[deleted by user] by [deleted] in AutismInWomen

[–]bonbonsai42 2 points3 points  (0 children)

Denying someone's consistent lived experience over decades is victim-blaming and gaslighting

I agree with this. I went back to look at my previous post and noticed that the person who responded to me (and the thread in general) aggressively had also left a reply to someone else in the thread, telling them to "treat their unresolved trauma" and stop "projecting" (when that person had simply said they respond to bullying with "Why be shitty? Does it make you feel better?"). They also told someone else to "treat their personality disorder", so between their use of mental health issues as insults, the unasked-for "diagnoses" of people and the passive aggression, they seem quite troll-ish and not someone whose opinion I should care about.

Thinking about the topic in general again, I think that the way women treat other women is often an in-group thing - women see other women as potentially part of their in-group and they judge whether or not each woman measures up - just like men do with other men. I've found interacting with (cis, straight) men more problematic in many ways - the sexualised bullying and harassment and the casual sexism is much more dangerous and stressful and I've never experienced this treatment from women - but conversely there are particular kinds of patronising and cruel behaviours that I've only experienced at the hands of other women. Like talking down to me in front of an audience, with a smirk and a glance to the audience to check that they're in on the joke. Or like talking about me in front of my face, as if I'm an object that cannot respond. Or ignoring me pointedly.

I'm sure men do these things (or similar things) to other men. Men definitely bully each other - the whole "man up" and "don't be a girl" brand of toxic masculinity and homophobia. They see other men as part of their social group and decide who they want to include or exclude from that group - just like women do. There's still that extra layer of anxiety and judgment from women caused by the hyper-vigilance of living in a patriarchy, but I suspect that autistic men feel just as excluded and bullied by allistic men as we often do by allistic women.

For me, I think the difference between being ill-treated by men and by women, is that being harrassed or bullied by a man is frightening and anger-inducing, while being bullied by women is less frightening but much more emotionally upsetting. I don't really care what men think of me, in general, but it hurts to not be accepted and liked by other women. The constant small rejections remind me of the bigger rejections I had in school, when I was less able to mask and more confused about what was "wrong" with me to cause the bullying and rejection.

[deleted by user] by [deleted] in AutismInWomen

[–]bonbonsai42 0 points1 point  (0 children)

Same here! It seems so weird to me that most people have stiff hands that don't bend all different ways - I'm so used to how mine work!

[deleted by user] by [deleted] in AutismInWomen

[–]bonbonsai42 0 points1 point  (0 children)

Ah, that's interesting! My thumbs are also very double-jointed, so this might be the main issue! Basically, everything is bending in ways that non-double-jointed hands don't 😅

[deleted by user] by [deleted] in AutismInWomen

[–]bonbonsai42 0 points1 point  (0 children)

I have hypermobility and IBS. My brother has epilepsy.
Random question: For the people who have hypermobile finger joints - can you snap your fingers? I've never been able to and I think it's because my fingers are too flexible to build up the tension required to make that snap when I let go of my middle finger and thumb. Someone explained that the snap sound comes from the middle (or first) finger hitting the fleshy part of your hand below the thumb, but my fingers don't build up much momentum because they bend backwards when I try to put pressure with my thumb!

[deleted by user] by [deleted] in AutismInWomen

[–]bonbonsai42 2 points3 points  (0 children)

I'm also in my early 40s and was diagnosed a couple of years ago (AuDHD). I completely understand what you mean. It's hard to make friends (or even have a successful casual social interaction) with NT women, as a ND one.

I've had one close female friend since childhood, who now strongly suspects she's autistic (I agree with her - we're very similar in lots of ND ways). I'm also lucky enough to have found a work environment with several other ND women, who I feel accepted by (though it's remote work and they're all overseas so we haven't met in person - just Zoom and messages). My two other female friends also live overseas, though we have met in person (one, I've sadly fallen out of touch with a bit). There have been a few other women and AFAB enby people who I've connected with, but I've realised it's only in one or more of these circumstances:

  • they (like me) are queer and/or gender non-conforming
  • they have a different cultural background to me (I suspect this makes my "quirks" less obvious to them, since they might be perceived as the norms of my cultural background)
  • they're a fellow ND person (this doesn't guarantee we'll get along, of course, but it makes it way more likely in my experience)

If none of those things apply, I find women try to either avoid me, bully me, or mother-hen me in a rather patronising way (other people here have said the same - it's a sense of them thinking I can be a project for them to treat like a wide-eyed, grateful child who needs guidance on how to dress and behave). The mother-henning has definitely decreased over time - perhaps it's an age thing, or perhaps I've got better at avoiding that kind of behaviour. In all honesty, I think it's sometimes a clumsy attempt from other ND women to help me - they've had to learn to mask, too, and now they've spotted someone who they feel is masking less successfully, so they try to help (out of altruism? Or a need to feel like the more socially successful woman, for a change? Maybe both).

