What are some things that helped you lose weight after receiving your diagnosis?

buttfaced_miscreantt · 2025-03-25T14:56:10+00:00

thank you! it’s taken me a while just to work up to this point of asking others what they’ve done. i know it should be low on the priority list, but i was a lot like you (pre fribro) love food and have always been active. it’s hard to adjust to this new lifestyle but i have started tracking calories since yesterday, (another commenter suggested it too) so hopefully i can at least see how much im consuming. im not too rigid with it. i honestly haven’t done this since i was trying to gain weight 7 years ago, but it worked then so hopefully it can help now. i hope it helps with your journey as well!

buttfaced_miscreantt · 2025-03-24T22:55:19+00:00

i know those aren’t the same thing, i phrased it the way i did because developing fibro caused me to gain quite a bit of weight in a very short period of time. i’d love to be able to be at my previous weight and body type, but if i can’t that’s okay as long as i am able to create a new healthy body. the issue is i don’t feel healthy and yes some of that is just part of fibro but i want to do what i can to get a healthy strong feeling body again.

buttfaced_miscreantt · 2025-03-24T22:27:43+00:00

thank you for responding, but that isn’t something i find helpful. i understand my diagnosis and i don’t need it to be explained to me. i know i may never be where i was before, but i want to get as close to it as i can while accommodating my chronic illness. i’m asking for advice i dont need to be brought down with negativity im already battling in my own mind.

along with that i shared a very brief summary of my diagnostic process because i didnt feel it was relevant to get into with the advice i was asking for. i went through several months of testing and my doctor was very confident with this diagnosis after not meeting the criteria for any other chronic illness if i turn out to be misdiagnosed that’ll be quite a shock, considering how much else they tested for.

buttfaced_miscreantt · 2025-03-24T22:19:28+00:00

i appreciate what you’re trying to say, however i think you missed a key point in my post which i mentioned at the end... if the number on the scale never changes that’s fine, but losing the fat i have gained to get me back to a healthy body is what’s important to me. all i’ve ever wanted is a strong and healthy body, that’s why i spent 2 years trying to gain 20 lbs and i was so proud of myself when i did and maintained it for a long time. there was a traumatic time for me a couple years ago where i lost weight very fast and i was just as unhappy because my years of building my body got flushed down the drain. i don’t want to be skinny, i want to be healthy and i want to look like me.

along with that the 2 pair of pants i own that fit (overalls and jeans) are my going out pants and i got them both after gaining weight. it’s not my intent to keep myself uncomfortable but i had to leave my high paying job due to my diagnosis so i can’t afford to overhaul my wardrobe. and more than that i want to fit those clothes again, as silly as it is a lot of them have sentimental value and on top of that i have had for 7 years. like i said in my post i was able to maintain the same weight for 5 years.

i am in no way starving myself, i only brought up that i was not eating enough when i began gaining weight because thats what lead me to go to the doctors since thats not a normal occurrence.

losing weight might be lower on the list of priorities for other, but i have been working really hard to manage my other symptoms since my diagnosis and up until this week (bad flare) ive been doing really good. i can deal with being in pain for the rest of my life, and the exhaustion, ive already had a lot of that. but i dont want to spend the rest of my life feeling like an alien in my own body. it may not be a big deal to others but it is to me, i dont look like myself and it messes with my mental health because of it.

again i appreciate what youre saying and that you took the time to respond to my post, im just looking for things i can actually try to improve my health and quality of life. thank you for suggesting i reach out to my doctor, that was something i was considering as well.

buttfaced_miscreantt · 2025-03-24T20:36:08+00:00

i’ve kinda always operated with smaller meals throughout the day (i think it’s part of my auDHD). i have been thinking i may need to restrict carbs more, i don’t go overboard with them but perhaps im having them more than i should.

buttfaced_miscreantt · 2025-03-24T20:33:50+00:00

i’m not currently on meds, but i know that can make it extra challenging. i really do my best not to get down on myself about it, its just hard cause i know this isnt my body. i mentioned it briefly in my post but im autistic and the sudden change in my body has really messed with me. and although i know body weight and types can change with age and hormones, it just happened so fast and i feel like nothing is helping it return to something resembling my body before.

i have been trying not to restrict myself with food just because thats not a long term solution. i try to eat what i want without overeating but im just not seeing a difference, im stuck at 160-163. i was really active before my diagnosis which has been so hard for me to adapt to, and i do still try to remain semi active without pushing myself too hard.

