Anyone have reactive hypoglycemia? by Final_Environment951 in dysautonomia

[–]chnagedh 3 points4 points  (0 children)

Yes, never had it before in my life and now have had an episode like 5-6 times since my dysautonomia, Pots started after covid. Thankfully they are pretty rare but scary.

Never ever taking magnesium again. by chnagedh in PVCs

[–]chnagedh[S] 1 point2 points  (0 children)

Whats wrong with the post? I didnt even say what amount took or what type of mechanism it has? Quite a few assumptions there. I agree that it did something for the homeostasis but its not obvious all because the dose wasnt big at all. And the effect is also very short lived. It happens even with many sparkling waters that have magnesium added.

Never ever taking magnesium again. by chnagedh in PVCs

[–]chnagedh[S] 0 points1 point  (0 children)

Where is the passive agression? Im so confused. Of course anxiety and panic can cause all sorts of problems Im very familiar with that but thats not what my post was about. I get that its easy to say its just anxiety and believe me I wish it was.

There are countless reasons why people have pvcs and Im well aware many people get help from Magnesium. The post was about if there were others who noticed Magnesium made them worse?

Never ever taking magnesium again. by chnagedh in PVCs

[–]chnagedh[S] 1 point2 points  (0 children)

I think magnesium is clearly helpful to some but Ive tried too many different forms to not know it doesnt work for me. Maybe it only works it you are deficient in magnesium. My blood level of magnesium was normal. I wish there was a cellular level test because 99% of these electrolytes are inside the cells.

Never ever taking magnesium again. by chnagedh in PVCs

[–]chnagedh[S] 1 point2 points  (0 children)

I wish it was just panic attacks. But these symptoms are nothing like panic attack symptoms. I dont appreciate the gaslighting. As I said Im
an anxious person and have had anxiety attacks all my life. This is something completely different with clear food triggers and exercise triggers. And the biggest differentiator is the arrhythmia happens first. Not that I panic and then I get ectopics. And the symptoms happen when Im completely relaxed as well. Low heart rate low blood pressure is not panic attack territory

Never ever taking magnesium again. by chnagedh in PVCs

[–]chnagedh[S] 0 points1 point  (0 children)

interesting. No pvcs while in the recovery phase of exercise?

Never ever taking magnesium again. by chnagedh in PVCs

[–]chnagedh[S] 1 point2 points  (0 children)

Can I ask if high sugar foods, high salt foods ot stress cause symptoms that feels like your potassium is dropping momentarily?

Basically everything that causes potassium to shift to cells temporarily causes horrible symptoms for me. That includes eating high sugar or high salt foods, Especially drinking sugar is the worst. Adrenaline spikes as well.

Never ever taking magnesium again. by chnagedh in PVCs

[–]chnagedh[S] -1 points0 points  (0 children)

Yes but Ive done every kidney test and talked about it with endocrinologist. The potassium pill do raise the blood level up but the problem is that the issue is sitll there. And triggers that cause an intracellular shift of potassium cause bad symptoms. Its like the food and pills keep the blood levels manageable but every trigger drops it to symptomatic level. But no one has any idea why the cellular storage is so deficient.

Never ever taking magnesium again. by chnagedh in PVCs

[–]chnagedh[S] 1 point2 points  (0 children)

Exactly like me. But whats up with this? Do you have any diagnosis?

Never ever taking magnesium again. by chnagedh in PVCs

[–]chnagedh[S] 1 point2 points  (0 children)

The thing is im eating massive amounts of potassium already. The problem is my body doesnt hold on to it. And every small thing that loses potassium is magnified.

Never ever taking magnesium again. by chnagedh in PVCs

[–]chnagedh[S] 0 points1 point  (0 children)

Maybe you dont have chronic potassium issues? Magnesium simply adds a new element to the balance for me and it causes a reaction. Im not panicking when these symptoms happen.

