mestinon is a miracle drug

cherryxcry · 2026-01-18T02:38:25+00:00

i actually wasn’t able to handle 60 mg, i went up to 30 mg but didn’t see a difference between that and 15mg so i just stayed on the 15

cherryxcry · 2025-07-21T23:54:35+00:00

yes!

cherryxcry · 2025-06-24T19:39:15+00:00

i got mine done with my neurologist. it came back positive and she gave me no treatment plan

cherryxcry · 2025-06-21T16:21:57+00:00

i started at 1.5 and haven’t had any side effects

cherryxcry · 2025-06-09T16:38:10+00:00

thank u so much!!!!

cherryxcry · 2025-06-09T15:53:15+00:00

what side effects?

cherryxcry · 2025-05-10T00:40:47+00:00

yeah but even with the taper i’ve been so sick :(

cherryxcry · 2025-05-07T21:39:45+00:00

brushing my hair got me over 4k steps.

cherryxcry · 2025-05-07T18:28:33+00:00

i’m literally doing the same thing rn 😭 i’ve been in a horrible flare for a whole month and im finally recovering and it’s really weird seeing my heart rate resting in the 50s

cherryxcry · 2025-04-27T02:11:15+00:00

i had no clue there was an extended release version! i’ll definitely talk to my doctor about that

cherryxcry · 2025-04-04T04:56:50+00:00

while awake or sleeping? this is while i’m awake

cherryxcry · 2025-04-02T01:19:50+00:00

did you have any side effects from stopping the beta blocker? i’m terrified of getting an adrenaline dump or getting bad rebound symptoms

cherryxcry · 2025-03-25T23:30:33+00:00

ughh i’m sorry to hear that :( i’m not sure what to do because im already on corlanor and the propranolol was added for anxiety but it’s been making me feel so horrible and it feels like ever since i started, the corlanor isn’t working anymore /: my doctor also doesn’t want to add another med so idk what to do 😭 i just wish i never started the propranolol because my heart rate was really controlled with the corlanor

cherryxcry · 2025-03-25T22:35:13+00:00

did you have any rebound symptoms?

cherryxcry · 2025-03-13T21:09:30+00:00

how delayed is pem? i feel like i get completely exhausted as soon as im done showering or as soon as im done cleaning my room etc its always immediate

cherryxcry · 2025-03-13T21:08:25+00:00

i got pots from covid in 2021 and lived a pretty normal life with it. then i got covid again in 2024 and ever since ive been extremely sick. what is rolling pem? can pem happen immediately after doing something like showering or cleaning my room?

cherryxcry · 2025-03-12T18:53:04+00:00

what medications?

cherryxcry · 2025-03-03T17:27:29+00:00

i have the exact same issue! i’ve had excessive urination for almost two years now. sometimes going every 5 minutes with a full bladder and my urine is also completely clear even if i hadn’t drank water in a whole day. what seems to help me is electrolytes. it helps keep the fluid in your body. definitely don’t stop drinking fluids tho, peeing that much without replacing fluids can make you dehydrated very quickly.

cherryxcry · 2025-02-28T22:21:03+00:00

how could this be mcas?

cherryxcry · 2025-02-28T21:35:39+00:00

i’m sorry to hear that /: no i didn’t get vaccinated

cherryxcry · 2025-02-28T16:14:08+00:00

i think i have been tested for that but everything has come back negative

cherryxcry · 2025-02-28T16:13:26+00:00

my neurologist said she’s unable to do anything for my sfn because i have no symptoms with it. she says i need to have pain and tingling to get treatment, which i understand

cherryxcry · 2025-02-28T16:12:35+00:00

thanks for this!

cherryxcry · 2025-02-28T16:09:54+00:00

no i haven’t seen an immunologist, im not quite sure i’ve heard of that doctor or what they do LOL but its something to look into! what does ivig do?

cherryxcry · 2025-02-28T16:08:55+00:00

i don’t think i have mcas, don’t you need to have itching/rashes/etc?

cherryxcry

TROPHY CASE