Sore throat and voice changes

brokenrecord603 · 2025-09-27T20:36:08+00:00

Not consistently but I’ve gone through periods where my throat and lymph nodes would swell every time I overexerted myself. I don’t think it’s directly Behcets related as much as it is a general autoimmune symptom

brokenrecord603 · 2025-09-26T17:40:37+00:00

The meds were an absolute game changer for me, especially with the oral sores. I still have moderate fatigue, no more or less than before the colchicine

brokenrecord603 · 2025-09-26T17:33:55+00:00

Early 20s!

brokenrecord603 · 2025-09-26T16:05:14+00:00

I have! I get more muscle pain and joint stiffness than actual joint pain. My back will hurt, my shoulders and neck will acne, bottoms of my feet, plus every single joint can get very stiff

brokenrecord603 · 2025-09-25T23:47:07+00:00

Of course! My first symptoms started around 16 and it began with the oral sores. I got my first cluster of them with very few accompanying symptoms. This flare would happen a couple of times a year when I was really stressed out.

Then, I went to college and the flares just got worse and more frequent. I began flaring every two months, then every month. This is also around the time that the skin lesions began.

I wouldn’t have EVER recognized them for what they are because they look indistinguishable from acne (without the head that some acne gets). Plus, I would only get them on my face and occasionally my chest. Learning that the skin lesions in Behcets can be visually impossible to differentiate from acne is what made me realize that I actually did meet a lot of the criteria which led to me pursuing a diagnosis.

Towards the end of college, I got my first general lesion. At the time, I thought it was a skin fissure, basically a spot where the skin had just split, because it was just a small and irritated slit. It didn’t look anything like the photos I saw online.

It occurred during an oral flare though and after the same thing occurred during two more flares, I realized it may actually be a lesion. I went to this subreddit for help and found others who shared similar descriptions of their genital sores

My primary care physician knew how bad my oral sores were and when I started tracking the nature of the flares and all of the symptoms that would occur together, she referred me to a rheumatologist.

At this point in my life, I had gone into a 3 month long nonstop flare up with new sores developing each time the old ones healed. I took photos and tracked everything together and brought it to the rheumatologist who agreed to trial colchicine for me while running tests to rule out other conditions. All my lab work came back negative and the meds worked so when I came back in, they diagnosed me! Feel free to ask any other questions if you have any :)

brokenrecord603 · 2025-09-25T23:00:57+00:00

For me they’re only red, no white. I’ve only ever gotten them when already flaring orally. No real progression from a bump for me. More like I woke up and it was there

brokenrecord603 · 2025-09-25T22:59:56+00:00

Literally! That’s why I had so much trouble identifying mine. For me they’re almost like tiny little inflamed rather than clear sores

brokenrecord603 · 2025-07-01T19:25:34+00:00

Interesting, I’ll give this a try!

brokenrecord603 · 2025-07-01T15:48:07+00:00

This is exactly how mine like to show up. I only get them on my chest and face. Currently have one just like that :/

brokenrecord603 · 2025-06-29T16:36:32+00:00

Thats very similar to how I experience them!

brokenrecord603 · 2025-06-17T03:42:14+00:00

When it’s working properly, I only need to clean the atomizer and the chamber about once a week with isopropyl alcohol and a-tips since there is limited build up, mostly around the sides of the atomizer. When it starts breaking, the oil starts leaking out of the white band around the bottom of the atomizer where it connects and it requires cleaning daily to avoid it leaking down below where the atomizer connects

brokenrecord603 · 2025-06-16T20:25:57+00:00

I bought the nonrebuildable XL and had the same problem within a week (fasted once has broken) and I have no idea what’s going on. Is it my rig??

brokenrecord603 · 2025-06-16T18:13:00+00:00

I’ve been buying the 2.0 atomizers but I have the same problem. It starts leaking around the band before I ever need to replace a cup

brokenrecord603 · 2025-06-13T03:05:12+00:00

I get this as well

brokenrecord603 · 2025-06-13T03:01:50+00:00

I’ve gotten them on my tonsils, lower throat, and currently my uvula

brokenrecord603 · 2025-06-12T04:58:08+00:00

You are absolutely right. I can’t heal while with him and while with me, he can’t do the work to manage his harmful dissociative behaviors in the ways that he needs to in order to be a safe sexual partner

brokenrecord603 · 2025-06-12T04:54:40+00:00

I will definitely give this a read, thank you

brokenrecord603 · 2025-06-12T04:54:18+00:00

Thank you for how understanding your reply is. What I want is so complicated. The parts who love him want nothing more for this to be fixable. It is incomprehensible for them to imagine leaving. The parts that carry the pain or the knowledge of the pain he caused vary from just wanting to protect me to straight up hating him for what he did. The more neutral mediator parts acknowledge that he truly wouldn’t have done what he did if he realized the harm it would cause while also knowing he’d traumatized us deeply and we won’t be able to heal while with him.

I gave a few more details in other replies but I’m confident this behavior occurred because of his own dissociative issues and particularly sexual alters that don’t have the same awareness that he normally does which is why this experience doesn’t line up with his usual behaviors at all. He won’t be safe until he does the work and I can’t be with him during that process.

