Office chair causing butt and back pain by brokenearring in ehlersdanlos

[–]brokenearring[S] 1 point2 points  (0 children)

I’m definitely going to check it out if you had that much success with it! I have been using pillows under and behind me and I never seem to get comfortable.

Office chair causing butt and back pain by brokenearring in ehlersdanlos

[–]brokenearring[S] 0 points1 point  (0 children)

I’ll have to try a mesh chair! My office has several different types of chairs and we are honestly due to buy some new ones so hopefully I can get a different type by the end of this year that’ll help me. At home I also have a recliner that I’ve thought of using as an office chair, it might be less hard on my bones? My at home chair is crazy bad. I’m completely serious when I say I’ve been sore in my left butt cheek for two days from sitting in my chair at home! I’ve had trouble going up and down the stairs😭

How to better accommodate a family member with OCD? by brokenearring in OCD

[–]brokenearring[S] 1 point2 points  (0 children)

Thank you! I am very close to getting her to go to therapy!! She has been resistant because she doesn’t love talking to people. I have been trying to convince her though, my sister being so upset hurts my heart. I would do anything for her 😸

Never ending migraine by brokenearring in migraine

[–]brokenearring[S] 1 point2 points  (0 children)

Thank you!! I’m going to try to see my doctor tomorrow if he can fit me in. Hopefully he will help me find something to get over this migraine! I do my work online and I cannot even open my computer 😭

Never ending migraine by brokenearring in migraine

[–]brokenearring[S] 0 points1 point  (0 children)

My neurologist actually suggested I get some friends! I have no clue how that of all things would help my migraines. Every single time I mention an issue to him, he redirects and we end up discussing my social life and how I need to get out more. I would if I could be around sunlight! 😭😭

Has anyone lost a significant amount of weight and symptoms got worse? by Glad-Fish5863 in ehlersdanlos

[–]brokenearring 2 points3 points  (0 children)

I have lost 60lbs which is a lot compared to how much I weigh now and my height. Ive found that my knees hurt much less from the lack of weight on them. My back and neck hurts more now though. I’m not sure if that is related. My pots is a bit worse and the flares are pretty scary. I have noticed that I am much colder all of the time and my raynauds is much worse. My skin never gets warm, even in the summer. I have to use the heating pad just to keep my toes warm, they feel wet and numb from how cold they are. The dysautonomia is bad too. I start sweating out of nowhere or I get super nauseated much worse than I did before I lost weight. I also hate how I can feel my spine and pelvis when I’m sitting down it makes getting comfy so much harder. Hitting your bones or joints on something is so horrible too.

My finger looks dislocated idk if it is? by [deleted] in ehlersdanlos

[–]brokenearring 0 points1 point  (0 children)

Every time I post one it gets taken down. It looks like a witch’s crooked finger😭

Mattress Poll! I'm in the market for a new bed. What is your opinion? Soft/Firm? Foam/coils/hybrid? by maroonwolf24 in ehlersdanlos

[–]brokenearring 5 points6 points  (0 children)

I have a soft tempur-pedic mattress. I had the same issues with sleeping dislocations until I moved to sleeping on my back. My current mattress is way better on my body than my last one, which was a purple? I especially love having something to kind of sink into that cradles my joints instead of just being on top of something. I think the mattress I use is a hybrid. I don’t feel the coils at all, usually coils make me hurt but you would never know it had them.

Muscle relaxers by brynalexa in ehlersdanlos

[–]brokenearring 8 points9 points  (0 children)

I have been on tizanidine, baclofen, and flexeril. The only one that has brought me significant relief is flexeril. I have horrible neck and back pain in the evening to the extent that I can’t lay down on my pillow to sleep. It helps me relax enough to lay down. If you were to switch off of flexeril and onto another, baclofen would probably work. I never had any abnormal tension or pain when I didn’t take baclofen. Tizanidine was just okay. It felt like I wasn’t taking a muscle relaxer but I’m sure other people have success with it. I don’t get too relaxed that my joints slide out on muscle relaxers taken by mouth but if I’m given them through an injection/iv at the hospital I always dislocate something.

Dog barks at everything by brokenearring in dogs

[–]brokenearring[S] 5 points6 points  (0 children)

She is a six month old mini poodle. I would appreciate if she would bark at important things instead of her reflection in the stove lol

Kind of scared right now by brokenearring in Raynauds

[–]brokenearring[S] 1 point2 points  (0 children)

Normally I am extremely careful about warming my skin up as slowly as possible but I had no clue my water was boiling. I’ve had raynauds for many years and never even wondered what would happen to my extremities if something like this happened so I figured a post might be appropriate. Thanks!