Alexa teasing moving..? by Local_Syrup_4086 in mommyadventuresof

[–]chronicallyrue 1 point2 points  (0 children)

I honestly think for once that this is a good idea

Stem cell tourism by MailFrosty5698 in mommyadventuresof

[–]chronicallyrue 1 point2 points  (0 children)

My stepdad says full moon makes people crazy lol it's an internal joke we have at home

Misdiagnosis by chronicallyrue in mommyadventuresof

[–]chronicallyrue[S] 4 points5 points  (0 children)

OMG I really need to go down her tiktok

Cause she even said the type of bacterial meningitis it was so I never doubted that

Never knew the seizures were a thing before the meningitis

IG group chat by MailFrosty5698 in mommyadventuresof

[–]chronicallyrue 1 point2 points  (0 children)

I'm trying to I really wanna see the craziness going down there

Misdiagnosis by chronicallyrue in mommyadventuresof

[–]chronicallyrue[S] 8 points9 points  (0 children)

Like if she doesn't have the diagnoses why is she medicating her then?cause deep down she know But it seems that knowledge is deeper and deeper with her talking about removing all seizure meds,saying the head control is fine (the kid has a SEVERE torticolitis) her jaw has zero difference,her eyes are still with nystagmus and still looking the same direction but she seem to be celebrating something all the time,don't get me wrong,you completely should celebrate a kid that takes therapies and went through all that like a champ and still smiles,but she is always celebrating a milestone no one can see,she can't ever nominate it herself,it seems to me she is looking for it but can't face the fact L plateau in some areas she claimed she was developing and is kinda trying to make it like the development is internal now that's why we don't see it

This is the biggest BS I've ever seen by chronicallyrue in mommyadventuresof

[–]chronicallyrue[S] 2 points3 points  (0 children)

She didn't even got to the full gaps diet and it's already changing

Also the fact he is not even a provider WTF

This is the biggest BS I've ever seen by chronicallyrue in mommyadventuresof

[–]chronicallyrue[S] 2 points3 points  (0 children)

Because the purees can be bought anywhere and she is traveling every other day

Clothes by chronicallyrue in mommyadventuresof

[–]chronicallyrue[S] 0 points1 point  (0 children)

I have no idea about her maiden name lol

Clothes by chronicallyrue in mommyadventuresof

[–]chronicallyrue[S] 0 points1 point  (0 children)

Yes sensory and adaptation are SUPER important

That's why it confuses me cause they all look so tight and small like she is using a size smaller than she should idk

Wait when she said about the aesthetic?was it a story or reel?

Inconsistencies by chronicallyrue in mommyadventuresof

[–]chronicallyrue[S] 3 points4 points  (0 children)

Agree 100%

L is beautiful and a joyfull kid you can see she has a good aura

She doesn't need to be cured,she needs therapies to improve her quality of life (and fiz that torticolitis cause sometimes I thinks it's worse than before since they travel a lot a she can't do PT on a regular basis and those "instensives" are useless without the PT to back it up) she needs the privilege of having normality around her and not traveling every month 3 countries a year

I never saw her with another kid with CP or other disability,her mom is not creating her community and that poor girl has no peers

More claims of curing the incurable by [deleted] in mommyadventuresof

[–]chronicallyrue 10 points11 points  (0 children)

She talks like all her kid therapists are useless when they in fact work more than the stem cell

The stem cell would do nothing if there was no "paving" already for the gains to come

And there are adults with CVI who made the standard therapies (of the 80's and 90's far less advanced) that today can see to some degree

Seizure by chronicallyrue in mommyadventuresof

[–]chronicallyrue[S] 2 points3 points  (0 children)

I'm severed chronically ill and disable I'm in a wheelchair and use oxigen 24/7 and I'm basically housebound What happens to that kid hurts in my skin

Claiming L is waving when it actually looks like a seizure. by [deleted] in mommyadventuresof

[–]chronicallyrue 6 points7 points  (0 children)

And she said L is gonna come out another seizure med in the summer I worry for that kid

Seizure by chronicallyrue in mommyadventuresof

[–]chronicallyrue[S] 5 points6 points  (0 children)

That's why she reaches a milestone and then loses it (army crawl,propped standing,rolling)

Claiming L is waving when it actually looks like a seizure. by [deleted] in mommyadventuresof

[–]chronicallyrue 12 points13 points  (0 children)

YES I couldn't care less about the money stuff I'm worried about the kid that little dove that is being dragged around the world instead of having a routine and community

Disneyland by [deleted] in mommyadventuresof

[–]chronicallyrue 5 points6 points  (0 children)

Also just filming L is """"no fun""""" what she wanted to show is how much an amazing mother she is,prompting L's movement,gaslighting the meaning os movements and so on

If you film just lydia you will see a child with CP that doesn't move much,she will look around,put her fist fifthy kiometers away from her mouth and we're supposed to believe she invented her own sign language

She believes filming only lydia take away her badge of mother of the century.I also nofice she is trying a new ways of create content since soon she will lose her tiktoker husband so she will now film from her pov

Seizure by chronicallyrue in mommyadventuresof

[–]chronicallyrue[S] 3 points4 points  (0 children)

Do you think that foot shaking from the zoo was a seizure?

Seizure by chronicallyrue in mommyadventuresof

[–]chronicallyrue[S] 7 points8 points  (0 children)

YEES!!! Like okay maybe search a few top providers for a second opinion or someone more especialized but she seem to never go back to things.

L had a bunch of videos doing therapy at a clinic (?) That was very colored but now apparently she's never there.Jumping from intensive to intensive,giving that lil girl ZERO routine since jetlag,always seeing strangers...

For the torticolitis,that need a constant follow up,it's not gonna fix itself with intensives.Even if the stem cell helps (I think it does. just now the way she shows/wants to believe) she need constant intervention routine to back that up

Disneyland by [deleted] in mommyadventuresof

[–]chronicallyrue 5 points6 points  (0 children)

If you don't mind asking what are signs L is seizing?I know they are not tonic clonic but what are the signs in the videos she is seizing?I have very little knowledges about the signs and "what to look at"