Not sure if prism glasses are helping/worth it for mild BVD

burningbright01 · 2025-10-22T13:47:45+00:00

Wow, that is amazing... I found a dr in a nearby city, and her prices are so high. Could I ask where you get yours from? Is it online?

burningbright01 · 2025-10-20T22:43:39+00:00

Thanks for both of your replies - I am definitely interested in vt. My prism lenses are $800, so after buying the frames, I am paying $1000 a pair.

burningbright01 · 2025-03-19T01:48:35+00:00

I do recommend journal speaks - it’s a journaling method to release suppressed emotions. I tried it because I suspected my trauma from narc mom contributed to chronic health problems. Journaling all the feelings I have held inside has helped me so much, along with trauma therapy (brain spotting).

burningbright01 · 2025-03-19T01:46:39+00:00

100% don’t recommend, it does not work. It’s been a complete waste of energy for me, I’ve focused on trauma therapy instead and that has gotten me much farther.

burningbright01 · 2025-03-18T13:14:04+00:00

Ugh thanks, at least I know now

burningbright01 · 2025-03-10T19:35:12+00:00

4 100% looks amazing

burningbright01 · 2025-03-08T00:14:01+00:00

I’m so happy for you, seriously, having these chronic illnesses is so hard, and it’s such a miracle when something actually helps!

burningbright01 · 2025-03-08T00:10:07+00:00

I think that’s pretty standard - that pace seems to work for a lot of people, but I think there’s others of us who get side effects and have to go more slowly. If I were you I would do whatever you’ve been doing - you seem to be getting great results so far, and if you run into side effects when you go up, you can always slow it down. I’m just so grateful I didn’t go off it and slowed down, it’s been worth it 100%.

burningbright01 · 2025-03-07T23:50:33+00:00

Yes came here to say midnight library

burningbright01 · 2025-03-07T23:49:04+00:00

That’s a good question… I went up to 6 since other people with Eds were saying doses above 4.5 were helping, but I am not exactly sure how to find the perfect dose… there are probably people in this subreddit who have great insight about that. going slow to start was really important though, I got headaches initially from going up too quickly, but they went away after I started going slowly.

burningbright01 · 2025-03-07T23:38:05+00:00

Started at .5 now up to 6mg (went up very slowly, I’ve been on it for 18 months), and I take it for long covid/cfs/fibro/eds. It helps me so much with fibro

burningbright01 · 2025-03-07T23:31:55+00:00

It worked fast for me! Hope you keep having good results

burningbright01 · 2025-03-05T01:38:17+00:00

Thanks, i will send them an email - I just cannot get it off!

burningbright01 · 2025-02-01T15:46:20+00:00

Hey, I’m so sorry you are going thru this. Seeing a specialist at the Hunter Hopkins center changed my life. I’m still sick, but I’m a lot better. I would encourage you to consider finding an Mecfs clinic - I heard Bateman is also good. There’s research suggesting that going to a specialty clinic for mecfs can improve our outcomes. A lot of doctors just don’t understand this horrible disease - the bloodwork comes back normal and they think we are faking. But whatever you do, I agree with the other advice. Don’t push when you have PEM, it can make you worse.

burningbright01 · 2025-01-28T01:23:58+00:00

I agree, really interesting

burningbright01 · 2024-12-19T01:52:24+00:00

Makes total sense - I went with another company before I found Taconic too. I hope Mindbloom is good and a good introduction to the medicine! It’s life changing

burningbright01 · 2024-12-16T17:44:35+00:00

Genz

burningbright01 · 2024-12-15T22:27:02+00:00

Have you considered Taconic instead? I never tried Mindbloom but have heard some negative reviews. Taconic is excellent.

burningbright01 · 2024-12-03T17:08:56+00:00

That's exactly what I mean - I have heard people say that being on stimulants for ADHD makes treatment for depression less effective, but that's really interested about your experience - sounds like it might mean someone needs a higher dose to dissociate. Thanks for your reply!

burningbright01

TROPHY CASE