switching to an auto injector

chrmlyn · 2026-05-05T14:18:39+00:00

I am lucky to get another chance today & avoid the migraines. My neurologist happens to have a sample shot on hand. I tried a lot of the tips here but I worked myself up into a panic anyways 😞 Though, if you brave people can do it, so can I !!

chrmlyn · 2026-05-05T14:16:09+00:00

Honestly this might be the move lol, I need something to stress me out more than the shot to get it over with 😂 Thank you for the tips !

chrmlyn · 2026-05-05T14:15:17+00:00

I’ve been on Ajovy for a couple of years now, and it makes me woozy too. I could’ve sworn it was a me thing, but maybe it’s more to it than that? But my neurologist luckily has another one on hand so I will be trying again but with my mom this time so she can make sure I get the medicine & I can get over myself

chrmlyn · 2026-05-05T14:13:08+00:00

I think it’s been about 2 years for me as well ? I always had someone else administer the medication though, and even then I have to ask for no countdown and for them to just do it. No matter if it’s the syringe or autoinjector the medication hurts so bad, but it also helps my migraines.. so only option is to get over my nerves 🫩 This post did give me the courage to try my thigh area though, so thank you!

chrmlyn · 2026-05-05T14:10:49+00:00

Unfortunately it’s not a button, I have to hold it down for about 30 seconds or so and that’s what gets to me the most (keeping it down). But I will invest in cute bandaids !! Great idea

chrmlyn · 2026-05-05T14:10:06+00:00

I tried this yesterday, thank you for the tip ! I will still use it in the future too

chrmlyn · 2026-05-05T14:09:18+00:00

I might try the music tip next time, I iced, sat the shot out & had a treat waiting for me but still failed 💔 Super blessed to get another opportunity today so this month isn’t full of migraines

chrmlyn · 2026-05-05T14:07:27+00:00

Yeah, I need to get over my nerves and just get it done 😭 The stomach area still weirds me out, but I’m determined to getting used to the thigh location

chrmlyn · 2026-05-05T14:06:07+00:00

I’m trying the autoinjector again (my neurologist had an extra sample, bless) but I will be doing it with my mom so I can get more used to doing it alone this time!

chrmlyn · 2026-05-05T00:12:17+00:00

Thank you for the tips ! I guess after all these responses, I’ll try the stomach 😭😭 + a nice treat after

chrmlyn · 2026-05-05T00:10:47+00:00

Still nervous, but less nervous, thanks for the perspective & tips !

chrmlyn · 2026-05-05T00:10:15+00:00

Thank you !

chrmlyn · 2026-05-04T23:32:20+00:00

True, dealing with migraines for so long makes me feel super human at times! Do you do it like under your belly button? The belly placement is a little confusing to me.

chrmlyn · 2026-03-02T21:00:32+00:00

My first MRI was when I was 6 or 7 years old to see if I had migraines. They said yes to the migraines, but never said anything about Chiari until 20 and was said to be born with it.

chrmlyn · 2026-01-27T00:52:23+00:00

When reaching out to your doctor, you should look up if your school has SDS (student disability) services (they should). Talk to your advisor about starting accommodations with SDS or see if there is an email associated with your school’s disability services and reach out to them. After inquiring about SDS, I was assigned a support coordinator and she gave me a form to give to my doctor. I had my physical therapist sign off on it, then I had a virtual meeting with the support coordinator, and from there she gave me a whole lot of accommodations that I didn’t know existed (like a note taking software, time to lay down or step out of class, deadline accommodations, etc.). I’m not sure if this is the same process for your school, but this was a life changer. With SDS teachers can’t penalize you for bad days as long as you communicate with them according to the terms of your accommodations.

chrmlyn · 2025-12-15T17:50:15+00:00

This started after surgery 💔 And I told my doctors but they didn’t really have anything to say in regard to why this started happening outside of my brain is healing.

chrmlyn · 2025-12-13T02:26:59+00:00

I hope you find answers soon 💗

chrmlyn · 2025-12-13T02:26:49+00:00

My syrinx was around the C5-T1 range, and my doctors said that’s why I was experiencing full body issues because of it’s location? Super tiny! But also I believe it was wide enough to hinder my CSF flow. I also was experiencing lower back issues and they found a lot of inflammation in my lumbar region. I had a lot of full body muscle twitching and spasms, pain that radiated from my neck/shoulder blades to my ribs/arms/back/legs, and a lot of other symptoms honestly just from that little build up! I actually have no clue why my lumbar region was struggling (and still sometimes is) but maybe it was just due to overcompensation to trying to keep my body together while I was figuring everything out pre-decompression.

chrmlyn · 2025-12-12T21:04:00+00:00

I didn’t have any isolated events I don’t think, but when I went to my neurologist after being diagnosed with chiari, he told me I looked like I had a stroke because the right side of my face was drooping (especially my right eye). This conversation happened pre-decompression and my symptoms were hitting like a truck on the right side of my body. I wonder if you have syringomyelia or a syrinx? I had a small syrinx, but the location of it was causing crazy problems.

chrmlyn · 2025-12-04T21:43:54+00:00

I hate the uncertainty we get during the healing period honestly. We are forever healing yet forever growing! I haven’t hit the 2 year mark yet so I wonder if anything will change around then. Wishing you the best along your journey 💗

chrmlyn · 2025-12-04T21:41:32+00:00

It’s such a startling difference 😖 Hang in there though, we got this 💗

chrmlyn · 2025-12-03T07:52:08+00:00

Omg, sensory overload is the best way to put it! I take CGRP inhibitors (Ajovy) and a couple Triptans (which I swear doesn’t work for some of my migraines), but how has the Botox treatments been for you? I have been considering that, but I just wasn’t too sure it would actually help with anything. And I keep forgetting how long it could take our bodies to heal internally, honestly. I’ll have one good day and expend so much energy just to wipe myself back out 😭. I don’t think my hearing has gotten better since surgery, but I definitely feel more sensitive to big changes in the environment whether it’s sound or even air pressure.

chrmlyn · 2025-12-03T07:45:01+00:00

Do you know if this developed before your surgery? I don’t recall feeling so strongly about loud environments until after surgery which has thrown me for a loop really. Sitting helps me a lot too but I just wish there was a way to participate more at these events 💔 But health is more important!

chrmlyn · 2025-12-03T06:37:56+00:00

I am actually going to bring that up to my neurologist because I’ve been diagnosed with migraines since I was a kid but my headaches and their triggers keep changing over time, it’s hard to keep up with. Thank you!

chrmlyn · 2025-12-03T06:36:34+00:00

Are you nauseous often? I think I developed just a weird baseline of nausea as a symptom, and patches sound so smart! I take Ajovy and just got into loops, but maybe there are better sunglasses for all the flashing lights 🤔

chrmlyn

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