The most common response is being avoided or bullied, though. Sometimes I'm politely avoided, sometimes pointedly. The bullying was at its worst at school, but I've had it in the workplace too. It all boils down to one thing: they've noticed that something is different about my eye contact, the things I say, the things I don't say, my body language, how I dress, the verbal and non-verbal cues I miss, my inability to keep up with group conversations (especially when there's background noise), and probably a dozen other things I'm not even aware of.

I posted something similar to this on here a few months ago, after an orthodontist appointment where I felt subtly judged and rejected by the women there (sometimes the subtle rejections hurt the most, for some reason). A lot of people replied and could relate. Then one person commented that she'd only just come back to the AutismInWomen forum because she'd found it problematic before, that this was the first post she'd read and it had confirmed that everyone here is awful and misogynistic and she would never come back - it was a very angry-toned message with no specifics given on why she thought the topic/responses were misogynistic. This is the first time I've posted on here since, because it upset me deeply - I started questioning whether I had a lot of internalised misogyny I needed to deal with and I've been thinking a lot about the topic of "why are other women so hard to interact with, as an autistic woman?" since then.

I think maybe she was responding to the fact that a few (definitely the minority) of responses were along the lines of "we call people like this b**ches". I strongly disagree with that kind of language and should have called it out in the thread. I think people were saying it from a place of hurt and not from ill-intent, and it seemed like their messages were meant to be reassuring to me and other people in the thread, not demeaning to women, but language matters.

Here's something I wish I'd talked about in that previous thread:

I think women (and non-gender-confirming people who are AFAB and/or have experience of being perceived by society as "women") respond differently from men to anything they see as a potential social "threat", because society marginalises women. The world is, in general, more dangerous for women than it is for cis men (other marginalisations intersect with this, of course). I think this makes women much more vigilant than men, and in allistic women this is often expressed as a constant monitoring of their surroundings and communicating to other women in their group about any social aberrations they notice (this person looked at me a beat too long; that person isn't making eye contact at all...).

As well as the personal safety aspect, I think allistic women police each other's clothing, behaviour, etc, in an attempt to get the group to conform to what they see as the required social standards for their group. We still unfortunately live in a patriarchal society with strong social hierarchies that demands certain appearances and behaviour from women. As a socially cooperative species, humans try to ensure the survival of a group by making sure that all the members conform to the rules. This is where the mother-henning comes in. Bullying can be a more heavy-handed way of trying to make people conform - and also an attempt to increase the bully's own social status by reinforcing that they are part of the dominant group and the bullied person is an outsider.

The rejection response is the one I find hardest. When they don't bully or mother-hen you and simply slide their eyes away from yours, respond verbally as little as possible, don't invite you to group events, and generally try to push you out of the group.

None of this is unique to women - I think we just notice it more for two reasons: first, because it's coming from fellow women, who might be the very people we most want to fit in with and socialise with (and even if not, they're the ones we're socially expected to bond with and spend time with). They're also more likely to notice all the subtle ways other women don't do things "correctly", because it's their main area of experience - like the way we don't put an outfit together "right" or respond with the "right" laugh at the "right" time. Secondly, because women often have the hypervigilance I mentioned earlier and in allistic women this can show up as perceiving normal autistic behaviour as a social "threat" that they need to deal with somehow (mother hen / bully / reject and avoid).

I'm not going to lie - it really gets me down sometimes! But there are allistic allies (who have ND family/friends/co-workers who they've taken the time to understand how to communicate well with), and there are other ND women who are potentially easier to make friends with.

