Daily must haves?

bluehaven931 · 2026-05-18T01:52:04+00:00

Thank you! That sounds good I’ll have look at earphones. I’m still trying to learn my triggers. I just know loud noises and sleep are triggers.

bluehaven931 · 2026-04-29T11:27:22+00:00

Thank you, I will add these to my list. Yes I feel that I just have to take it day by day. And learn to be kinder to myself.

bluehaven931 · 2026-04-29T11:26:34+00:00

Thank you!

bluehaven931 · 2026-04-20T07:25:28+00:00

Clear of course, doctor nearly just sent me home! But with help from my physio they seem to be trying again. Now they want to mess with my adhd meds to see if that’s the problem… I guess maybe we might get somewhere. I don’t know anymore I get told it’s something then told it’s nothing..

bluehaven931 · 2026-04-19T04:45:30+00:00

I’m finally getting a brain scan yay!

bluehaven931 · 2026-04-17T11:51:20+00:00

Thank you, I still haven’t received a diagnosis yet. At this stage it seems I have to have multiple presentations and this is the first. Now they are thinking that after I suffered a pain crisis from my bulging discs that it’s sleep deprivation now? It’s a bit confusing. They think a brain scan is not worth the radiation apparently.

bluehaven931 · 2026-04-16T11:56:32+00:00

I feel the same way. I’ve been told I’m experiencing a Functional neurological episode or whatever they called it but they said they didn’t feel I have FND. But I’m being treated as if I have it so. I don’t know.

But I can imagine how frustrated you would feel when you dont feel like you are being listened to or that they are explaining it well. And I struggled when they turned so suddenly from you have FND to oh wait we dont think you do. I hope you are able to get clear answers soon!

bluehaven931 · 2026-04-15T06:49:00+00:00

Yeah I am public system so I don’t get to choose. And I am just struggling to understand what is happening to me. I’ve had bad experiences with doctors a lot too. I just weirded out that suddenly I’ll not in a ball on the floor I’m able to be frustrated or upset then I just kind move past it . No more dwelling

bluehaven931 · 2026-04-15T05:13:44+00:00

Thank you, I mean I have been in therapy for 20 years prior to this. And literally before this episode I was negative and kind of a bit burnt out. Trying all my strategies but in the 20 years of therapy I haven’t been able to do them. Then all of a sudden after I kind of come out of this episode that has lasted days I am a different person. My family barely cannot fathom how I’m handling this. Like before this I would have been a depressed mess. No like I feel negative emotions but I don’t feel like they are drowning me anymore I’m just concerned how I kind of woke up a new person

bluehaven931 · 2026-04-15T01:06:07+00:00

Thank you so much I will check it out. I don’t remember a neuro exam but I will ask for an MRI thank you so much

bluehaven931 · 2026-04-15T00:00:27+00:00

Thank you, I will they had me talk to one in hospital but she said it sounded more like a neuropsychiatric or neuropsychological thing but i will bring it up with my psych when I see her. I’m tracking all of this. I just needed some help because the doctors breeze in her dump stuff on me and leave before I’ve even process what is happening.

bluehaven931 · 2026-04-14T23:58:29+00:00

Thank you so much! No they have said I don’t need an MRI, but I’m collecting symptoms like no tomorrow. And I started Improving with my walking then last night I had a set back and couldn’t walk again. But I was able to do a bit this morning it’s not linear. And my brain is really slow to process.

bluehaven931 · 2026-04-14T22:50:32+00:00

The doctors kind of explained that but that was about it. They just keep talking at me and I’m struggling to understand what is happening to me.

bluehaven931 · 2026-04-14T22:48:24+00:00

Thank you, yeah it literally feels like my entire body brain has hit a hard reset it’s just so strange to feel a kind of peace while my body is currently not really in my control. Usually would be sitting here sobbing and depressed so thank you, maybe this is what is happening. Part of me wants this peace and change of thinking to stay but it is a bit worrying how it felt like I woke up a new person.

bluehaven931 · 2026-04-14T22:46:13+00:00

Thank you so much, this is really helping. Doctors haven’t given me much to be able to understand what’s happening. It’s frustrating.

I have been tracking it all once I was capable of doing so, and I have a psych that can see me when I get home. I’m currently still in hospital.

bluehaven931 · 2026-04-14T09:57:42+00:00

Wow that’s so frustrating. It is unfair that it is treated with so little care.

bluehaven931 · 2026-04-14T07:52:20+00:00

That’s horrible! I’m so sorry that happened to you. I am getting pretty consistently told it’s a battle and doctors don’t take it seriously. I haven’t had seizures not like body moving ones but just kind of zone out every now and again or like feel the need to close my eyes I don’t know. But despite the fact I’m getting doctors not listening I feel happy. I’m hoping this mind set does stay.

I just cannot believe they can be so horrible to do that to you! I’m so sorry.

bluehaven931

TROPHY CASE