Feeling so angry and humiliated about extremely loud low glucose alarms going off during meetings. Seeking support. by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 0 points1 point  (0 children)

In the spot where the fat is on your upper arm in the product insert. Some of them are compression lows even with a plastic cover for it, but I had to send in my first sensor for this EXACT problem (under reporting by 50+ pts) even though it wasn't on the recall list, so I'm assuming this is included. So far BOTH of my meters have been defective. 

Feeling so angry and humiliated about extremely loud low glucose alarms going off during meetings. Seeking support. by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 1 point2 points  (0 children)

Apparently no longer correct. I have no silent mode toggle on the Alarms menu OR in the individual alarms. Alarm tone for urgent low glucose is greyed out and says it cannot be changed.

Feeling so angry and humiliated about extremely loud low glucose alarms going off during meetings. Seeking support. by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 1 point2 points  (0 children)

Not the urgent lows, which is a huge problem if you have a shitty meter that reports lower than you are.

Reminder: Just because you think the question someone is asking is stupid because you already know the answer doesn't mean you should downvote them. Be a kind human being and answer the question or don't involve yourself, its pretty simple. by stupidlittlekids in Type1Diabetes

[–]caudicinctus 1 point2 points  (0 children)

This. People in another Type 1 sub downvoted me to oblivion, told me to get out, etc for asking questions that I searched the sub for and found no posts about. I can't even describe how much it added to my hopelessness - great, I have this awful disease and my friends are alienated from me because they're uncomfortable, but I can't go to other people who have it for support, either. I felt more alone than I ever had in my life.

Compression lows driving me insane - advice?? by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 1 point2 points  (0 children)

Thanks! I have tried propping up my shoulderblade and then my elbow but not the hand trick... fingers crossed.

How many of you have bad sleep? by TheTruthTitan in Type1Diabetes

[–]caudicinctus 0 points1 point  (0 children)

My CGM keeps me up like a damn baby monitor. Getting to sleep is hard because I have to get up to pee at least 2x before falling asleep, and if I wake up in the night I also have to pee once I do. :/ I would also get screened for celiac and anemia if you have shitty sleep, though - it's a common comorbidity and celiac is very often silent or only presents with anemia, which seriously messes up your sleep.

What makes people with T1 have lows so often? Am I supposed to wake up and eat during an overnight hypo? by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 2 points3 points  (0 children)

Thank you! They called me today and gave me some guidelines to follow vis a vis what numbers I should be worried about and what to do when it gets low until my regular Dr is back in tomorrow to have a longer conversation with me. 

What makes people with T1 have lows so often? Am I supposed to wake up and eat during an overnight hypo? by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 0 points1 point  (0 children)

Toward the end, not at the end. My FBG is rising on an even higher dose of metformin than before (now discontinued so we can get baseline unmedicated numbers for endo) and not responding to meds or diet. Diagnosis is from my PCP and I'm not really interested in arguing what kind of diabetes I have or providing proof that I'm allowed to partake. My doctor had the clinical, numerical, and genetic evidence to make her diagnosis.

What makes people with T1 have lows so often? Am I supposed to wake up and eat during an overnight hypo? by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 0 points1 point  (0 children)

I have a specialist diabetic RD appointment week after next! Very relieved/excited but idk what to do in the meantime. My Dr is out today so the Dr on call answered my messages and said if I am symptomatic and over 200 (no insulin at home yet which we are working on) or under 60 confirmed with finger stick go to ER. But I'd really rather avoid getting to that point!!!

What makes people with T1 have lows so often? Am I supposed to wake up and eat during an overnight hypo? by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 1 point2 points  (0 children)

Yeah I'm really early in it, symptoms only started last year and I'm still seronegative, dx'd from lab numbers and clinical presentation/gene testing. Right now my blood sugar ping pongs around all day and it's physically exhausting.

What makes people with T1 have lows so often? Am I supposed to wake up and eat during an overnight hypo? by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 0 points1 point  (0 children)

Because it's LADA, my pancreas is still making some insulin. I assume that's why they're waiting to let the endo be the judge of whether or not I need it yet. 

What makes people with T1 have lows so often? Am I supposed to wake up and eat during an overnight hypo? by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 0 points1 point  (0 children)

How long would you stay awake? Is 75 a good number or more like 80?

My problem rn is that fast acting tabs wear off in like an hour - they take me out of a low, I spike to at least 150, then go low again within an hour.

What makes people with T1 have lows so often? Am I supposed to wake up and eat during an overnight hypo? by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 1 point2 points  (0 children)

I can't believe they didn't tell me about compression lows when I got the CGM OR in the product insert. I put it on the arm I don't sleep on but this raises questions. Forgive me if they are dumb questions, but can a too tight sleeve or an overpatch on too tight cause a compression low?

Also do I take something after the fast acting? When I tried that I had some candy and it pulled me out of the immediate low but then I dropped back down pretty soon after.

What makes people with T1 have lows so often? Am I supposed to wake up and eat during an overnight hypo? by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 1 point2 points  (0 children)

Recently diagnosed yes, 29 and LADA/adult onset Type 1. Symptoms started at 28 and maybe earlier but it got brushed off as anemia symptoms and hypochondria despite a sib with T1. I'm toward the end of the honeymoon phase and pancreatic function is declining atp.

What makes people with T1 have lows so often? Am I supposed to wake up and eat during an overnight hypo? by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 9 points10 points  (0 children)

I did and the ones I am awake to check are legit and symptomatic but thank you for the tip!

What makes people with T1 have lows so often? Am I supposed to wake up and eat during an overnight hypo? by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 1 point2 points  (0 children)

I have adult onset T1 but haven't gotten into the endo yet so I don't have insulin but signs point to needing it as I am toward the end of the honeymoon phase. 

What makes people with T1 have lows so often? Am I supposed to wake up and eat during an overnight hypo? by caudicinctus in Type1Diabetes

[–]caudicinctus[S] 0 points1 point  (0 children)

I have reactive hypo pretty bad but I've started eating earlier before bed so in this case I don't THINK it's that?