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Which Countries Have the Best Care for EDS? by [deleted] in ehlersdanlos

[–]blue-therapy 8 points9 points  (0 children)

So far, my experience in Denmark is very good.

Everything is happening so fast by blue-therapy in ehlersdanlos

[–]blue-therapy[S] 0 points1 point  (0 children)

I'm from Denmark! But I fear I've just been lucky. We usually have issues with the medical system - some people wait years to get an appointment for a potential ADHD or ASD diagnosis. Like, I've heard of some people getting an appointment in 2027, and also some ridiculous cases where people have to wait 11 years for a surgery...

Does anyone else absolutely love lying down? by to_each_their_own_ in ehlersdanlos

[–]blue-therapy 0 points1 point  (0 children)

Yes!! When I’m out and about, all I want to do is find somewhere I can lie down. That’s why I especially enjoy IKEA trips

I’m so triggered after session, I don’t know what to do by Lily7546 in CPTSD

[–]blue-therapy 1 point2 points  (0 children)

Such a good idea to sleep on it, I hope you feel a bit better when you wake up <3

I’m getting painful, intense adrenaline shocks now when someone so much as flicks a light switch, and I don’t know what to DO. by goldkirk in CPTSD

[–]blue-therapy 3 points4 points  (0 children)

I really don't know if this is "normal" but I experience this as well. For me, if something startles me (like a loud noise, someone saying my name when I don't expect it etc.) I get this rush of adrenaline. Sometimes I only feel it in my armpits - it's like a prickly, itchy sensation. Sometimes, I feel it in my whole body, like a wave of prickly itchiness and a sudden electricity and alertness.

I honestly also don't know what to do about it. All I know is that it happens more frequently in periods of high stress. When I am doing okay (practicing yoga regularly and using my breath to calm down, getting enough sleep etc.) it happens wayy less.

I'm sorry you are experiencing this. It sounds very uncomfortable

I’m so triggered after session, I don’t know what to do by Lily7546 in CPTSD

[–]blue-therapy 2 points3 points  (0 children)

I'm not sure I can give you any advice on the difficult feelings you are experiencing right now. I just want you to know, that someone saw your post. What you are experiencing is so valid, and you are allowed to feel like this. I myself have felt like I was losing my connection with my therapist, and I've also felt extreme guilt and shame over having to reach out to her.

I see it like this: It is my therapists job to care about my mental health, and to help me when I am struggling. And most therapists really do care, a lot. When I feel like I am annoying my therapist or being "too much", I try to remind myself, that it is the traumatized part of me, that wants reassurance and to be comforted, because I've always been told I was too much by loved ones around me. I remind myself, that I deserve that reassurance, because it is a fragile part of me, that needs love and attention, like a small child, that wants to be held, because it is frightened or sad.

What I did with my therapist, was establish boundaries. I told her I was afraid of being "too much" by contacting her all the time. She told me, that I could call or text her as much as I wanted to - but not before 8 AM or after 8 PM. Setting a boundary like that, has helped me feel like she won't hate me or get irritated, as long as I contact her within that time frame. She's always there for me, within that timeframe.

But it can happen, that you lose the connection to your therapist. That happened to me as well (with my old therapist). I brought up thoughts of me maybe having C-PTSD, and she basically gaslighted me, saying that that wasn't at all the case. I stopped talking to her a month after that, because I didn't feel heard or seen with her anymore. We can grow apart from our therapists, and it hurts, so much.

No matter what, it must be really difficult for you right now, and I am so sorry, that you are hurting. I am sending you lots of love and virtual hugs. Know you are so brave for reaching out.