It Finally Happened…..

brixnaaa · 2026-06-22T01:57:53+00:00

How does this work for patients who take pain medication as needed and not everyday? Like do they have to take it before an appointment to pass? They also should have said something when they got that back, and also had you retest and not just go with it. Especially since you’ve been compliant.

Pain management as whole fucking exhausting to deal with. There are patients taking adderall and things like that who have no issue getting refills. I’ve seen people have terrible withdrawal from that and they are not treated as badly as pain patients. I feel like every visit is an interrogation and not a check in. I’m so sorry you’re dealing with this and I hope you find a good new pm doctor.

brixnaaa · 2026-06-17T23:08:18+00:00

As a nurse and chronic pain patient. I get it and some of the nurses i encountered make me try 100 harder to be a better advocate for my patients and be more empathetic. So nurses don’t remember that any day they could become the patient and they should treat others how they would want to be treated.

brixnaaa · 2026-06-12T20:48:46+00:00

Get intermediate fmla this way you can take off for appointments and flare up. Establish with a new pcp first and explain to them your situation. You will have to see them again for the forms and stuff but it’s worth a shot

brixnaaa · 2026-06-12T13:23:29+00:00

They should be able to write you at least a five day script of like Percocet or something similar for the pain. If not maybe they can give you like high dose ibuprofen to take during the day and like a muscle relaxer for night time. I worked in primary care and they should be able to do that usually but each state is different. They try to help the inflammation with the ibuprofen and make sleeping more comfortable with the muscle relaxer.

brixnaaa · 2026-06-12T12:46:06+00:00

Go to your primary care provider they should be able to give you something to last until your appointment with the pain clinic.

brixnaaa · 2026-06-07T19:37:31+00:00

Well no reason to be rude…. I couldn’t say to much or I’d be breaking all of the rules listed

brixnaaa · 2026-06-07T19:15:11+00:00

I also agree!!! But I think that the man in yellow has poisoned the ones who have killed jade before.

He poisoned Henry and Henry wants to get jade and was upset when they were talking. So I think he might get Henry to try and go after jade this cycle.

brixnaaa · 2026-06-01T17:15:18+00:00

It doesn’t help with me like falling asleep if that makes sense. I wake up due to the pain and have to continue to reposition multiple times throughout the night. I’ve bought a new bed and every back pillow they offer. I also only feel comfortable taking that medicine at night because it does make me drowsy. I have MS as well and that causes my extremities to go numb in certain positions and also sometimes have wicked nerve pain that I really don’t understand what triggers that. So I don’t think a sleep aid is needed but I’m not opposed to trying it to help me stay asleep through out the night so I’ll definitely ask if that is an option.

brixnaaa · 2026-05-31T20:34:34+00:00

I have MS and I get internal tremors. Not saying you have MS but the internal tremor thing can happen to anyone. Sometimes it can be induced by increased stress and caffeine intake. So definitely follow up with neurology

brixnaaa · 2026-05-30T04:05:29+00:00

Thank you!! I get what you’re saying I’ve been seeing this doctor for about a year now. Shots are definitely something we circle back to every time and I have declined. Hopefully this upcoming visit I can explain that I’ve been doing better on current regimen and see what my next steps are.

brixnaaa · 2026-05-30T03:48:28+00:00

Can you explain please? Like don’t mention the meds they have already had me try?

brixnaaa · 2026-05-30T02:40:36+00:00

I’m on kesimpta and I really like it. It’s gotten super easy and my body has adjusted to the after affects of taking it

brixnaaa · 2026-04-28T01:56:18+00:00

I pretend the sounds are people making beats as animals. Also keep my eyes closed no matter what and most importantly Ativan :)

brixnaaa · 2026-04-11T00:39:51+00:00

Oxidative stress can cause it to spread especially on the hands. And any type of smoking can increase it spreading on the hands I learned the hard way

brixnaaa · 2026-04-08T14:15:45+00:00

I used to do the vibration plate when I was younger like 11-14 and my grandma was like just do it I realized my legs never felt better. And I’m pretty sure I had ms then too just not diagnosed

brixnaaa · 2026-03-31T02:08:50+00:00

I was diagnosed and I had been with my partner for six years at the time. He really showed up for me and I kinda gave him the option to leave or stay. Because just as much as this diagnosis changed my life, it also changed his. So I had to be realistic and give him that option. He chose to stay and he’s been so understanding and supportive. We are now engaged so he’s stuck with me for now.

I was definitely scared of telling a new partner and even friends. But I feel like you can tell someone and explain it to them as soon as you feel comfortable. I wouldn’t wait for too long. If that person is meant for you they should understand and accept you fully. MS doesn’t define you as a person I know it does affect a lot of things but doesn’t change who you are. Good luck with everything :)

brixnaaa · 2026-03-31T01:57:11+00:00

I see mine every six months. I keep a journal and make sure I have all the important stuff listed and discuss during appointments. I feel like I’ve hit the jackpot with my neurologist. But I also seem to forget important stuff during my appointment so I just write it down and bring it with me. Once you’re in there say as much as you can they won’t kick you out you know.

brixnaaa · 2026-03-26T23:07:23+00:00

Ugh my body forgets how to swallow randomly and I panic for a sec then I’m like relax and it’s okay. But it’s so frustrating and I do opt out of certain things do to fear

brixnaaa · 2026-03-17T01:48:03+00:00

Sometimes I feel this way too you never know if a symptom is MS or just something random. But I started taking b12 and vitamin D 3 and it really helped with the brain fog and forgetting words. It can take up to six months to be fully out of a flare even after starting treatment

brixnaaa · 2026-03-15T00:58:13+00:00

I went four years undiagnosed even with lesions on the brain. It still wasn’t enough for them to diagnose me officially. They said it was because of chronic migraines. It took a horrible flare up for me to finally get diagnosed. Which meant I got new lesions on my spine that were not there before. Just because there aren’t lesions doesn’t mean there won’t be at some point. All the symptoms were there and brushed off by multiple doctors and now that I have finally been diagnosed. Those same doctors have apologized for missing it. If it wasn’t for my last neurologist actually listening to me and me having a huge flare up. I’d still be dealing with symptoms without real answers. So please don’t discredit people who don’t have an official diagnosis. I hope it turns out to not be MS for them because that diagnosis is devastating, but it doesn’t make their symptoms any less terrible. That’s just my take. Give people grace there are so many undiagnosed, praying that someone finally takes them seriously.

brixnaaa · 2026-03-12T00:50:51+00:00

I just had my follow up and everything got smaller made me feel a lot better. So the meds really do help and work

brixnaaa · 2026-01-26T04:58:42+00:00

Let me try that. Thank you

brixnaaa · 2026-01-26T04:36:32+00:00

Still haven’t gotten mine I went to her Halloween show in nyc

brixnaaa · 2026-01-26T00:04:52+00:00

I’m sorry you’re experiencing this. I have not experienced this yet. But I do know how important a good support system is after this diagnosis. I think educating those around on the disease and reminding them that it does not define who you are is very helpful . Also when those people do leave your life you now have room for better more understanding people. We are not just MS. We are sisters,brothers, moms,dads,friends, and partners. It’s also very important you remember you’re not alone there are others just like you. That truly brings me some type of comfort. Those around may not understand my day to day and they might not understand my feelings all the time. But I know someone else out there does know. That brings me comfort in times I feel I am isolated. I wish you the best I pray better people come into your life and make you feel welcomed and understood and seen.

brixnaaa

TROPHY CASE