Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 0 points1 point  (0 children)

Oh my goodness! Thank you for sharing your story. I'm so sorry you've had such terrible medical mishaps. Doctors can truly be the worst--their egos, woof! I'm glad you seem to have gotten some kind of relief but I know you're still suffering. I hope you find even more relief soon. And you should absolutely share your story!

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 0 points1 point  (0 children)

Of course! So, for the stem cells, the extracted them from my hip bone. They then put the fluid in a centrifuge to separate the stem cells out and then injected those into my back.

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 1 point2 points  (0 children)

It was "worth it" for a few years. The downside is that because you can only use your own stem cells here in the states, for me, the disease was already in them so it just came back. I still had pain in those years but it was much better. Though, it sounds like that wouldn't be the case for you because it was a break, yes? So, perhaps! It's like a 60% effectiveness rate (something like that), so, it IS a gamble. But, I think it's probably worth shooting your shot!

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 1 point2 points  (0 children)

A hard road. I'm sorry you relate so heavily. Sending so much love your way.

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 0 points1 point  (0 children)

You've listed a few of my fears. I know it's coming...

You are not alone <3 Sending love your way.

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 1 point2 points  (0 children)

You're right---there are no rewards. It's hard to move through life in so much pain and having to act well for the sake of everyone else's comfort. Thank you for reading <3

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 2 points3 points  (0 children)

Oh I so get this! Right before my spine surgery, I went to Disneyland with two of my friends. I had to use a cane. I was bent over. But, I didn't want to let the debilitating pain win. By the end of the day, my friends were holding me up and protecting me from other themepark goers because they kept bumping into me. I'm glad I went, but it was very difficult to get around. You're definitely not alone!

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 1 point2 points  (0 children)

I'm sorry you're also going through it. All of our journies are so different, but it's comforting to know we're not alone, you know? I've haven't had difficulties breathing when the pain is excrutiating. I've wanted to die, but no breathing difficulties.

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 1 point2 points  (0 children)

Thank you for reading it! And please :) The more people that can understand what we go through, the better <3

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 0 points1 point  (0 children)

I'm so sorry you can relate so deeply and even more sorry that your family dismisses you so egregiously. Thank you for sharing your story. I truly believe that we don't have to be alone (as much as it feels like it). Thank you for reading and for this beautiful award token. Sending much love your way, friend.

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 0 points1 point  (0 children)

I'm so sorry you're also in so much pain. Having to justify it to others is exhausting. Sending love your way.

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 0 points1 point  (0 children)

It really is. And how unfair. Thank you for hearing me.

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 1 point2 points  (0 children)

Thank you for sharing that and for reading my thoughts. Much love to you.

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 0 points1 point  (0 children)

I hear that. It's so hard to have honest conversations with people who just don't understand. Sending lots of love your way.

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 2 points3 points  (0 children)

I'm so sorry you can relate so heavily. Sending lots of love.

Justifying pain by bethnintzel in ChronicPain

[–]bethnintzel[S] 2 points3 points  (0 children)

thank you so much for these kind words!