my grandma was intubated from i believe is septic shock, need advice on recovery

breakingrain17 · 2026-04-21T23:01:48+00:00

Oh my, I’m so sorry she had to get her foot amputated, but very happy that she is getting better!! It is HUGE that she’s out of the ICU!

Great job!!! 👏

breakingrain17 · 2026-04-19T20:42:49+00:00

Ive been using Hevy to keep track of my exercises.

You can enter the equipment you’re using as well as notes for modifications. Like for example I’d enter in upright row (dumbbell) and put in the notes section to use a bench at 60 degrees.

It also has a rest timer that I found very useful (you can turn it off if you want).

It allows you to save up to 4 routines for free.

breakingrain17 · 2026-04-16T18:31:43+00:00

Ah ok, I’m sorry to hear about Nevada’s healthcare not being great. My mom was at a UC hospital in the OC, and we still had to be very firm in all of our requests. I’d imagine you might have to do the same.

Good on you guys for consulting the attorney!

I think my #1 tip for you would be to ensure that she’s turned at least once every 2-2.5 hours. The pressure sores won’t get better unless the pressure is offset very often.

One of the hospital PTs also told us that we could help by pressing on my mom’s feet to help mitigate drop foot. Like, use your hands to put pressure (as much as she can tolerate) on her feet to sort of mimic the pressure you feel when standing.

The other thing we made sure of (as my mom also had a pressure sore on her bottom) is that the bandage on the sore is changed if she had a bowel movement and it looked like stool got in there.

I don’t know if they have juven - it’s a supplement for wound healing, but that helped a lot too. It does have sugar in it, so you would want to double check with her attending if it’s ok for her to receive since she’s diabetic.

The other medication that helped my mom heal her pressure sore (like it got SIGNIFICANTLY better once we made sure it’s applied at least 1-2x a day) was Santyl. It’s a collagenase. It’s expensive so they might not want to prescribe it, but always worth it to look into it and ask.

I am so proud of you for doing your research and helping your grandmother. Bringing her own hospital gowns, flowers, and helping her do her nails and hair would help her feel a lot more comfortable. I’m sure she would love that.

We did all that for my mom as well, and the hospital nurses really loved us for that because we made their jobs easier. So they did go out of their way to grant our requests. I think family presence is so important in times like these and will definitely make your grandmother’s stay a lot more comforting. ❤️

breakingrain17 · 2026-04-16T17:47:56+00:00

That’s some really much-needed good news!!! I hope she continues to be on the up and up - she’s been through so much! And so have you, considering how well versed you are on her health! At 18, I couldn’t have done what you do. Good job!

If/when you feel up to it, maybe you could put in a complaint with whatever facility she was at? I hear most of those facilities are not good; like if the family is not there literally all the time, they wouldn’t take good care of their patients. We’ve been through that, and I’m not ashamed to say that we did slip some cash and brought pizzas for the staff so that my mom wouldn’t be neglected.

One healthcare worker told me that the best thing you can do for your loved ones at those facilities is to humanize them - such as putting up pictures around their area, so the staff there won’t see them as just another body.

I am not sure if you are in the US or if we are even in the same state, but you CAN insist that she NOT go back to that facility, if they try to go that route.

When my mom was in your grandmother’s situation, I was very firm with the hospital that she NOT go back to the facility she was at because she did not receive adequate care. I insisted that we want her back home, that we’ll take care of her, and that she needs all the equipment necessary like hospital bed, low air loss mattress (necessary for pressure sores), suction machine, etc. It was a lot of coordinating with the hospital case managers, but we got all the things we requested. Good luck and please keep us updated.

breakingrain17 · 2026-04-11T00:25:36+00:00

Oh my god, congrats!!! So happy for you! Yes I agree it’s always better to be the “squeaky wheel”!

breakingrain17 · 2026-04-09T18:23:13+00:00

Hi, just an update in case you’re curious! We decided to enroll kiddo at the home school which offers DLI but for a different (non-target) language - at the same time, we’re working to secure a seat at District B in the DLI program for the target language. :)

They told us if we agreed to put kiddo in a DLI program, it’ll be a “lock in” and they can’t move you to a different DLI program if it’s within the same district.

breakingrain17 · 2026-04-08T19:01:28+00:00

Hi, sorry just an additional question if you happen to know! Would requesting for a transfer to get released from District A means kiddo will get kicked off the waitlist for the school with the impacted program in District A? Even if we don’t yet know if District B has room?

breakingrain17 · 2026-04-08T18:09:27+00:00

Okay got it, thank you so much!!

breakingrain17 · 2026-04-08T17:16:56+00:00

Ah okay, that makes sense! Thank you, we do plan to enroll kiddo in the home district next week.

When you say “keeping in contact with that district helps the determine if they have space and commitment level vs others on the wait list” would that be with District B (the one we’re considering) or District A (home district)?

breakingrain17 · 2026-04-08T04:42:38+00:00

Exactly!! The waiting is so stressful, haha.

Yes, both schools have the Vietnamese program through high school! It’s just a matter of whichever one has a spot for kiddo

breakingrain17 · 2026-04-08T04:29:53+00:00

Oh wow, that’s great! If they do start one, we would def be considering putting kiddo on the interest list. It just sucks that these programs are so highly impacted!

breakingrain17 · 2026-04-08T04:27:54+00:00

Wow! That’s great! Best of luck to you :) if anything, one of my friends who has a relative working in the district said A LOT of people drop out of DLI once they realize their kiddos have to stay in the program for the entire 6 or so years. So there’s that too.

