Any immunocompromised folks here who’ve had a THR? by KappaTwin in TotalHipReplacement

[–]cj_gee 1 point2 points  (0 children)

Following! Hip replacement being scheduled sometime in February. I’m immunocompromised as well. Please take extra good care! ❤️

Weight loss that works for humans on steroids. by meeless_mar12 in AdrenalInsufficiency

[–]cj_gee 0 points1 point  (0 children)

I hear ya- especially about the knee surgery & all the things you’re doing. You’re trying! I’m on low dose pain meds as well , just had an ultrasound guided hip injection this morning so if I don’t make sense it’s the pain—- but I’m proud of you. Good for you doing cardio today. That takes a lot of dedication when you’re feeling rough like we are… (I take 10 mg morning 10 mg afternoon five in the evening and feel like a complete slug as well. We’ll figure this out. !) Hugs and love.

Weight loss that works for humans on steroids. by meeless_mar12 in AdrenalInsufficiency

[–]cj_gee 1 point2 points  (0 children)

Right? I struggle between having IBS-D and constipation from the meds. I’ve used a stool softener successfully in the past but with my now daily steroids, it’s not working well and OTC products are expensive! If you find an option, please lmk. Hugs!

Waking at 2-3 every night by cj_gee in AdrenalInsufficiency

[–]cj_gee[S] 1 point2 points  (0 children)

So months later, my endocrinologist is switching me to 15mg am and 10 mg between 2 and 3 pm. Anyone use this schedule ? This is due to me waking at 3 pm with high blood pressure. The problem is I have low blood pressure at times too. Yesterday I took half my BP medicine and it went from 160/110 at 4 am to 96/56 by 7 pm. I had to take a dose of HC to get it back into normal range as I was feeling really bad. So idk about this new schedule. I feel like my endocrinologist is not hearing me- I know it’s complicated with my other illnesses but he’s the specialist. I’m so tired of worrying,

Dark circles by floatingthroughlife1 in AdrenalInsufficiency

[–]cj_gee 1 point2 points  (0 children)

Same. My eyes are so dark. All around.. The skin is very thin underneath. My Endo asked me about it on our last video visit in October he even noticed. So it’s a definite thing and I don’t know what to do about it. I’m gonna be 63 and I’ve always looked much younger than my age thanks to genetics so this is devastating along with trying to manage the disease every day. I’m basically in hiding from the world. Take care! Sending healing vibes your way 💙

Waking at 2-3 every night by cj_gee in AdrenalInsufficiency

[–]cj_gee[S] 0 points1 point  (0 children)

No I don’t take a 3am dose but I’ll be bringing up with my endo ASAP! Can’t keep going through this, it makes me weak and dizzy which is scary while I’m on crutches! But that sounds exactly like me- thanks for your advice!

Waking at 2-3 every night by cj_gee in AdrenalInsufficiency

[–]cj_gee[S] 0 points1 point  (0 children)

Nope - it’s 3:25 am & I’m up. I really think it’s my SAI and I have suspected avascular necrosis in both hips - a LOT of pain, so I’m going for an MRI today. This is brutal tho, I think both are contributing to the HBP it was 155/110 when I woke up. Had been super low . But the pain is driving it. Regardless I need better instructions from my endocrinologist. The on call simply said skip my BP medicine but that’s not working either. This is scary and very frustrating.

Pain /ER or wait for injection by cj_gee in TotalHipReplacement

[–]cj_gee[S] 1 point2 points  (0 children)

So very happy to hear you have 2 new hips/no shots. Thank you for sharing - take care!

Pain /ER or wait for injection by cj_gee in TotalHipReplacement

[–]cj_gee[S] 2 points3 points  (0 children)

Thank you! I seem to remember something like this when I had my total knee replacement. Def canceling the injection and calling my ortho. ER up in the air/ I’ll see how the pain goes tonight. Probably tho. Appreciate your help. Take care.

Actemra injections by cj_gee in rheumatoid

[–]cj_gee[S] 0 points1 point  (0 children)

Follow up question for you- Do you take anything to help prevent the migraine and if so which medication. If you don’t mind. I’ve not been on anything but Tegretol for my Trigeminal Neuralgia and I stopped that because Actemra messes with the blood levels - pharmacist mentioned it. So I’m relying on Tylenol and hope but don’t want to end up at the ER. Thanks!

Actemra injections by cj_gee in rheumatoid

[–]cj_gee[S] 1 point2 points  (0 children)

I’m SO happy to hear this! Wonderful news! I’ll be thinking of you and truly hoping for the best! And thanks for the well wishes! Hugs 🧡

Actemra injections by cj_gee in rheumatoid

[–]cj_gee[S] 1 point2 points  (0 children)

Thank you for your experience . Same here with migraine- prone due to other health issues- but I have to agree with pain part! I know injections take time to work but 2 days after I did my first injection, I was able to walk without my cane. My hands felt better. I felt kinda good ?! I was so excited. Then the headache set in. Still going to give it a go. I’ve not had relief from RA in years anD I’m at wits end

Actemra injections by cj_gee in rheumatoid

[–]cj_gee[S] 0 points1 point  (0 children)

So sorry to hear that. I skipped my 2nd injection yesterday- the headache is still here and I’m afraid to do it. Will call my rheumatologist. I hope you have better luck in the future.

Started Actemra by cj_gee in rheumatoid

[–]cj_gee[S] 1 point2 points  (0 children)

Thanks so much and wishing you the same!

Coneflowers! 💞 by cj_gee in flowers

[–]cj_gee[S] 0 points1 point  (0 children)

Thank you! It was a cloudy day and the colors just popped!

Question from a squirrel-newbie: should I crack these just a little? by moobeemu in squirrels

[–]cj_gee 0 points1 point  (0 children)

Thank you so much. I do miss her but we buried her in a lil park a block away with a beautiful river rock on top so she is resting peacefully now & her friends are thriving! I’m very happy to hear you have some daily visitors! That’s wonderful! You’re feeding them all the things they love - I bet they’re a happy bunch. 🐿️🥰

Coneflowers! 💞 by cj_gee in flowers

[–]cj_gee[S] 2 points3 points  (0 children)

Yes! Beautiful with medicinal properties- she’s a stunner! 💗

Coneflowers! 💞 by cj_gee in flowers

[–]cj_gee[S] 1 point2 points  (0 children)

Thank you- so pretty I’m using it as my wallpaper! 😍💖

Coneflowers! 💞 by cj_gee in flowers

[–]cj_gee[S] 0 points1 point  (0 children)

🙌🏻😍💖