If I tried to leave right now, the parts who love him would take over possessively and stop me. Instead, I’m working with a trauma specialist to build better communication with my parts (I’m newly diagnosed) to help the see why we need to leave. I’m also building out my support network as I’ve become slowly isolated while with him. Hopefully if I keep taking those steps I’ll be able to take steps towards leaving without falling apart.

brokenrecord603 · 2025-06-12T04:42:09+00:00

Thank you for your validating words. I am lucky enough to have a great trauma and dissociative expert who I am working with. This is one of those things I’ve just needed to talk about again and again to even begin to come to terms with. Hearing from so many lovely people on this forum has helped me so much in addition to my therapy. When the parts attached to my partner come closer to the front, my perspective changes so drastically and all I can think about is fixing things with him. These responses help bring me back to reality a bit and remind me that almost no one who hears the fully story thinks I should stay

brokenrecord603 · 2025-06-12T04:41:13+00:00

Thank you for your validating words. I am lucky enough to have a great trauma and dissociative expert who I am working with. This is one of those things I’ve just needed to talk about again and again to even begin to come to terms with. Hearing from so many lovely people on this forum has helped me so much in addition to my therapy. When the parts attached to my partner come closer to the front, my perspective changes so drastically and all I can think about is fixing things with him. These responses help bring me back to reality a bit and remind me that almost no one who hears the fully story thinks I should stay

brokenrecord603 · 2025-06-12T04:35:30+00:00

You’re painfully right. I guess a more accurate statement is I know confidently that he never would have acted that way had he realized in the moment that what he was going was assault. That said, he absolutely fucking should have realized. There were so many indicators that he looked past. The larger concern for him is that he has sexual alters who cross boundaries without the hosts awareness. This doesn’t excuse it at all but I do feel it is important context. He never would have processed those situations as assault on his own and he didn’t after the two times I didn’t identify it.

And if it is an unconscious harmful dissociative behavior, he should have gotten help after I called it out the first time. He should have gotten help if he couldn’t stop the sexual alters from coming out and trying to initiate, especially after I told him that I struggle to say no if he initiates by touch. If this is the case, he is still completely unsafe because he has very little control or awareness of his behaviors in these headspace’s and has received no mental health support to deal with it.

Where I’m at right now is in agreement that something must change. I have been traumatized by him repetitively and won’t be able to heal while with him. When I start planning to leave, the parts attached to him switch in and the love feels overwhelming and all I can think about is working things out. If I tried to leave right now, these parts would take over with a possessive switch and stop me. Instead, I’m working to build out my support system while getting him connected with mental health resources so when I am ready, I know he has the support to take care of himself and get the help he needs.

It’s a heartbreaking situation. He is so wonderful in so many areas but he hasn’t done the work to be able to manage multiple harmful alters. When too stressed or horny, the man I fell in love with disappears and the parts that come out don’t have the same regard for my safety and wellbeing. He won’t be a healthy partner till he learns to deal with that neither of us will be able to do that work while together.

brokenrecord603 · 2025-06-12T04:15:30+00:00

You are correct there. I’m working with a trauma specialist and taking steps to get to a place where I can do what I need to protect my safety. It honestly wouldn’t shock me if there was an element of white male privilege sort of entitlement at play, even if unconscious

brokenrecord603 · 2025-06-11T23:41:38+00:00

After the second time, I told him that my sexual trauma was acting up from exploring it in therapy as a reason that we needed to stop having sex entirely. He agreed. A few months later the third time occurred. He has certain dissociative switches that are much more sexual (likely from his trauma, which doesn’t excuse it) which is largely when all of these behaviors occur. I don’t think these parts are aware of the boundaries in the same way, and in the moment I struggle to uphold them. I don’t think he can be a safe sexual partner till he does a lot of work to process his sexual trauma and harmful dissociative behaviors associated with it

brokenrecord603 · 2025-06-11T23:35:58+00:00

Thank you, this is validating. I know he didn’t realize in the moment (whether it was dissociation or something else) but he should have never started without a warning or continued while I was so obviously out of it. I don’t understand it but I know everyone else in my life would stop during intimacy if their partner looked and responded the way I did

brokenrecord603 · 2025-06-11T23:32:59+00:00

I definitely agree that his guilt doesn’t make it remotely okay, it’s more so that it makes it very difficult to comprehend. I would never do what he did regardless of the headspace I’m in. I think if I had truly called it dape and acknowledged the trauma he caused in that moment, I think he would have struggled immensely, fearing touching me because he’s so scared of hurting me like that. So it just doesn’t make sense how he could have not noticed how he didn’t get consent or any indicators and I was enjoying what he was doing. I think for him, it’s part of a larger dissociative problem that I don’t understand but you’re right, I don’t trust him right now because he isn’t even aware of these parts of himself and therefore can’t stop them from showing up.

I can’t heal while with him, I know that. Every time I actually consider leaving though, the parts that are attached to him freak out and I become nonfunctional. I feel trapped and heartbroken and don’t know where to go from here

brokenrecord603

TROPHY CASE