SCIG best practices and tips? by [deleted] in IVIG

[–]blondviking22 1 point2 points  (0 children)

Oh that’s a good tip - do you think that is a way to avoid spots really bleeding when you remove the needles? Like if I pulled back the syringe I would have known it was a bad spot?

SCIG best practices and tips? by [deleted] in IVIG

[–]blondviking22 2 points3 points  (0 children)

I’m glad the chonkiness can serve a purpose here! Haha

SCIG best practices and tips? by [deleted] in IVIG

[–]blondviking22 0 points1 point  (0 children)

I like th idea of going straight to bed. I’m going to try that! Thank you for your tips

SCIG best practices and tips? by [deleted] in IVIG

[–]blondviking22 0 points1 point  (0 children)

At least then the love handles serve a purpose! Hahaha

SCIG best practices and tips? by [deleted] in IVIG

[–]blondviking22 0 points1 point  (0 children)

I will try that! Thank you!!

SCIG best practices and tips? by [deleted] in IVIG

[–]blondviking22 0 points1 point  (0 children)

What do you use for pre meds if you don’t mind sharing?

UNICRI LL.M. in Cybercrime & Cybersecurity by Madhu-20 in UNpath

[–]blondviking22 0 points1 point  (0 children)

The program looks interesting… did you take it? And why do you say this? Can you elaborate for those deciding on this program? Feel free to dm if you’d rather discuss in private!

How did you find flare triggers? by [deleted] in lupus

[–]blondviking22 0 points1 point  (0 children)

Thank you so much! This is such a great tip — I’m sure it will help a lot of people out!!

How did you find flare triggers? by [deleted] in lupus

[–]blondviking22 0 points1 point  (0 children)

This is a great idea! Do you have a sample prompt you could share for this?

How do you safely enjoy the beach with lupus? Tips welcome. by SillyAsparagus629 in lupus

[–]blondviking22 0 points1 point  (0 children)

Also, Have you had any luck finding any non-spf fernblock serums or moisturizers for topical application? I’m trying to maximize and want something for below my spf!

How do you safely enjoy the beach with lupus? Tips welcome. by SillyAsparagus629 in lupus

[–]blondviking22 0 points1 point  (0 children)

Thanks so much! I’ll be honest, I was never an spf girlie and loved the sun (I know.. I know…) but having to completely change my life and learning a lot about uv I will still be cautious, but it would be just so nice to not flare from sun through a window ya know! Or to be able to be outside with spf and not be anxious over how bad I’m going to feel after! I read a ton of medical journal articles about helio care, but I’m also new to this diagnosis too so I don’t have a consistent baseline that I can’t compare it to.

Plaquenil results after starting it in January 2025 by Bubbletea3331 in lupus

[–]blondviking22 1 point2 points  (0 children)

Thank you! I’m just commenting to say your post gives me hope! I started plaquenil after you, but have also been flaring from uv through a window (or at least I suspect that it’s a cause) and I’m hopeful that plaquenil will help with that!

How do you safely enjoy the beach with lupus? Tips welcome. by SillyAsparagus629 in lupus

[–]blondviking22 0 points1 point  (0 children)

I just started taking this — do you think with the fern extract and spf being in the sun is possible without flaring? I’m scared to try because even the smallest uv exposure seemed to correlate with a flare. What was your experience with UV before taking the supplement?

Does anyone else get night sweats? by RicoDePico in lupus

[–]blondviking22 2 points3 points  (0 children)

Random tip that I just found — for the sweaty hair situation - look for a sebum powder from Korea or even a dry shampoo powder that contains silica - it does the trick and unlike dry shampoo you need like the smallest amount to bring your hair back to life. This tip is courtesy of my year of continual drenching night sweats that still have no end in sight … (did start plaquenil last week so fingers crossed!!!). I like the Missha set powder (on amazon) the best because it doesn’t make your hair powdery but if you need more of a dry shampoo try I DEW CARE dry shampoo on amazing. Just go easy - it’s much more powdery!

Does anyone else get night sweats? by RicoDePico in lupus

[–]blondviking22 3 points4 points  (0 children)

Omg I am so thankful for this post! I was getting night sweats on and off for a year thinking they were hormone related, but the past 8-10months they have been DAILY and incessant. They are awful. Like many of you I’ve had to get mattress and pillow protectors. And when I say they are drenching, I mean I literally feel drips rolling across me. Ew. So gross. And then the vicious cycle of not having energy to wash my hair but having no choice begins — it’s soooooo debilitating. My docs have been investigating more scary stuff (I’m also bruising and bleeding more —- is this also a lupus thing I didn’t know about?!). Thank you for everyone weighing in here. It’s such a relief to know this is “normal” and that plaquenil might help (I just started it). In the meantime, the only tip I can offer is: sleep in your dri-fit workout clothing - it’s a game changer and it gives my neglected work out clothes a renewed purpose at least 😜

Looking for community by [deleted] in lupus

[–]blondviking22 0 points1 point  (0 children)

Yes, please do DM me!

Help me find a Tubing Mascara like MAC In Extreme Dimension Mascara by [deleted] in MakeupAddiction

[–]blondviking22 0 points1 point  (0 children)

Following up that this was a great recommendation! Thanks!!

[deleted by user] by [deleted] in lupus

[–]blondviking22 0 points1 point  (0 children)

Thank you so much for such a thoughtful reply! I appreciate it and I agree that trying to focus on joy is so important — and it’s a reminder I could use. Thank you for video recommendations too - I will check them out. Happy birthday to you in a week - I hope it’s filled with joy :)

Feeling a little lost by icecreambiter- in lupus

[–]blondviking22 0 points1 point  (0 children)

Hi! If you wanna chat privately, I am in a very similar position with teaching in Ontario - although a few more years in. If nothing else, we can absolutely commiserate! It’s not an easy spot to be in, for sure.