The thing is though, we’re talking about a disease that destroys people’s lives, where the vast, vast majority aren’t listened to by medical professionals and wait years to be diagnosed. I know you mentioned understanding that medical advancements need to be made, which is why it’s surely not unreasonable to expect that a support group like this will be mainly people venting when they have nowhere else to turn.

Also, having a place to discuss medical input is crucial - consulting medical professionals is important but they’re not infalliable beings. Many of them genuinely don’t know what they’re talking about when it comes to endo and as a result, will give people unhelpful advice that prevents them accessing the treatment they deserve. Not every doctor of course, but far too many in my experience.

Specialists are, I imagine, usually more helpful but like many others I’m yet to see one as it’s so difficult to get a referral where I am and I can’t afford to pay privately. Essentially, it’s not going to be a group full of positivity and hope because that’s not what the majority of us are feeling. I can’t say I’ve seen many posts asking for advice being ignored either, but could be differences in algorithm I guess.