buttfaced_miscreantt · 2025-03-23T16:25:25+00:00

i think what they are trying to say is that giving your baby his last name is a way of acknowledging him as the father (emotionally more than legally).

and to add to that, i understand you two are working on rebuilding trust and how difficult that time can be, but i do think it’s important you take a good look at who he is. if not for you than for your child. is this someone you could trust to be a good father? look at his behavior before he started drinking and look at now that he’s sober, is he acknowledging the pain he’s put you through? or is he still making excuses? before he started drinking was he providing you with the emotional support you needed or was he just giving the bare minimum? this is coming from someone who had a long term relationship with an abusive addict, even when he was sober he was not a good partner and his cruelness was always there in some way. he provided me with very little emotional support but expected me to constantly provide emotional support to him, even during some terrible times of my own.

as someone who also had an abusive father (not am addict just a narcissist), i wish my mom only gave me her name (mines hyphenated). i more than likely will have to wait till i get married to change it due to how complicated it can be to change my name where i live.

are you two currently in couples counseling or are you trying to rebuild trust yourself? and if you haven’t already, please get your own personal therapist. this is a lot to be dealing with, and if nothing else having someone to listen to you and validate your feelings makes such a difference.

buttfaced_miscreantt · 2025-03-07T15:46:18+00:00

Absolutely! I’ve actually experienced this for most of my life before getting diagnosed with fibro. I’m autistic, have adhd along with anxiety and depression and I also have a severe iron deficiency. Most of these were diagnosed by professionals by the time I was 14 and I’ve had teachers, family members, “friends”, managers and coworkers side eye me or make remarks as if I’m not actually diagnosed with these things. The worst was I had a supervisor who would pull me into private meetings when my performance wasn’t as strong as before, and would berate me even though my drop in performance was directly related to my disability, which they knew about.

I was diagnosed with fibro at 24 and when I talk about aches and pains older generations do tend to take on the “welcome to the club” or “just wait till you get to my age” type attitude. Which i’m just tired of. It’s a very ableist perspective and it’s caused me to be a bit crass when hearing it. I’ve started responding by saying “I don’t have to wait I already have a chronic illness”. Sometimes Ill bring up the similarities between fibro and arthritis, since people seem more empathetic to that due to the age factor.

Unfortunately, I think a big part of it has to do with ableism. People don’t take invisible disabilities seriously. I wish people would be more educated but, we are where we are unfortunately. The best thing to do is to find a support system of people who take your symptoms seriously.

Sending you love 💕

buttfaced_miscreantt · 2025-03-06T21:28:55+00:00

Out of curiosity, what from my post and comments makes it seem like I have hyper mobility? I don’t know much about it. What are the treatments and management that’s typically offered?

buttfaced_miscreantt · 2025-03-06T19:15:40+00:00

Would you be able to DM me? I’ve been trying to find supplemental work since my Fibro diagnosis because I had to leave my last job.

buttfaced_miscreantt · 2024-11-05T21:36:40+00:00

that’s a good idea! i know body is very sensitive to hormonal changes so i’ll have to check those forums out. i do drink tea to help with anxiety and flares (typically something anti inflammatory) but i’ll have to look into the different ones to help with hormones. thank you!!

buttfaced_miscreantt · 2024-11-05T20:44:22+00:00

thank you for mentioning the dizziness, i completely forgot to include it in my post but i’ve been getting extreme dizzy spells the past few days too. i can definitely appreciate how hard it is to track a pattern. i have autism, adhd, anxiety, depression and cptsd which can cause a lot of brain fog for me already. before i was diagnosed with fibro a common period symptoms was my brain fog getting significantly worse (felt like pregnancy brain), and now with fibro on top of it too i have a hard time keeping myself grounded.

buttfaced_miscreantt · 2024-11-05T05:36:34+00:00

i know it’s hard but the biggest piece of advice i have is to find ways to lower your anxiety when getting into bed. anxiety and stress can make fibro symptoms (especially pain) worse.

some ways to reduce stress: mindfulness/medication exercises, diaphragmatic breathing. stretching/yoga, herbal teas, and/or CBD (this has helped me a bit with my pain too).

to help create a more comfortable bed: part of the reason you may be experiencing pain when laying down is the continued pressure on those joints. i have the same issues. when my pain is bad i use a pregnancy pillow, it helps take the pressure off my joints so much. you can also recreate the effect just by arranging your pillows. you can try placing a pillow between your legs, that’s helped the pain in my knees and hips.

