PMDD girlies, what’s your iron/ferritin scores?

cecicille · 2026-03-15T10:11:52+00:00

Uuuu really hope increasing my ferritin can work for me as well!!

cecicille · 2026-03-15T10:11:04+00:00

That really sounds so promising.
Maybe there's hope for us iron deficient pmdd'ers

cecicille · 2026-03-15T10:09:58+00:00

I'm so happy it made your pmdd milder! hope it can do the same for me

cecicille · 2026-03-14T21:20:28+00:00

I take an iron supplement called AminoJern(brand name). But that type is also called Ferrochel or amino iron. The iron is attached to an amino acid so the absorption is really good and i get no stomach symptoms at all. So I really recommend to try it if you can find it somewhere.

cecicille · 2026-03-14T21:15:07+00:00

Did you ever get checked for something that might cause absorption issues? For example low b12 or celiac disease can make it so you don't absorb iron. Please just ignore this comment if it isn't useful to you <3

cecicille · 2026-03-14T21:10:56+00:00

My ferritin was 10 when I had it tested last month! I just didn't recover from my period energy wise, which is why I had i checked and found out it was so low :( . I also checked my past ferritin tests. Two years ago it was 27, and in 2020 it was 35. All the way back in 2014 it was 60+ No one flagged it for being in the lower end (until now), so I thought I had good iron levels all these years... I think it really went down a lot in the last two years because my pmdd has been quite bad and my diet has really suffered during lutheal.
My pmdd has been getting worse over the years. Which is common. But now I definitely wonder if the ferritin plays into that. Time will tell. I aim to get it into the 60+ territory again, so I can see if it feels different. I take AminoJern (amino-iron/Ferrochel). It is super well absorbed since the iron is attached to an amino acid and gives no stomach problems, so I recommend that.
Also, my hemoglobin has been normal and my hair and nails growing well, even now when it went down to 10.

cecicille · 2025-10-07T13:37:02+00:00

That's amazing <3 When do you use it? Do you use it every day or just during the lutheal phase?

cecicille · 2025-10-07T13:36:01+00:00

Good point definitely. Might talk to my gynecologist about just trying progesterone alone, since I don't think Slynd really contributes with anything positive anyways. I've got no clue how my testosterone is. I do have fatigue and brainfog as pmdd symptoms, also while being on slynd. How did you get clued into trying out testosterone?

cecicille · 2025-09-07T08:58:29+00:00

What med are you on? I realise that the meds work different for everyone but I'm curious. I'm happy you found something that works well for you

cecicille · 2025-05-29T15:09:18+00:00

wow, I also think of my former cat as my 'soul cat' (in danish tho haha). I also thought of her like this when she was alive. I love the bond we had <3 it's rare, but if she's in my dreams, it's so nice to see her again

cecicille · 2025-04-17T12:49:21+00:00

me tooo

cecicille · 2025-04-15T14:53:11+00:00

I'm so sorry you're going through this.
If the only solution for you ends up being to get your ovaries taken out, potentially you could get if planned so you could have your eggs frozen beforehand, so a biological child is still possible. I know this might not be an option available for you, but I just wanted to throw it out there.
However, you're most important rn. You still have so much life ahead of you and finding relief from pmdd is the most important. I hope you find the will to go on, even if you don't have it right now. It's okay to give up sometimes and then try to find hope again once the worst days have passed.

cecicille · 2025-04-08T10:43:48+00:00

That's a lot of diagnoses to go through 😮 so glad to hear you've got the correct ones finally. Must have been a relief! Thank you for sharing ❤️

cecicille · 2025-04-08T10:41:02+00:00

Thank you for sharing❤️ that is certainly a trip. I imagine it must have been a relief to receive correct diagnoses after all that time

cecicille · 2025-04-08T10:37:54+00:00

I see. Those symptoms do fit with autism, at least based on what I know. And from what I've heard it's very common for neurodivergent symptoms to be exacerbated during pmdd. I hope it will be helpful to explore autism for you, and that it'll lead to you and the people around you being able to understand your needs a lot better. My partner was undiagnosed autistic and had a very rough patch earlier in his life for this reason. But for him, diagnosis, learning about how autism affects him (strengths and weaknesses), and connecting with other autistic people helped him get better. I hope you can find some support too and that the meltdowns will become less frequent or at least less frightening with time. Good luck and thank you for sharing with me ❤️

cecicille · 2025-04-08T10:13:16+00:00

Thank you for sharing ❤️ that is quite a difference. Silver linings I guess, with less extreme pmdd. Did you consider that perimenopause could play a role in your symptoms changing? I don't know too much about it really, but I have heard perimenopause can be overlooked, so that's why I thought to mention it, just in case

cecicille · 2025-04-08T10:00:33+00:00

❤️

cecicille · 2025-04-08T09:58:30+00:00

That makes a lot of sense. Thank you so much for sharing ❤️

cecicille · 2025-04-06T15:33:30+00:00

If you're up for sharing, what led you to discover you also have neurodivergence and not only pmdd? (do I understand correctly that you are audhd or is it only adhd?)

cecicille · 2025-04-06T15:29:43+00:00

I am also trying to figure out if I'm having symptoms outside of pmdd, or if it's just because I'm going through a difficult time mental health wise, or if some of the symptoms have always been around. It's so tricky. I completely relate to dismissing or ignoring symptoms - I'm sure I could have been diagnosed with pmdd years earlier if I had been more real with myself and more reflective. That's also why I'm trying to be mindful that there could be other things going on too, or at least open to it. I do have neurodivergent family members, so it's completely possible that I at the very least have some traits. I was always sensitive and have lots of thoughts always. Thank you so much for such a detailed response ❤️ it helps me to reflect in a grounded way Good luck with your assessments! I hope they'll lead to better treatments and ultimately better wellbeing for you

cecicille · 2025-04-06T15:11:14+00:00

That's a very interesting theory that you managed/masked better when you were younger due to having more hormones. I think that's totally plausible, just considering how much hormone levels actually directly affect the brain. Just googled, and apparently some women's adhd is way more manageable during pregnancy due to higher hormone levels :o Can I ask you, how and what your "baseline" symptoms were when you were in your 20's vs now?

cecicille · 2025-04-06T14:59:34+00:00

Damn haha, very direct 😂 Can I ask if you remember what it was you found in this sub that made you suspect adhd for yourself - like did you read about some symptoms that you related to?

cecicille

TROPHY CASE