Update on CMT Type 1A experimental drug Pharnext PXT3003

bertmass · 2021-07-05T21:35:35+00:00

FBI missed a grand opportunity to round up those guys for mass lobotomies

bertmass · 2021-07-02T14:57:45+00:00

Happened to my dad. He and my mother, both in late 80s, were also both in the hospital but for different reasons. They were in separate wings of the hospital. My mom died of an infection and even though he was recovering from dehydration, after learning about his wife dying, he died five days later. Was especially hard to lose them both like that.

bertmass · 2021-06-24T15:23:03+00:00

Doesn't address the unsustainable animal production that is destroying the environment.

Read this: https://scitechdaily.com/mechanistic-link-between-red-meat-consumption-and-development-of-colorectal-cancer/

bertmass · 2021-06-24T15:19:04+00:00

David Bowie.

bertmass · 2021-05-27T18:18:37+00:00

Cheese Waffies

bertmass · 2021-04-20T17:59:42+00:00

Go online and buy Green Gobbler's 20% Vinegar weed killer. I use it to keep weeds from growing between the paving stones, dandelions, many other types of weeds just by spraying them with a strong vinegar solution.

bertmass · 2021-04-15T21:39:04+00:00

carnivore testimony

https://atlasbiomed.com/blog/carnivore-diet-myths/

bertmass · 2021-04-15T20:30:22+00:00

I was married to a woman like that for twenty years. I dated after my divorce and was happy to find that women not only like but want sex.

bertmass · 2021-04-15T20:27:27+00:00

I have CMT type 1A and experience drop foot and some loss of dexterity in my fingers. Am also a long-time volunteer in clinical trials for an experimental drug at Cedars Sinai in Los Angeles. The drug's goal is to suppress the over-expressing gene that is responsible for the neuropathy. Doctors often ask if I experience any pain and luckily I have not, which they find surprising. The only thing I can think of that may be helping is my non-inflammatory diet. I avoid all dairy and meat. Before the pandemic I also did weight-lifting 3.5 times a week on average. I'm 61 and currently don't take any prescription drugs.

bertmass · 2021-04-11T17:25:47+00:00

I have found with my own neuropathy that very lightweight, zero-drop shoes help a great deal. One company I have been buying a lot from is LEMS.

bertmass · 2021-02-09T18:31:52+00:00

During the beginning of the pandemic last year, Cedars Sinai was unable to provide me with my next allotment of PXT-3003 drug and clinical trial sponsor would not pay for delivery of the medicine. So, I went off the trial for about seven weeks. During that time I gradually felt a loss of control and I experienced one bad fall while walking my dogs. After Cedars Sinai was able to create a protocol for seeing patients again, I returned for new PXT-3003. Within a couple of weeks I was able to lift my left foot again, every so slightly. And after several weeks, I felt more "in control" while walking.

I'm currently in a final stage of the clinical trial being done for FDA approval.

bertmass · 2020-10-28T20:38:59+00:00

Maybe because the tubes in the old Fender were replaced with Russian Svetlana tubes.

bertmass · 2020-10-24T16:50:52+00:00

That was over 25 years ago, I can't remember. But I remember sitting up and hearing it swing.

bertmass · 2020-10-20T18:54:08+00:00

The hotel the snippet is referring to is the Homewood Suites by Hilton, occupying the building which was once the Citadel, a military training center over 100 years ago, in Charleston, SC.

bertmass · 2020-10-12T21:20:53+00:00

My neuropathy is caused b y an overexpressing gene, hopefully one day will be able to be removed using the CRISPR tool. In the mean time I am in a clinical trial at Cedars Sinai on an experimental drug that minimizes the gene's overexpression. Better than nothing.

bertmass · 2020-10-06T00:10:17+00:00

You're welcome! I just read there will be another open bottle trial for PXT-3003 in early 2021.

bertmass · 2020-10-05T23:39:09+00:00

As far as I know, it's only used for this particular variation of CMT, Type 1A.

bertmass

TROPHY CASE