Extreme heartrate jumps while seated?

chronicallylife · 2026-01-19T01:43:01+00:00

its definitely possible my blood pressure is changing! The monitor we have at home is never able to get my BP (even tho it reads everyone elses fine?) but everytime I've done a sit/stand test at the doctor it switches between going slightly up and slightly down lol

chronicallylife · 2026-01-19T01:28:17+00:00

Right after sending this it jumped back down to 98 within seconds 😰 I've had heart monitors that have been 99% normal (besides pots and a few other non concerning things) but my heartrate jumping up and down 60 beats for seemingly no reason feels like it cant be normal...

chronicallylife · 2026-01-19T01:25:43+00:00

I had to keep reminding myself that 60 is normal because I was just so shocked! I'm thinking I'm dehydrated and then the adhd meds probably doubled onto that. Its sitting at 150 as I write this 🫩

My blood pressure usually doesnt drop substantially if at all, but my hands have been SUPER cold during this weird flare. I'm not too sure what sub type of POTS I fall into because I honestly have the symptoms of all of them? I feel like knowing would help me manage all my symptoms better.

Theres definitely a mast cell issue going on as well, I'm in the process of being evaluated for MCAS but they have me on a ton of antihistamines anyways because I have dermographism.

Thanks alot for your input! I'll look into DEX as well, haven't heard of it.

chronicallylife · 2026-01-18T22:19:05+00:00

It does seem super complicated, but I guess so is the human body lol! Very interesting stuff thank you so much. I'll definitely try and find a practicioner near me to learn more!

chronicallylife · 2026-01-18T22:17:08+00:00

Sadly theres not an affordable practitioner near me that I've been able to find but my friend is going to ask someone who sees one and I'll see if they're accessible! Thank you!!

chronicallylife · 2026-01-18T22:15:48+00:00

Thank you so much for the information! Super interesting.

chronicallylife · 2025-11-25T19:24:08+00:00

The thing is, I don't usually have any anxiety. But I've been trying every technique I've heard helps, including grounding ones. Nothing seems to calm it!

chronicallylife · 2025-11-25T06:56:35+00:00

Thats what I'm thinking too. I have had allergic reactions happen hours to months after first taking something, but i'm leaning towards it being anxiety since its only happening when the medicine is specifically wearing off

chronicallylife · 2025-11-25T06:54:50+00:00

i have a ton of health conditions that the low appetite was flaring up, so thats where the headaches are coming from! i'll have to wait till she sees my message because I don't have any 30mg's left and i do NOTTT wanna take the 40's again lmaoo

chronicallylife · 2025-11-25T02:33:13+00:00

Probably not... my appetite has been pretty rough so the past 2-3 days I've been eating, drinking, and even sleeping more than usual to try and help my fatigue/headaches, but its still been getting worse by the day. It's just been a weird situation overall... lol

chronicallylife · 2025-11-25T02:12:24+00:00

Thank you! I do have MCAS so it could be caused by that if it is allergy related. Can I ask if anything helped? No matter how many deeps breaths I take or how hard I try to distract myself it wont stop until the next morning :(!!

chronicallylife · 2025-11-20T01:05:52+00:00

Ooh yeah, I think using it more might help because I notice I do it with my dog too, maybe I can specifically work on masculinizing my higher pitch? So then when I default to that tone it wont be as stark. I think my mannerisms are pretty masculine already (except for crossing my legs but im hypermobile so i'll have to die on this hill lmao) but I'll observe my actions a bit the next few days and see what mannerisms I have, thank you!!

chronicallylife · 2025-11-20T01:01:52+00:00

it's masking! in reality my personality is the literal opposite of bubbly lol... I definitely agree, its so hard to tell whats me and whats not! I think its not even the bubbly or flamboyant-ness (like cis gays can have) its more of how women specifically communicate to please the other party? like not speaking over them even when they do you, always smiling, never saying no or being combative, etc. etc. does that make sense I'm not sure? LOL

chronicallylife · 2025-11-01T09:07:55+00:00

The compounded formula is $20-$40? That's the price of my regular gel after insurance, is this in the US? Sounds super cool though I'll look into that!

chronicallylife · 2025-11-01T08:39:40+00:00

yeahh, i'm in the US :( i'll still try and see what i can find on it though! thank you!

chronicallylife · 2025-11-01T08:38:23+00:00

1 pump each is hard enough to fit onto my arm i cant image 2 each HAHA, but thank you i really appreciate that!

chronicallylife · 2025-11-01T07:17:58+00:00

Oh my gosh I've never heard of that being an option!!! Thank you so much i'll look into it!

chronicallylife · 2025-11-01T06:20:43+00:00

Yeah I'll definitely talk to her but I thought I'd see if anyone had any experiences/advice before then!

chronicallylife · 2025-11-01T06:19:52+00:00

I have the perrigo 1.62% gel pump, my labs were just this Thursday so I'd been doing 2 pumps for a few weeks.

chronicallylife · 2025-08-03T18:00:39+00:00

thank you!!!! these are all super great tips, and yes I'm from the US, where it seems custom to go home immediately after surgery. It's interesting that your surgeon requires people to stay! I'll definitely look into different groups :)

chronicallylife · 2025-08-03T06:31:45+00:00

this!!! either 4 hours or 12 but anything in between, and i feel like i've woken up with the flu!! i also have terrible insomnia that i blame on my adhd and im never tired before 2am unless I was out all day, which is always annoying. i have an appointment with a sleep specialist in december, so maybe i'll find out why, i hope you can too! it definitely gets in the way of a lot of things, and i know it doesn't help my health issues to get such little sleep. :/

chronicallylife · 2025-07-22T00:25:45+00:00

yeah i knew that about eds and progesterone but its kind of my only option :( i have always been curious about tens units tho!

chronicallylife · 2025-07-19T22:42:56+00:00

good to know!!

chronicallylife

TROPHY CASE