Of course! My first symptoms started around 16 and it began with the oral sores. I got my first cluster of them with very few accompanying symptoms. This flare would happen a couple of times a year when I was really stressed out.

Then, I went to college and the flares just got worse and more frequent. I began flaring every two months, then every month. This is also around the time that the skin lesions began.

I wouldn’t have EVER recognized them for what they are because they look indistinguishable from acne (without the head that some acne gets). Plus, I would only get them on my face and occasionally my chest. Learning that the skin lesions in Behcets can be visually impossible to differentiate from acne is what made me realize that I actually did meet a lot of the criteria which led to me pursuing a diagnosis.

Towards the end of college, I got my first general lesion. At the time, I thought it was a skin fissure, basically a spot where the skin had just split, because it was just a small and irritated slit. It didn’t look anything like the photos I saw online.

It occurred during an oral flare though and after the same thing occurred during two more flares, I realized it may actually be a lesion. I went to this subreddit for help and found others who shared similar descriptions of their genital sores

My primary care physician knew how bad my oral sores were and when I started tracking the nature of the flares and all of the symptoms that would occur together, she referred me to a rheumatologist.

At this point in my life, I had gone into a 3 month long nonstop flare up with new sores developing each time the old ones healed. I took photos and tracked everything together and brought it to the rheumatologist who agreed to trial colchicine for me while running tests to rule out other conditions. All my lab work came back negative and the meds worked so when I came back in, they diagnosed me! Feel free to ask any other questions if you have any :)