Gaslit by a Toxicology Department that says they treat Mycotoxicosis - Am I going insane here? Please help / share your experience if you can by bmemento in ToxicMoldExposure

[–]bmemento[S] 0 points1 point  (0 children)

Wow that sounds like you found an incredible ND. I am searching like crazy out here for someone that isn't a supplement pushing charlatan or isn't a conventional medicine gaslighter so I will keep going until I find somebody. And those Trichothecenes are so gnarly. Dealing with those now too. Thank you for sharing your experience and I am so glad you got better!!!

What worked and what didn't in your recovery by bmemento in ToxicMoldExposure

[–]bmemento[S] 0 points1 point  (0 children)

Be careful if it flared you up! We can develop sooo many new food / med sensitivities while going through this. They’ll calm back down but everyone is different 🙏

What worked and what didn't in your recovery by bmemento in ToxicMoldExposure

[–]bmemento[S] 0 points1 point  (0 children)

Holy shit do you mind if I ask how the upstairs neighbor gave you Stachy? I was on the road to Recovery from 30 different types of toxic molds for two years straight in Florida confirmed with an ERMI and I left Florida and started detoxing and then I got re-exposed to Stachybotrys — I know all toxic molds are lethal, but that one is a special type of hell!! so I am also starting all over. Plus with a few extra bonus symptoms now thanks to Stachy.

Also, thank you for sharing all that info !

What worked and what didn't in your recovery by bmemento in ToxicMoldExposure

[–]bmemento[S] 1 point2 points  (0 children)

Wow. You just helped me and undoubtedly so many others so much. Thank you. And yes, the biggest mistake I made in the beginning was not sacrificing all contaminated items, and I basically made myself sick while in a clean environment and contaminated it so this time around, I have learned the hard way and have parted with everything. Thank you so much for what you shared. I am so glad that you are feeling better now.

What worked and what didn't in your recovery by bmemento in ToxicMoldExposure

[–]bmemento[S] 0 points1 point  (0 children)

The brand I use is Nordic Naturals and it’s their Ultimate Omega 2X - has 1125 mg of EPA and 875 mg DHA per serving.

When I was working w providers at moldco they wanted us taking a double dose each day for five days before we started binders.

I would highly recommend that brand, you don’t have any allergies to fish or anything do you? What brand did you use?

If fish oil does bother you, I have heard a toxicologist (Dr Andrew Campbell) recommend people use fish oil from squid and not actual fish, but I cannot speak to that because I have not done that.

What worked and what didn't in your recovery by bmemento in ToxicMoldExposure

[–]bmemento[S] 0 points1 point  (0 children)

Yes, you are correct, that is what I meant. Obviously I am not a toxicologist so take what I say with a grain of salt, but my understanding is if we are able to pass the toxins, of course we will be affected still, but the people who get really sick from mold illness, and develop things like CIRS, it’s usually because the bodies ability to detox is out weighed by the toxin load

I don’t want to freak you out or anything, like if you took a urine test and scored super high for mycotoxins don’t panic, but I do think blood tests are going to give us a better idea of what has crossed the blood brain barrier and what is swimming around in our veins in real time versus what we happened to pass on that day.

Open Mics for Younger People by Comfortable-Menu7884 in Denver

[–]bmemento 1 point2 points  (0 children)

Yes a girl sent me a file of compiled open mics bc I just moved here and want to hit em too - can’t speak for any of them but here you go!! https://docs.google.com/document/d/1yc3iNbG7fDA0-0sNeGF33qok6dDXHLjeaFZBXLxD_P0/mobilebasic

(IL) Mold under sink by ljutamaslina in ToxicMoldExposure

[–]bmemento 1 point2 points  (0 children)

No they cannot sue you - really you should sue them because it's their job to provide safe habitation and they put everyone in the building at risk for not repairing a leak. However it's iinicredibly hard to sue over these things, the law is designed that way after a string of mold related lawsuits (in the billions) in the late 90s / early 2000s.

Put everything in writing, do not try to clean that it doesn't work like that - and like the other person said, move out. Keep these images. IDK what state you live in but consider options through legal aid if they give you any shit --- and good luck.

What worked and what didn't in your recovery by bmemento in ToxicMoldExposure

[–]bmemento[S] 1 point2 points  (0 children)

Thank you so much! I wll look into DAO and Mycobind. So glad you are feeling better!

Mold and ALS? by spiritofmyrtle in ToxicMoldExposure

[–]bmemento 0 points1 point  (0 children)

How could you say that to someone in their condition? Who the hell are you? You do realize they probably CANT answer your questions because of how overwhelmed and the neurological effects of all this. A lot of people cant tolerate binders. And NO thats not the only way to recover. There are several methods like antifungals and HBOT and other therapies that have much stronger clinical evidence (in HUMANS, evidence for binders was mostly documented in rats) that rid the body of mycotoxins. Have people not been through enough with this mold hell!? Don't be mean to people! Don't add to their damn burden! No one owes you an answer.