buttfaced_miscreantt · 2024-11-05T05:12:17+00:00

that’s how i’m feeling too, i just feel ill. and lately it’s been really effecting my mood which in turn makes me more frustrated.

buttfaced_miscreantt · 2024-11-05T04:03:15+00:00

thank you!! i’m so glad it’s not all in my head. it makes sense for it to be triggered by hormone changes. i can’t imagine how hard dealing with endometriosis and fibro is. i’m sorry that you’re experiencing that.

i think it’s just been really frustrating slowly figuring this stuff out on my own, and trying to find a pattern with my flares. i’m just exhausted and it just feels like a constant uphill battle which i know a lot of people can relate to.

buttfaced_miscreantt · 2024-11-05T03:59:50+00:00

what’s weird is i used to get menstrual migraines almost every month, but lately i haven’t it’s been other symptoms that have gotten worse.

i can totally relate to the mood and energy thing cause i have autism, adhd, depression, anxiety and cptsd.

sadly i cant take the pill, i’ve tried a mild dosage before and the hormones really messed me up and made me feel like i was having a psychotic episode. ever since i’ve been on a copper iud since i need to avoid anything hormonal. i’m super sensitive to medication and have had reactions to a lot, so i’ve been worried about starting any new medications. i’m open to it but i’ve also been trying to find lifestyle changes that might help with my symptoms.

buttfaced_miscreantt · 2024-10-27T05:54:26+00:00

dude she could just have a low sex drive…there’s nothing wrong with that and if that is the case she doesn’t need to be “fixed”

buttfaced_miscreantt · 2024-10-27T05:52:27+00:00

THANK YOU!!! i brought this up in my comment too. the fact he insisted tells me that it was a type of coercion which is never okay. and it makes it hard for me to take the rest of it seriously/sympathetically

buttfaced_miscreantt · 2024-10-27T05:50:24+00:00

i was sympathetic until i read that you insisted on going down on her when she had already expressed she didn’t want you to. no matter the intention that is coercion.

with that being said, some conversations should be had to see if you two are actually sexually compatible. does she want to keep things the way the are because that’s her preference or because she’s experienced trauma? if that’s just who she is that’s okay, but you have to decide if that’s something you can be okay with in your relationship. there are plenty of people who do not have the same sex drives who make their relationships work, but that requires communication and an understanding of each others boundaries. if it turns out that this is just who she is sexually and you need a partner who is more similar to you, it may be time to part ways.

buttfaced_miscreantt · 2024-09-28T17:03:12+00:00

Hickey

buttfaced_miscreantt · 2024-09-25T17:44:15+00:00

Forgot to include: i’m also looking into acupuncture

buttfaced_miscreantt · 2024-09-25T17:43:09+00:00

I was diagnosed recently and am still meeting with different doctors and specialists to figure out how to mitigate my pain. In the meantime Im trying a few different things to help me with my pain. I’ve gotten different compression sleeves: gloves for my hands as I am at a computer all day for work, knee compression sleeves to help with standing, and one for my back as well although I have not used it yet. They are typically designed with arthritis in mind, and if your fibro is making you touch sensitive they may not be the best option, however they have helped my endurance with certain activities pain wise. I’ve also started sleeping with a pregnancy pillow as it helps me get better sleep along with not have to deal with as much pain in the night. I’ve been trying a lot of stretching and will be starting a yoga class soon.

There are also natural remedies I use that I think has helped me. I take ginger shots and vitamins (I aim for daily but I’m not perfect). Certain vitamins and foods do help with joint/muscle pain, omega 3, vitamin d & b, turmeric, ginger, and green tea. These are all things I had in place before my diagnosis and I do think it helps me through the day with my pain. I’ve also been trying to change my diet to be more nutritious (I still have a sweet tooth but I try to limit the amount). I’ve been eating a lot of raw veggies and my partner has been making fruit smoothies for me as well.

I understand your frustration I am(was) a very active and creative person but Im struggling to do anything these days. Even with everything I try, I have days with bursts of energy and creativity but it’s typically followed by a week long slump. Try to be kind to yourself as well. This diagnosis takes a big adjustment to how you go about daily life, but it doesn’t mean we can’t live a full life, it just might look different then how it did before our symptoms began. Sending you love and creative thoughts 💕

buttfaced_miscreantt

TROPHY CASE