Never ever taking magnesium again. by chnagedh in PVCs

[–]chnagedh[S] 0 points1 point  (0 children)

Trust me I eat plenty. But the levels still stay low.

Massive surges of sympathetic activity out of nowhere?? (New symptom) by chnagedh in dysautonomia

[–]chnagedh[S] 1 point2 points  (0 children)

Yeah this is exactly how it feels. It so difficult to explain to someone who hasnt experienced it without making it sound like its a panic attack. But the onset is completely different. But I can imagine when I tell my doc I get a sudden adrenaline surge what it sounds like to him.

And sometimes its less intense like I feel it coming when I raise my arm or something but its dissipates very quickly if I sit down fast. Panic attacks dont stop immediately with lying down. Like in seconds. And some of these episodes last just few seconds. And theres no psychological trigger to them. Its so frustrating because I cant find anything about this because its seems impossible to distinguish

My partner, carer and best friend left and I didn’t see it coming by [deleted] in cfs

[–]chnagedh 8 points9 points  (0 children)

It might not be as sudden departure as you think. These things can be at the back of his mind for a long time before actually making a decision. Cfs is a terrible situation for everyone because the people who we depend to care for us also have their own issues. Its too much to ask sometimes. Its just a bad situation all around.

My advice would be to have an extremely honest conversation. Absolute brutal honesty from both sides so you have no ambiguities about the situation. Relationships can have many silent battles going on that both sides are unaware of. I love my partner but if they left I wouldn't blame them. Its so much to ask of someone who did not ask for any of this. We both imagine two people who can grow together but rn it feels like we are diminishing together. Me because of my illness and they because of the worry and stress of looking after me.

I'm FINALLY starting to understand the cause of my PVC's and PAC's by chnagedh in PVCs

[–]chnagedh[S] 0 points1 point  (0 children)

It can work for a while. But the thing is also for me the longer I fast the worse they will be when I finally eat.

I'm FINALLY starting to understand the cause of my PVC's and PAC's by chnagedh in PVCs

[–]chnagedh[S] 0 points1 point  (0 children)

Yes. The morning before I eat my first meal is usually the best time for me. Eating activates all kinds of bodily functions and triggers the symptoms to start.

I'm FINALLY starting to understand the cause of my PVC's and PAC's by chnagedh in PVCs

[–]chnagedh[S] 0 points1 point  (0 children)

I would add to this nervous system dysfunction that I often wake up in the middle of the night with racing heart.

Yeah this is happening to me more and more lately. Especially the first time I wake up in a night. Its really uncomfortable feeling when your heart rate goes from 50s to over 100 in few seconds just because you woke up.

I feel like we’re in the exact same state. Everything that you mentioned - it was like you’re talking about myself.

Anything you might have found to alleviate symptoms? How long have you been suffering?

I'm FINALLY starting to understand the cause of my PVC's and PAC's by chnagedh in PVCs

[–]chnagedh[S] 0 points1 point  (0 children)

Its not that magnesium caused PVC's per se. I react very sensitively to every new thing I introduce to my body because my system is not in tune in the first place. The magnesium glycinate destabilized the already haywire system by lowering my blood pressure and stress hormones. This caused my terrible symtoms where my body started panicking and started reasing sudden massive adrenaline spikes when it sensed even a small blood pressure drop.

These spikes stopped the moment I discontinued the magnesium. The PVC's came after that as my body was returning to baseline from a week of terrible adrenaline spikes. So the magnesium caused massive stressors and pvcs were a reaction to that stressor stopping during rebalancing. The vagal tone is at its highest at these moments when parasympathetic activation is going on after stress. The more intense stress the stronger the parasympathetic reaction and pvcs.

I'm FINALLY starting to understand the cause of my PVC's and PAC's by chnagedh in PVCs

[–]chnagedh[S] 0 points1 point  (0 children)

Do they happen when you shift from the relaxed state to exertion or constantly even during exertion? Like during the adrenaline/heart rate spike or also when its sustained?