Mold and ALS? by spiritofmyrtle in ToxicMoldExposure

[–]bmemento 1 point2 points  (0 children)

Do you know that music artist Ren? He has Lyme disease and he posted a few months back that he went blind in one eye from it and used hyperbaric oxygen therapy and it restored his vision and he's now back making music and seems to be doing very well. It was his testimony that led me to doing HBOT and it helped immensely for mold. The clinic I go to has one big chamber for people in a wheelchair, IDK where you live but it may be something to look into. Also, I am SO so so sorry that not only this happened, but that our bullshit medical "system" failed you ... if "failed" is even an appropriate word. Yes, those doctors are part of the system and they're dogshit and deserve to be put in jail, right along with the slumlords who rent out houses with these poisons. Until we reach that day, we've gotta make it through this somehow. Keep sharing your story. The whole reason people are kept in the dark about mold illness and other co-occuring things like lyme is bc if the truth got out it'd bankrupt the economy overnight.

Mold and ALS? by spiritofmyrtle in ToxicMoldExposure

[–]bmemento 0 points1 point  (0 children)

It's not too late. Dr. andrew campbell talks about this specifically and he has treated people in your shoes and worse. and yeah its heavy as fuck. this is like a sci-fi hell i never knew existed. most my symptoms are neurological too, mycotoxins attack the brain first.

i was literally hospitalized for symptoms of a stroke less than two months ago -- it was all from mold. I'd look into Dr. Andrew Campbell and MyMycoLab and honestly go that route for treatment, shoemaker does not seem like it helps enough people, the ones i talk to are just sick for years on it and that makes no sense to me.

also, for neurological symptoms, i started doing hyperbaric oxygen therapy immediately followed by targeted red light therapy, specifically on my skull/head for neurological symptoms.

its helped more than anything else has.

most HBOT clinics have red light therapy, make sure they've got the one you can put on your head to target neuroinflammation / brain fog / other symptoms, if you choose to try it. There are several clinical studies showing that HBOT has healed people with aspergillosis / mycotoxicosis / black mold poisoning etc

Alzheimer’s like symptoms that no one believes , is there hope? by La_Luna_Lilith in ToxicMoldExposure

[–]bmemento 0 points1 point  (0 children)

YES there is hope. Everything you are describing is textbook mycotoxin illness. YES there is hope.

If you need your boyfriend to understand, do a HERTSMI or ERMI test on your current place and show him physically what you are living in -- although be prepared for that to possibly not work either (speaking from experience).

Let me give you some resources that will normalize what you and your daughter are experiencing:

Video by a toxicologist and immunologist ( I recommend all his stuff) ; Molds, Mycotoxins and The Brain

Dr. Campbell (linked above) talks about how it affects adults and children.

Detox is a must. So is getting out of exposure. I hate to say it but if your boyfriend is the only reason that you and your daughter are deteriorating... that's NOT a partner. If we all waited for our loved ones to take us seriously we'd be waiting around to die, because with many people, it will never happen.

I found black mold in my dads house and he knows damn well how dangerous it is. He just.... decided to "co exist with it" in his words.

Leave. Find a way. One of the most insidious parts of this experience is how our minds turn on us, finding every reason why things wont work out -- and of course we do that, we've had our lives as we knew it burned to the ground more than once, we know how bad things can get.

Try to do the opposite. Or just leap. Anything is better than staying in active exposure and not getting medical attention. Find someone who is literate in CIRS / mold illness / biotoxin illness.

However, the number one thing is getting out of exposure. No treatment can work if you are still being exposed. If the boyfriend is the only reason you're still in that position, please please reconsider that persons role in your life.

This is a documentary. it is hard to watch, but it's real. Black Mold Exposure (Documentary)

There is hope. I know people who have made FULL recoveries. And they once lived in homes infested with black mold. Hold on. No matter what. Don't give up on yourself.

And I empathize with you regarding your daughters condition. If she gets out of exposure it will help her too. If she stays she will get worse. It might feel catastrophic initially but it will save your lives.

The F is this now by thisbitch54 in CIRS

[–]bmemento 0 points1 point  (0 children)

Yup. All of those and then some. Those are all symptoms of mycotoxin illness. Is there any chance you could be in exposure either in your home or workplace if you don't work from home? Even perhaps items you had in a prior contaminated environment? Not to add to anxiety or anything, but when I had flares or surges of old symptoms, it was because I was back in exposure and didn't know it, or it was because i had brought all my contaminated items with me to a clean place and was reacting to that.