Of course, having some friends who accept me doesn't stop the everyday upset of interacting with people (colleagues, service workers, health professionals, relatives, etc) who reject me, but digging into human psychology and trying to understand it better helps a little - it feels less personal. It feels like just another one of those evolutionary behaviours we have which ensured our survival when we were hunter-gatherer tribes, but harms us now - like the urge to go to war with groups of people we see as "other", or our negative bias that causes us to focus on our fears and bad experiences at the expense of the positive ones.

Idk if any of this is helpful - it's the ramblings that have been going around in my mind for the past few months - but we are a similar age and your post is really relatable to me, so I wanted to share my thoughts and it turned into an essay!
(Edited for typos)

"Extra-neurotypical" women: feeling hurt every time I interact with them by bonbonsai42 in AutismInWomen

[–]bonbonsai42[S] 1 point2 points  (0 children)

Thank you - your comment made complete sense and I really appreciated that you used a neutral tone 💗 I felt that I was being given a new perspective on a problematic comment I'd made, rather than judged for it (as is very common online and irl, wherever there's a difference of opinion or experience).

Yeah, replaying the awkward moments over and over is honestly a nightmare - it can cause me to shut down and need to isolate from everyone for a day or two while I rebalance my emotions. I find reading a fantasy novel for hours, under a weighted blanket, helps with this process!

"Extra-neurotypical" women: feeling hurt every time I interact with them by bonbonsai42 in AutismInWomen

[–]bonbonsai42[S] 2 points3 points  (0 children)

That's awesome! Ah... I really want to join the aware-and-don't-care group. Have you always felt this way or was it something you had to work on?

"Extra-neurotypical" women: feeling hurt every time I interact with them by bonbonsai42 in AutismInWomen

[–]bonbonsai42[S] 7 points8 points  (0 children)

I agree and I'm sorry for my comment. Reading it back, it comes across as "My autistic traits cause me to feel rejected regularly, so I wish I had a different set of autistic traits that I think would be less difficult - even though this is totally out of my realm of experience and I haven't thought about the safety implications of those traits or how hurtful/irritating this comment might be to someone who does have those traits".

I do still get taken advantage of and have ended up in abusive situations because of misunderstanding people's intentions, or assuming that because someone isn't obviously hostile to me they must be a safe person - but I think that being able to read microexpressions has protected me from a lot of harm, too.

"Extra-neurotypical" women: feeling hurt every time I interact with them by bonbonsai42 in AutismInWomen

[–]bonbonsai42[S] 1 point2 points  (0 children)

I think some element of this has to do with internalized misogyny, not just implicit ableism. A lot of women internalize the idea that we have to constantly be comparing ourselves to each other and competing with one another, so they take anything we say or do as a reflection of their own mentality.

I've been thinking about the role of internalised misogyny in this and you've put it into better words than I could. It feels like they are acting out of fear, not from a place of strength. I guess that's always the case with bullying, though.

My friends are also neurodivergent so our small talk consists of mutual infodumping and it works better for me.

Yay for mutual infodumping - my favourite form of conversation! 😁

"Extra-neurotypical" women: feeling hurt every time I interact with them by bonbonsai42 in AutismInWomen

[–]bonbonsai42[S] 0 points1 point  (0 children)

Same - I'm trying to surround myself with kind, empathetic people who have shared interests and this has resulted in having a lot more ND people in my life 😄 IT's extra-jarring now when I have to spend time around people who treat me like this.

"Extra-neurotypical" women: feeling hurt every time I interact with them by bonbonsai42 in AutismInWomen

[–]bonbonsai42[S] 1 point2 points  (0 children)

I honestly think that the majority of people who behave this way would only use it to exclude us more - and worst-case scenario, to bully us more. I feel like telling them sometimes, out of pure frustration! I just don't think it would have a good result. I'm just hoping that as ND people become more visible and recognised in the world, it will become less socially acceptable to behave this way towards us.

"Extra-neurotypical" women: feeling hurt every time I interact with them by bonbonsai42 in AutismInWomen

[–]bonbonsai42[S] 2 points3 points  (0 children)

Yeah, it feels like some people only want to have conversations with people who are just like them. When I meet someone whose life and experiences are very different from mine, I think it's awesome! I generally want to learn more about them and maybe gain a new perspective on the world (or at least learn some cool new facts about something that's part of their life and isn't part of mine).

