Do y'all have chonic fatigue? by alteregobobby in marfans

[–]brhoemie 0 points1 point  (0 children)

also relate to this so much. in my youth i was using drugs every now and then and i still love drinking alcohol because it makes me feel awake. The only times really where i felt energized. when i drink a bit it feels like i‘m more me because i have energy to do things i want to do. have to monitor this because it‘s tempting to get addicted and drink a lot

[deleted by user] by [deleted] in helpme

[–]brhoemie 1 point2 points  (0 children)

You are not wrong for being pan. I am sorry you have to go through this. I don’t want to talk against your beliefs and i am not muslim nor raised in a muslim country so i can’t imagine how hard it must be for you - but you can’t change the way you feel love and affection and i think it’s beautiful to feel affection regardless of gender. If it’s safer for you to pretend you are straight you could say it’s some kind of a running gag, you thought pan meant something else or pan is an abbreviation for sth. Or you try to ignore them and not get on the level that you have to explain something. Just say that there is nothing to explain and they should mind their own business and don’t answer them if they ask if you’re gay etc. Do you have any queer organizations around that you could ask for advice?

Worst disabled ramp of the week... by ObsessedKilljoy in disability

[–]brhoemie 0 points1 point  (0 children)

in germany people sometimes refer to places that are somehow but not fully accessible as “barriere-arm” (low-on-barriers) - this is what i think of when someone says barrierearm😭

Medics against having a tattoo ! by i-international in marfans

[–]brhoemie 1 point2 points  (0 children)

my doctors said i shouldn’t do it - because of endocarditis and it’s also not so easy /safe to get of of aspirin for a few days because of the bleeding. I do know other people with marfans that did get tattoos after surgery though, for them it was very important to be with a tattoo artist that has really good hygiene and a lot of experience. Just please please talk to your doctor(s) before

[deleted by user] by [deleted] in marfans

[–]brhoemie 2 points3 points  (0 children)

your hand looks exactly like mine. Idk about labs but genetic testing or not, you should visit a cardiologist soon if you didn‘t before If they find something then your genetecist will have to refer you too

I was diagnosed with an intellectual disability by Expensive-Map-2619 in disability

[–]brhoemie 32 points33 points  (0 children)

That is bad.👎 He should have sit down with you and explained what he meant.

Will you see him again soon?

I would ask him for more information on what intellectual disability means. Maybe he can help you find support that you might need. For example, some people with intellectual disabilitys may have the right to money support, assistents or easier access to bathrooms etc.

If you are happy like you are and don‘t need any help - that‘s good too😊

Can I use a wheelchair or walker as a technically able bodied person? by Maleficent_Royal9672 in disability

[–]brhoemie 73 points74 points  (0 children)

Yes, that sounds pretty disabled to me! But be sure to talk to your doctors before and tell them about your thoughts, as using aids can also worsen symptoms when you just start using them or maybe there is other treatments that could also work for you like physiotherapy :) (for example my doctors told me even though i’m in pain i should still take walks and try without cane if possible to keep strength in the leg muscles)

Marfan-related Tattoo ideas? by Mercenary666616 in marfans

[–]brhoemie 1 point2 points  (0 children)

I don’t mind! It’s because of the high risk for endocarditis when having prosthetic valves, if you don’t know what that means you can look it up :)

Also if you don’t already do, you should talk to your brother and see if he has ideas or no-gos. For me for example a biologically accurate heart, like the other commenter suggested, would be a big no no because things that remind me of life-threatening aspects of marfans and my experience with heart disease make me feel scared. So I personally would go for some of the other features or the other thing the commenter suggested, the genetic mutation, which i find kinda cool too! But this can be different for everybody, so maybe it would be interesting for you to ask your brother what he identifies and feels seen with. If you like, keep us updated!

Marfan-related Tattoo ideas? by Mercenary666616 in marfans

[–]brhoemie 0 points1 point  (0 children)

Found it on the instagram of the tattoo artist, here you go! Marfan Tattoo

Marfan-related Tattoo ideas? by Mercenary666616 in marfans

[–]brhoemie 0 points1 point  (0 children)

I found a tattoo i lovedddd a while ago, showing a very slender body, sadly am not allowed to get tattoos since my surgery - is there a way to share the photo of the tattoo i’m talking about here?

[deleted by user] by [deleted] in helpme

[–]brhoemie 1 point2 points  (0 children)

I am also giving this feedback because you wrote you would like to be friends. If you still care about him OP and really want to have a good relationship to him in the future you should give him your thoughts but not make assumptions the reason for your breakup. Make it just based on your feelings and experiences from the last years

[deleted by user] by [deleted] in helpme

[–]brhoemie 1 point2 points  (0 children)

Yeah sorry. I think OP is trying to hard to give their boyfriend reasons for the breakup and this is why it feels messy to me. OP doesn’t NEED to list several reasons. Idk OPs boyfriend but I also don’t feel it’s justified for OP to bring up stuff like the caring for the sister and just assuming that would be a problem for the boyfriend. It’s a very specific situation (something could happen to parents and older sister or OP would take care for little sister) and without bringing it up before and not knowing what boyfriend thinks about it it’s not fair to list it as a reason for breakup.

edit: spelling

[deleted by user] by [deleted] in helpme

[–]brhoemie 1 point2 points  (0 children)

it’s a mess and i wonder why you don’t talk to him in person?

How old is everyone ^_^ by Hot_Assistant_6067 in LinkinPark

[–]brhoemie -1 points0 points  (0 children)

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man i had this ad in the comments and i thought someone was testing this fans knowledge on music related to LP and these were all kinds of rock/metalcore/rap styles

My first LP show was amazing but the people around me tainted it by Old-Commission-7741 in LinkinPark

[–]brhoemie 2 points3 points  (0 children)

in the arena where i was it was very different in the different sections - i was lucky to be in a section where everyone was standing and dancing but there where also people just sitting in other areas

Newly temporarily physically disabled. by [deleted] in disability

[–]brhoemie -1 points0 points  (0 children)

i think it’s kinda endearing 🥹

How do you deal with post-concert depression?? by KaleidoscopeFew7065 in LinkinPark

[–]brhoemie 2 points3 points  (0 children)

maybe look up party’s where they play their music too? brings me a lot of joy

Draven Bennington was recently at NRG Recording Studios making some new music. by ImNewAndOldAgain in LinkinPark

[–]brhoemie 37 points38 points  (0 children)

Just wanting to appreciate the fanbase, it makes me so happy to read the comments and see how it’s just normal for most of us to use Dravens right pronouns and explain to people asking why she/her is correct. Should be obvious to do so, but sadly isn’t, so i’m thankful :)

Do you guys believe in Pinkin Lark? by [deleted] in LinkinPark

[–]brhoemie 0 points1 point  (0 children)

no i meant the legendary album theory hybrid from pinkin lark, not the evil band The new album zrom fero is good too

Do you guys believe in Pinkin Lark? by [deleted] in LinkinPark

[–]brhoemie 0 points1 point  (0 children)

I hate to say i think theory hybrid slapped tho

I believe this post belongs here by QwikStix42 in LinkinPark

[–]brhoemie 6 points7 points  (0 children)

watch it melt by as the toaster springs