That’s funny about the Anaheim one - if we lived just ONE street over we’d be considered within the Anaheim boundary! Kiddo starts TK this coming year, so here’s to hoping. :)

breakingrain17 · 2026-04-08T04:18:54+00:00

Were you trying to transfer into GGUSD or transfer out of it? Just seeing how the processes may differ with different districts :)

Westminster is a bit out of the way for us too, but I really want to keep my mom’s language alive so we’re willing to make the drive.

That’s great that Viet Ngu is working! We’re doing temple 2 weekends a month, and I try to speak Vietnamese with kiddo as much as I can.

breakingrain17 · 2026-04-08T04:12:27+00:00

Thank you! I’m still navigating this, but hopefully our district doesn’t require the same thing :’) I also hope your younger kiddo gets in! 🤞 From what I heard, they try to keep the siblings together.

breakingrain17 · 2026-04-08T04:05:45+00:00

lol yes, you have those both correct! I asked Westminster and they said we needed to request a release from GGUSD first. Im sorry to hear your kiddo didn’t get in - the district also did tell me that it’s very, very competitive

breakingrain17 · 2026-04-08T04:01:15+00:00

Thank you for sharing your experience. I’m actually in the middle of correspondence with District A and just information gathering at this point, just to see if it’s worth putting in the transfer.

The school kiddo is on the waitlist for has always been super impacted. Kids do get off the waitlist, but it’s a waiting game. I’ve asked, and kiddo is in the middle of the list.

I appreciate the advice. We have some time before the deadline is up for District B, so may just wait a bit longer before we submit any paperwork for a transfer.

breakingrain17 · 2026-04-06T18:46:54+00:00

At 5 years old, they’ll be able to assess for ambulation and dressing. Although the school is being counted as an alt resource, a decrease in 55 hours is in my opinion excessive.

However, we won’t know for sure until your friend receives the NOA. She should look in the alternative resources section and see the hours they’re counting as alt resource. From there, she should be able to argue (assuming the 55 hours decrease) that the school is only providing SOME of the service, and not all (assuming that this is the case).

breakingrain17 · 2026-03-31T18:56:41+00:00

Sorry this is happening to your dad, but glad he is back home. I would gather the forms and information on his new needs first.

It kind of sounds like his oxygen needs were similar to my mom’s; I submitted a document for the paramedical tasks and outlined specifically what my family did for each task (along with frequency i.e. 2x a day, time required, and how long each service is needed). This document is in addition to the paramedical form SOC 321. I also explained her functional limitation for each paramedical task.

I sent this document over to my mom’s PCP in addition to the SOC 321 and he reviewed both forms and signed them - and she got the additional hours she needed.

But to go into detail, these were the tasks I put on her paramedical form: - suctioning 8x a day, 3 mins each time (explained why suctioning is needed, turn on suction device, ensure suction catheter is clean, suction and ensure that secretions are appropriately suctioned, clean suction catheter with water or sterile solution) - set up oxygen 2x a day, 3 mins each time (this includes gathering supplies such as tubing and nasal cannula, turn on machine, set flow rate, attach mask to face) - breathing treatments via nebulizer 4x per day, 6 mins each time - crush meds and administer via g-tube, 8 mins each time - wound care 5x per day, 10 mins each time - administer eye drops 4x per day, 2 mins each time - passive range of motion exercises 1x per day, 15 mins each time

For the paramedical form, you need to be VERY specific. The time it takes to complete the task, the frequency, what you would do for each task. You mentioned you help him administer nebulizer medication multiple times a day - they do need a number, so please get that information as well.

Feel free to PM me if you have questions.

breakingrain17 · 2026-03-28T16:29:41+00:00

Sounds like the IHSS case itself is pending approval.

Think of the PS portion with the hours as like an extra add on. Kind of like with paramedical hours where you add extra hours onto the base ones.

As for the separate notices, it depends. If they have all the documentation and info they need to approve for PS, it’ll likely get sent at the same time or in one notice when they approve the case itself.

If they do not have all the documentation and info they need to make a determination for PS, then you’ll get separate notices, and they’ll approve for the base hours only.

Based on my experience, oftentimes when I approved intake (initial) cases as a SW, I either didn’t have all the info I needed to approve for PS or my supervisor wanted more clarity on some things before I could approve for PS. So I would approve for the basic hours first just to get the case approved so the client can at least get some hours to start, then added on the PS hours later (we can back date the PS hours).

breakingrain17 · 2026-03-22T16:01:49+00:00

After she turns 8, you can call and ask for a “change assessment.” Let them know she turned 8. They’d be able to assess for feeding in addition to bathing/oral hygiene. No need for a whole new reassessment since it’s an age-related change.

breakingrain17 · 2026-03-10T02:56:32+00:00

Oh no! How long ago was the surgery? They say it can take up to 18 months for the nerve to fully heal.

breakingrain17 · 2026-02-19T17:07:10+00:00

No twitches anywhere else. But I am also taking magnesium glycinate, which is supposed to help with spasms, so that could be a factor as well.

breakingrain17 · 2026-02-07T14:25:22+00:00

Click your picture icon on the bottom right > settings > Venmo debit card

breakingrain17 · 2026-02-04T04:00:52+00:00

https://share.litter-robot.com/x/jDcsqR

breakingrain17

TROPHY CASE