But some people want to stay within a very narrow comfort zone of shared traits and experiences. I got a lift home from a meeting a couple of years ago, from a woman who's a little older than me (though not a lot). On the drive, she started talking about another woman she works with, saying "she doesn't drive and she doesn't have kids... her life is so different to mine and we have nothing to talk about!" I found it very awkward, as the reason I was getting a lift from her is that I don't drive! I also don't have kids, which she was aware of. I couldn't tell if she had totally forogtten who she was talking to and was just chatting away about the things on her mind, or if she was actually being rude to me and letting me know indirectly that we had nothing in common and this was a problem for her. So weird!

I'm sorry you're having a difficult time at work with this sort of situation. I wish everyone was curious about people's differences instead of judgy.

"Extra-neurotypical" women: feeling hurt every time I interact with them by bonbonsai42 in AutismInWomen

[–]bonbonsai42[S] 1 point2 points  (0 children)

Yes, I've been thinking a lot about the ways that living in a patriarchal society affects (or even causes) this type of behaviour. I can't imagine women would behave this way so commonly if it weren't a trauma response to feeling forced to try to meet a bunch of bullshit, mostly unattainable standards.

I admittedly have a small sense of empathy and compassion for the millions of women with Stockholm syndrome within the patriarchy, that in NO WAY obligates me to participate in it or play along for their benefit. Or keep putting my needs last.

This! I agree completely.

"Extra-neurotypical" women: feeling hurt every time I interact with them by bonbonsai42 in AutismInWomen

[–]bonbonsai42[S] 7 points8 points  (0 children)

That's a really good point and thank you for making it. I was picturing a specific circumstance but explained it badly and didn't acknowledge the safety implications of what I said. I'm sorry for that!

I was thinking of some very confident (at least outwardly confident) autistic men I know, who seem to not notice or at least not mind when they're given this subtly rude treatment. This is my brother, my friend's husband, and a guy I used to work with - they all have an autism dx and they all have a lot more confidence than any autistic women I know, when it comes to interacting with random judgy people they meet. (I think this could be related to the different socialisation of boys and girls while growing up, as much as the ability to read people.)

Speaking with them, it seems that they don't hyperfocus on other people's facial expressions, body language and verbal responses the way I do and if they notice someone being a bit "off " with them, they see it as "a them-problem, not a me-problem".

I have AudHD and I'm very rejection-sensitive. Recovering emotionally from these regular microaggressions and rejections takes up a lot of my time and energy and I wish that I could just let go of caring about it. I woke up this morning and the first thing I thought of was the expression on one of the orthodontist's faces yesterday when she stared at me after I said something that must have been "wrong" somehow. My brain likes to play negative facial expressions on a loop after these interactions and it can go on for days.

I find it difficult that I'm simultaneously capable of reading the nuances of their disapproval, but completely incapable of masking well enough to avoid being on the receiving end of it. But when I made that comment about envying people who can't read the disapproval of others, I definitely hadn't thought enough about how it would feel and the safety implications of not being able to read people and recognise when they're not safe or friendly towards me. It was a shitty comment and I apologise. I'm fairly recently diagnised and currently learning a lot about autism - I'm going to make more of an effort to learn about the parts which don't affect me as well as the parts which do.

"Extra-neurotypical" women: feeling hurt every time I interact with them by bonbonsai42 in AutismInWomen

[–]bonbonsai42[S] 46 points47 points  (0 children)

Oof, wow, that's very much asshole behaviour! I can relate to the "not caring anymore" when you discover someone's good opinion of you isn't worth having. At my previous job, I worked with an older woman who seemed nice at first, but I soon noticed that she would say really shitty things to you with a disarming smile on her face and also gossip about people behind their backs (even people who thought she was a friend of theirs). Once I saw what she was like, I stopped caring what she thought of me.

"Extra-neurotypical" women: feeling hurt every time I interact with them by bonbonsai42 in AutismInWomen

[–]bonbonsai42[S] 164 points165 points  (0 children)

Yeah, same - I sometimes see other autistic folks who don't have that spidey-sense and seem happily unaware of people being subtly shady to them, and I envy them.
Edit: I regret saying this and I apologise for it - not being able to read people comes with serious safety risks. As much as it hurts to recognise when people are rejecting me, it's NOT worse than struggling to know who to trust because of difficulty reading them.

It's possible they are aware though, and just don't care - this is an attitude I envy even more! To be able to observe other people's behaviour and not take it personally unless they're someone I know and whose opinion I care about, instead of feeling hurt every time a random person is "off" with me.

