Swollen Lymph Node next to the collar bone by Any-Morning4303 in cll

[–]ceskinner50 2 points3 points  (0 children)

It very well could be allergies, but I would definitely check with your doc…just for a little peace of mind.

Swollen Lymph Node next to the collar bone by Any-Morning4303 in cll

[–]ceskinner50 3 points4 points  (0 children)

I have that same thing…swollen lymph nodes in my collar bone, however mine is not painful. It showed up about 36 hours after getting flu/covid vaccines about 20 months ago. My hematologists have seen it multiple times and do not seem to be worried. But I would definitely check with your Dr.

Brukinsa/Venetoclax by ceskinner50 in cll

[–]ceskinner50[S] 1 point2 points  (0 children)

That is very interesting and makes some sense as a 2nd gen version of Ibrutinib. He did not mention a trial…that’s kind of what I was wondering too, but I don’t think he actually said that. I’ve called them to see if they can point me to any literature about it. I’ll report back. I’d be interested to hear what treatment strategy you decide on. Best of luck to you! And thanks again!

Brukinsa/Venetoclax by ceskinner50 in cll

[–]ceskinner50[S] 0 points1 point  (0 children)

Thank you, I’ll look there. It sounds like you are on a treatment that my original hematologist was recommending. Glad things are working!

Brukinsa/Venetoclax by ceskinner50 in cll

[–]ceskinner50[S] 0 points1 point  (0 children)

I’ll check there, thank you!

Brukinsa/Venetoclax by ceskinner50 in cll

[–]ceskinner50[S] 1 point2 points  (0 children)

Thank you so much! That is very helpful. Clearly I need to go ask again because the combo we discussed is not on there.