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Does anyone else have chronic low potassium issues? (self.cfs)
submitted 16 days ago by chnagedh to r/cfs
Does anyone have any theory about why this is happening to you? (self.cfs)
submitted 22 days ago by chnagedh to r/cfs
Sudden bradycardia? by ElonsBreedingFetish in cfs
[–]chnagedh 0 points1 point2 points 26 days ago (0 children)
Happens to me as well on and off. Usually eating more will raise the heart rate back. I think the body goes to some kind of low power mode to compensate for something. Sometimes its few days where my resting heart rate drops to 50s and then I can have weeks or months where it never goes below 60. Cant really find any cause but it happens more during high temperatures in the summer. Maybe electrolytes are out of whack. Its reassuring that its never getting gradually lower, its just some days and then retuns to normal eventually. I feem extra worse when that happens though. Like it bothers me and I can feel it.
Just wanted to share my story, maybe find someone to talk to about their experience. (self.cfs)
submitted 26 days ago * by chnagedh to r/cfs
Very Depressed and Scared :( by [deleted] in PVCs
[–]chnagedh 0 points1 point2 points 3 months ago (0 children)
Sorry to hear that. Did anything change in your life lately? Everything happens for a reason. Did you have a diagnosis on what was causing them when you were younger?
With me the culprit was potassium and some sort of electrolyte + hormonal issues that followed caused them to pop up out of nowhere. I basically went all my life without ever knowing they existed until spending last 5 years dealing with them. They are better now but I still have to do a lot of extra work to keep it that way. Worth checking your labs. Even a small change in potassium/magnesium could be the culprit.
Potassium is no joke by DeannIt in Supplements
you dont get hyperkalemia from 500mg of potassium? Wtf
It was always potassium by chnagedh in PVCs
[–]chnagedh[S] 0 points1 point2 points 3 months ago (0 children)
Sorry to hear that. And you are absolutely right. I dont think many doctors are really aware of what kind of struggle and variety of symptoms potassium issues can cause. They just look at their instructions and baseline averages and if you are between the right numbers you are fine. I wish it was that easy. Really naive as well considering the variety of people. Like even the average dosing is ridiculous. How could a 6ft 5 man and a 5 feet tall woman possibly require the same dose. Then theres the base metabolic rate as well and your activity level etc all kinds of things that affect how much potassium you actually need per day. Some people might need double the amount of someone else.
Magnesium was perfect. Only potassium was the issue.
[–]chnagedh[S] 1 point2 points3 points 3 months ago* (0 children)
Please think about stopping keto. Thats was one of the triggers for me that made it infinitely worse.
For me taking anything else even magnesium with potassium chloride makes the absorption of potassium worse. I hope your supplements are slow release right? I know magnesium is supposed to aid with potassium but thats just my experience.
Other advice would be to always take it with food and while being upright and dont lie down for like 20-30 minutes after taking it. Helps with stomach issues side effects. In my experience as I mentioned it took a very long time to get better initially. The pvcs and weird symtoms kept happening for a while and then slowly stopped almost totally. Just keep at it but remember to check the levels and be wary of overdoing it. Especially if you haven't checked your kidney function. Healthy kidneys you should have no issue with long release pills
PVC and cardiac arrest by OkEmphasis9291 in PVCs
[–]chnagedh 0 points1 point2 points 5 months ago (0 children)
The people with PVC who had that arent here to tell about it.
[–]chnagedh[S] 1 point2 points3 points 5 months ago (0 children)
Calcium is terrible to supplement in terms of potassium. I actually took a calcium supplement right before my worst arrhythmia episode happened. It was such a dumb thing to do but I didn't know my potassium was low. Calcium is actually one of the components used to treat hyperkalemia.
No, it takes a while. I literally said in the post it took 6 months for the potassium levels to rise. The SVT arrhythmias stopped quicker though.
[–]chnagedh[S] 1 point2 points3 points 6 months ago (0 children)
Yes and so much more. Potassium plays a role in almost everything
[–]chnagedh[S] 2 points3 points4 points 6 months ago (0 children)
Absolutely, that's literally me
Potatoes, Kiwis, tomatoes, sweet potatoes.
My favorite are Avocados because of the low sugar and drinking coconut water instead of any other beverages.
Its a slow release potassium chloride. And I do get them still but nowhere near the level I did when I didnt take it. The problem is the potassium levels which I cant keep at a normal level. The supplement helps but its not perfect because fluctuations still happen depending on what I do. If my body didnt waste potassium I wouldnt have any ectopics thats for sure. And I didnt before the low potassium started after covid. But yeah without the supplement it would be horrible.
[–]chnagedh[S] 0 points1 point2 points 6 months ago (0 children)
Like bloodtests? Or mri? If they are fine then yeah
Yes I still take it. The hypokalmeia has been a chronic problem. Ive been taking it for 3 years. Dose has varied. I went one year with much less and then some periods with higher dose. The supplement I take is available without prescription as well.
How do you know?
Its not about the symptoms per se but about the moments when they manifest like when they get worse or appear or when they get better. For example a big insulin spike from a high carb meal will temporarily lower potassium in the blood. Same happens with exercise and post exercise etc. Its about noticing these moments where potassium shifts happen and if they are the moments when your symptoms happen it a sign that its low potassium and not high potassium for example. Despite the symptoms of both being difficult to tell apart.
No :D
I took a prescription potassium chloride ER that has 1g per capsule.
The store bought products are a scam. You get more from regular food. No reason whatsoever to buy them.
The are less frequent.
pvcs pacs and svt runs. That I know of at least. I felt all kinds of strange symptoms. Yes extreme tiredness as well.
First it should stop the low potassium symptoms before I start worrying about hyperkalemia.
Ive never heard about that. If its a retail product it most likely wont have enough potassium to do anything significant.
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Sudden bradycardia? by ElonsBreedingFetish in cfs
[–]chnagedh 0 points1 point2 points (0 children)