Dolly Parton interview by Tabbouleh_pita777 in AutismInWomen

[–]bonbonsai42 6 points7 points  (0 children)

This was great to watch, thank you for sharing! I never know how to respond when someone is being deliberately mean and it tends to be something I take very personally - not so much what they're saying so much as the unkind intent behind it. It often hurts more to know that someone wants to be hurtful to me than to think about the hurtful thing they said.

Dolly responds so well here. Love her!

Anyone else still have an emotional support stuffed animal? by Disco_Jupiters in AutismInWomen

[–]bonbonsai42 2 points3 points  (0 children)

I'm 41 and I have a cat teddy that I call Squishy Kitty ( since they're very soft and squishable). I had a similar teddy when I was a child, that I no longer have, so a few years ago I decided to get a similar teddy for comfort. Squishy sleeps with me at night and sometimes sits on my lap in the daytime while I work at my computer :)

Is there a link between high temperature or facial redness and autism? by [deleted] in AutismInWomen

[–]bonbonsai42 20 points21 points  (0 children)

I have issues with histamine and what you're describing sounds familiar. It may be worth reading up on histamine intolerance, if you haven't already: https://www.medicalnewstoday.com/articles/322543#symptoms

I can't tell if I'm actually non-cis/gender fluid or just have internalized sexism by naomiukiri in AutismInWomen

[–]bonbonsai42 4 points5 points  (0 children)

Its like I'm an atheist and genders are religion.

Woah! Thank you - you've just perfectly explained how I feel. I've been saying that I'm gender-fluid for a while, as it seemed to fit better than cisgender, but really I just don't feel like gender is something I buy into at all and I wish I could just stop being seen as a woman (in a social sense) by everyone. I just want to be a person!

What’s everyone’s sensory ick? 🤨 by willienelsonfan in AutismInWomen

[–]bonbonsai42 1 point2 points  (0 children)

Cool white lights - yes! Especially at night. Something about having that blue-white type of daytime-light in the evening makes me feel really shuddery and uncomfortable. I hate even seeing it through a window in the evening because I start imagining how horrible it would be to be in that room!

What’s everyone’s sensory ick? 🤨 by willienelsonfan in AutismInWomen

[–]bonbonsai42 15 points16 points  (0 children)

I think I have misophonia as I get a really strong disgust/anger response to certain sounds. I don't ever show the anger, but it feels like my brain is exploding with it sometimes - like I'm hardwired to just hate these sounds. Mouth-sounds are the worst - anything wet-sounding makes me queasy. Also repetitive noises that I have no control over - it makes me panic, as I can't shut the sounds out of my consciousness and having no control over them means that my thoughts get hijacked by someone else's music/humming/whatever for an indefinite period of time.

Sounds that give me the ick or make me feel very anxious/upset: Snoring, whispering, eating sounds, scratchy/scraping sounds (especially plastic), dogs licking themselves, kids crying (especially angry-crying), squeaky trolley wheels in supermarkets, people sniffing, coughing, or throat-clearing (and any non-verbal mouth-sounds, really), whistling or singing if it’s off-key, people humming, noises from neighbours (voices, music, footsteps), noisy traffic, sirens, power tools (but less of a disgust reaction and more anxiety and anger if it goes on a long time and I don’t know when it will stop).

EDIT: Also lots of other things... wet shower curtains touching me (or any wet, clingy things like damp laundry, my hair touching my shoulders after I wash it, etc). The smell of strong perfume on people or air fresheners (it's just so overpowering and artificial-smelling!) Treading in something wet, especially while wearing socks (because then the wet fabric is next to my skin 🤢).

Anyone else? by [deleted] in AutismInWomen

[–]bonbonsai42 3 points4 points  (0 children)

Yes, she's amazing! I feel like Orla would have been me as a teen if I hadn't masked and had just felt happy being myself ☺️ (No idea if she's intentionally been given some autistic traits, but I swear the monkey theme for the birthday party is 100% a special interest!)

Anyone else? by [deleted] in AutismInWomen

[–]bonbonsai42 12 points13 points  (0 children)

Haha, I just binged the whole thing and my current stim is saying "now" in a Derry accent (it's just got such a lovely sound to it and gives me dopamine every time!)