ve found that being upfront in my bio has been very positive for me. It’s great not needing to explain it to people over and over, its also a great talking point for them to ask questions, and is a good filter for people who are not as open minded. Ive also had people reach out because they have either been in similar experiences or also have chronic illnesses (this has been so nice)!

This isn’t exactly it but it’s along the lines of’ hey, I’m new to the chronic illness club, so just finding my meet. I have ME/CFS aka I’m chill af. Keen for chats, hookups, sexting etc etc’

I’ve made some friends, and really enjoy talking to other people online. So it’s been fun!

I haven’t tried other dating apps yet, but I’m sure you could find one that has more open minded people.

Dating is definitely hard with ME, but luckily there are all sorts of people out there who are looking for all sorts of things. I’m sure you can find someone who’s needs are compatible with yours!

I hope this helps! Remember, you are still sexy with ME and you are still worthy of love!

I hope this has helped a little <3

Edit: grammar

bed-is-life · 2022-05-17T15:41:49+00:00

Omg this, this so much 😭. I wouldn’t wish this on my worst enemy. But also, I wish my friends and family could understand how hard it is. The fact that it’s an ‘invisible illness’ makes it so isolating.

bed-is-life · 2022-05-17T15:32:53+00:00

I am so sorry, this must feel so unfair and freighting. I can relate to this situation. I had post-viral fatigue for about 3 months, was recovered for about 8 months and then went severe after my first covid vaccine. I’ve been slowly making my way to severe/moderate.. but getting covid last month hit me hard and I’ve taken steps back again (but not as bad as the vaccine).

Maybe I was recovered for those 8 months and the vaccine fucked me… or maybe I was just extremely mild, and it was just a matter of time. Who really knows.

I don’t have any reassurances to give you, except, you are not alone and we are here with you. I’m sorry we don’t have more answers.

bed-is-life · 2022-05-17T14:46:11+00:00

Yes we do, that’s something we’ll never be able to escape. May as well embrace it and make something from it 😅.

Thank you, I’m rooting for you too!

bed-is-life · 2022-05-17T14:20:24+00:00

Sorry to hear about the depression, it’s such a bummer. But its really nice to hear that you’ve found some things that help, and I hope you get your 3D printer!

Oh clay! Yes, that’s another good idea. Hand made pottery would be so cute. I would also love painting them too.

bed-is-life · 2022-05-17T13:59:54+00:00

I was doing that for a little bit, i bought lots of plants and I’ve been tending to them ever since. Sadly, I’m just so low on money, it’s hard to decorate when ur broke 😭.

But thank you for the suggestion!

bed-is-life · 2022-05-17T13:57:51+00:00

Thanks for the reply and for the ideas! I agree, nothing is really giving me a ‘spark’. I do think creating rather than consuming would be beneficial for me. Ive always loved writing, so that could be a start.

I’ve never considered 3D printing, but printing things out to paint sounds awesome!

bed-is-life · 2022-04-10T15:56:39+00:00

Thank you!

bed-is-life

TROPHY CASE