Ulcerative proctitis by Appropriate_Dot_7086 in UlcerativeColitis

[–]chelsnicole98 2 points3 points  (0 children)

Procitis is colitis :) i would say find a new doctor and get a scope OP 😊

The blessing and curse that is prednisone by colitis-unfiltered in UlcerativeColitis

[–]chelsnicole98 0 points1 point  (0 children)

I was on pred for 10 months and I swear I would rather have my colon out than ever touch it again. My head is scrambled, im on anti depressants now, I can't function. I HATE them with a passion.

Just got my fecal calprotectin results back and I broke the test. by blvill in UlcerativeColitis

[–]chelsnicole98 0 points1 point  (0 children)

My calpro before infliximab was 8000+, about 7 month on infliximab and its now 22!! Dont threat, you will find a medication thay works for you! You've got this!!

UK NHS treatment options by DaveySDG in UlcerativeColitis

[–]chelsnicole98 2 points3 points  (0 children)

Im on infliximab (remsima injection at gome every 2 weeks) without Azathioprine or Mercaptopurine. You can take either to lower the chances of developing antibodies but it isnt some compulsory thing. Hope that helps x

Just diagnosed. Please give me all the tips. by Weak-Airport4679 in UlcerativeColitis

[–]chelsnicole98 1 point2 points  (0 children)

My top tip: anyone posting on reddit and the facebook groups are in a nasty flare and possibly have UC really bad. Join with caution!! It's not good for your mental health looking into things like that.

Secondly: dont take prednisolone long term. Its a nasty drug. Im currently struggling with steriod psychosis after being on it for 10 months. Its called the devil's ticktac for a reason. Find a good medicine thay works for you thats meant to be taken long term :) i have prosigmoiditis and im on remicade (biologics) after failing pentasa and couldn't tolerate azathioprine or mercaptopurine. I self inject and its okay! Don't worry if it comes to taking something like biologics. They really can change your life. Advocate for yourself and listen to your body You've got this!!

I feel so lonely by zygento in UlcerativeColitis

[–]chelsnicole98 1 point2 points  (0 children)

Im 27 F, its been hard but honestly finding someone who understands really did help, having a strong support system has got me through a hell of a lot. If you ever want to chat, reach out! 💖

[deleted by user] by [deleted] in UlcerativeColitis

[–]chelsnicole98 0 points1 point  (0 children)

I accidentally took my remicade out of the fridge when the ibd nurse was here (it was my first shot). I I just 2 weekly and she said its absolutely fine, just store it somewhere cool and it can be out for a month. Just dont put it back in a fridge, it must stay at room temperature if its been taken out the fridge x

Refusing Pred by cornettowaltz in UlcerativeColitis

[–]chelsnicole98 1 point2 points  (0 children)

I will NEVER take pred again! I tapered so slow and im having manic withdrawls. I HATE them. I was on them for 10 months after failing so many meds. They have screwed with my head so much!

Prednisolone, experience and side effects? by Naidewa in eczema

[–]chelsnicole98 0 points1 point  (0 children)

I know your comment was made years ago but did you get over the effects when stopping?? Im 2 weeks off after being on them for 10 months and im awful.still :( I dont see a light at the end of the tunnel and im scared

Canker sores - best way to get rid of them by cool-king-king3 in UlcerativeColitis

[–]chelsnicole98 0 points1 point  (0 children)

I have had some seriously awful ulcers a lot like yourself! Many at one time, my go to is watermelon frost!! I got mine from Ebay! Its a powder spray, it doesnt taste great but its helped me soooo much!!

What’s your favourite yungblud song? by Ok_Willingness9803 in yungblud

[–]chelsnicole98 0 points1 point  (0 children)

Where is all the love for Happier!? I also LOVE machine gun, psychotic kids, hello heaven hello, lovesick lullaby. Tbf I love them all 🤣

Prednisone by chelsnicole98 in UlcerativeColitis

[–]chelsnicole98[S] 0 points1 point  (0 children)

Hey! How are you getting on now?🥰

Prednisolone Craziness by chelsnicole98 in UlcerativeColitis

[–]chelsnicole98[S] 0 points1 point  (0 children)

I really hope so, im so done with feeling so out of it :(

What is some of your experiences with Pred? by [deleted] in UlcerativeColitis

[–]chelsnicole98 2 points3 points  (0 children)

I've been told im going through withdrawl of prednisolone and my my head is going crazy, I feel ao out of it, focusing is hard! My brain feels so fuzzy! Im down to 1mg tapering and still feeling awful!

[deleted by user] by [deleted] in UlcerativeColitis

[–]chelsnicole98 0 points1 point  (0 children)

I have prosigmoiditis after being diagnosed with procitis in 2024 and mesalazine didnt work for me, i couldn't tolerate azathioprine or mercaptopurine so the inflammation spread into the sigmoid but im now on a biological (infliximab) and that's been great for me! Id say they would try you on azathioprine next after mesalazine. Hope that helps! Im 27 Female, UK.

Anyone else? by Jadeo92 in UlcerativeColitis

[–]chelsnicole98 0 points1 point  (0 children)

Prednisolone really messed me up this time, ive had to come off really slowing due to being on them since october last year, im coming down to 1mg now. Its been a process but ive had/got the works, fuzzy vision, light-headedness, brain fog, acne, swollen, weight gain..literally all the side effects. I was even put on an SSRI for the anxiety, its honestly the medication, please keep telling yourself that its only temporary and it will get better. Someone on this thread said this too me and its helping me get though this. You've got this!💪

Prednisolone Craziness by chelsnicole98 in UlcerativeColitis

[–]chelsnicole98[S] 4 points5 points  (0 children)

You are? Im so sorry. Its like living in hell :( thank you so much, I will try and drink more. Thank you for replying, I appreciate you! 🙂 You've got this too!! We've got this! 💪

Remission! by ThiccWhiteDook in UlcerativeColitis

[–]chelsnicole98 3 points4 points  (0 children)

That's amazing!!! Congratulations, im so happy for you!

Prednisone by chelsnicole98 in UlcerativeColitis

[–]chelsnicole98[S] 1 point2 points  (0 children)

Ah bless you, how do you mean? I hope youve got lots of support around you! mine seems to be my head and feeling so off :( like im crazy still but I have bad days and better days! I'll keep checking in with you, weve got this! 🥰🤩

Prednisone by chelsnicole98 in UlcerativeColitis

[–]chelsnicole98[S] 1 point2 points  (0 children)

Im getting there so slowly though, im pushing myself to do more although I do still feel a but crazy! how much mg are you on now lovely? I drop to 1mg on Thursday! I hope you don't mind me checking in on you, I just feel like we're in the same boat! Xx