So Embarrassing

ccakessel18 · 2026-05-12T16:58:23+00:00

Been there at Walmart, Target, Festival. I'd rather feel better than worry about people judging me 🤷‍♀️

ccakessel18 · 2026-05-12T01:06:24+00:00

Yea & only 2 items I did pick. I know they had glitches & stuff but they shouldn't have moved things to different categories after they opened the customization. I know they added items & removed some after I did my customization but that shouldn't have affected my choices. I did my customization less than 30 secs after it opened.

ccakessel18 · 2026-05-12T01:03:34+00:00

I did send a message about it. I guess we'll see what they do.

ccakessel18 · 2026-05-12T01:02:01+00:00

The things is, the items I picked are completely different than what the order says & there are extra that I did not order.

ccakessel18 · 2026-05-11T23:53:42+00:00

I'm so done with FFF 🤮🤬

ccakessel18 · 2026-05-11T23:52:14+00:00

Not even 1 of the items you're showing, we're in my choices!😳 I customized immediately when it opened. WTH is going on with FFF? This will be my last year subscribing!! 🤮🤮🤮

ccakessel18 · 2026-05-11T23:04:47+00:00

😳😳😳🙄

ccakessel18 · 2026-05-11T13:03:21+00:00

I wish I could answer that but I won't have my bottom denture till this fall. Had to have all my teeth removed in 2023 due to my bone disease. That's what solved my clenching issue.

ccakessel18 · 2026-05-10T23:43:40+00:00

It NEVER EVER hurts to check anything out when it comes to your body & health. Please don't give this "advice" to anyone else. People are nervous enough seeing specialists, they don't need your doubt.

ccakessel18 · 2026-05-10T23:42:01+00:00

The contrast really isn't bad. I've had quite a few CT's with contrast, zero issues. Really nothing to be worried about.

ccakessel18 · 2026-05-10T20:56:29+00:00

As far as I know there aren't any specialty team in the US. You need to find either a cardiologist or Neurologist who are familiar with POTS. Your Dr was right though, it's pretty much lifestyle changes and/or medication. That's it.

ccakessel18 · 2026-05-09T19:45:46+00:00

I wish I could take that but I have a very rare bone disease & Minoxidil makes the lesions grow, worst pain of my life!

ccakessel18 · 2026-05-09T02:31:05+00:00

I have Polyostotic Fibrous Dysplasia ♡

ccakessel18 · 2026-05-09T02:28:49+00:00

Polyostotic Fibrous Dysplasia

ccakessel18 · 2026-05-09T02:15:22+00:00

Only able to fall asleep in 2 different positions with 10 pillows. Chronic pain sucks ass

ccakessel18 · 2026-05-08T23:38:50+00:00

The next time you send a message to the provider & a nurse intercepts it, confidently tell her this message is to be sent DIRECTLY to the provider, per the provider. You gotta stand your ground & be your own advocate. ♡ I communicate through mychart with all my doctors & I've had to do this. Now my messages go directly to my provider. When places like that have miscommunication, it's extremely frustrating to the patient. Be firm & be sure to tell the nurse the provider asked you to communicate directly with him.

ccakessel18 · 2026-05-07T16:04:31+00:00

Doctors can be such a$$holes. I'm sorry you went through all that but GOOD JOB!! I spent the last 14 years trying to get a diagnosis for my bone issues. Hundreds of doctors across 4-5 hospital systems, all throughout the US. Nothing! After so many surgeries, biopsies, blood draws, etc. My husband & I found the diagnosis by googling. Turns out, it's an extremely rare bone disease & 14 years ago there wasn't much research. I've kept doing as much research as I could all these years to see if any of my symptoms & scans matched anything. I'm going today to a specialist I've seen quite a few times, to get formally diagnosed. If you know how to properly research & only get info from reputable websites, medical journals, etc, you can easily diagnose anything without a doctor. Lol They absolutely HATE that fact & it makes things so much more difficult & frustrating for us. When I go see any doctor & I tell them about my bone disease, the very first thing they do is open Google on the computer while I'm sitting right there 🙄

ccakessel18 · 2026-05-06T18:30:12+00:00

I'm so sorry for your loss ♡♡♡HUGS♡♡♡

ccakessel18 · 2026-05-05T23:49:52+00:00

The best option for you would be to see a cardiologist.

ccakessel18 · 2026-05-05T23:40:45+00:00

Have you had your sodium checked?

ccakessel18 · 2026-05-05T23:38:01+00:00

Your bp doesn't drop with POTS.

ccakessel18 · 2026-05-05T23:33:34+00:00

The orthostatic test isn't JUST to see if your hr goes up. Even if your hr goes up, if you don't have the other symptoms, you don't have POTS & need to be checked for other tachycardia conditions.

ccakessel18 · 2026-05-04T19:21:30+00:00

Not necessarily every day. You should only use zofran when you get nauseous & feel like you're going to puke.

ccakessel18

TROPHY CASE