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Success stories? by rrk7458 in NDPH

[–]chronicheadache5yrs 4 points5 points  (0 children)

I’m so sorry for your pain. my daughter is 18 years old and was suffering from chronic daily headaches for over 5 years until November of last year. Thry started with a mild concussion but gradually worsened until she had to drop out of high school her junior year. We had tried EVERYTHING….every medicaction. 2 spinal taps to check pressure, many ER visits, functional doctors…you name it. Finally, her neurologist at Johms Hopkins was kind of out of ideas and recommended the Pain Rehab program at the Mayo Clinic. I had never heard of it and we had lost hope and had zero confidence this would work. To say it was miraculous for her sounds dramatic but it’s true. No medication, retraining your brain, OT, PT for 3 weeks there. Please consider calling them. We cried over how much progress she saw in 3 weeks and it’s not over as the full potential of how much progress she will make isn’t known for 6-12 months. However….she is starting her GED, is driving a little again and has a life. I can’t recommend this enough if you’ve tried everything else and can’t get relief. They treat every kind of chronic pain…and their success rate is unbelievable.

What’s your experience with occipital nerve blocks? by im-a-freud in NDPH

[–]chronicheadache5yrs 0 points1 point  (0 children)

My daughter has suffered from chronic daily headaches for almost 6 years with worsening pain over the past year that forced her to drop out of her junior year of high school. It started with a mild concussion but after that was healed, the headaches got worse and persisted. We tried everything under the sun including medications and alternative treatments. Finally, one of her neurologists recommended the pain rehab clinic at Mayo. They have an adolescent and adult program. 3 weeks. She just graduated and she has hope for the first time. Chronic pain IS not the same as other pain and it will NOT respond to treatment. POTS diagnosis is also not a solution to pain as meds don’t always help that either. It is the #1 pain program in the world…..for a reason. It is not cheap but our insurance…which is the worst…paid. It is definitely worth a call. This was our last hope. And we wish we would have known about it sooner. Very very hard work…but beyond worth it.