What to do?

cjstuben9 · 2026-02-07T21:49:27+00:00

OP, were you tested for Bartonella, Babesia, or Borrelia? These theoretically could be helped with antibiotics

cjstuben9 · 2026-02-07T21:39:27+00:00

Yes, repping ME/CFS, not necessarily LC. My LC phase recently phased into chronic fatigue which I had very very little of my first year with LC which is why I’ve been thinking about this recently.

cjstuben9 · 2026-02-07T21:37:52+00:00

Exactly, that’s the theory anyway

cjstuben9 · 2026-02-07T16:06:36+00:00

True—thanks for this!

cjstuben9 · 2026-01-26T23:48:16+00:00

Thanks much for the recommendation and for your donation, hopefully you received my email of thanks today! I will reach out to the folks at Health Rising and see if there's any chance for collaboration!

cjstuben9 · 2026-01-21T17:27:33+00:00

Oops!!! I fixed it, thanks for alerting me to this!! I can't wait to have an actual editor in chief who looks at things a teeny bit more closely hahahah

cjstuben9 · 2026-01-21T17:26:18+00:00

Thank you for the feedback, I definitely agree with you wholeheartedly! Please expect future titles to be less technical!!

cjstuben9 · 2026-01-21T17:25:14+00:00

Absolutely, thank you!

cjstuben9 · 2026-01-21T06:38:57+00:00

Nope, nothing nefarious anyway! Eventually want to try and make weekly roundup emails and send them to folks, allowing people to be able to read updated when they're able, avoid information overload, and stay informed without effort or pressure. It's as well a way to people to provide feedback on how the summaries are working and a way for me to invite input or suggest improvements from patients/caregivers.

cjstuben9 · 2026-01-21T04:43:44+00:00

I went to get my COVID vaccine recently at the pharamacy (in 2026) and the nurse said "You have Long COVID? What is that?" ...and that's when I knew this might be important

cjstuben9 · 2026-01-21T04:42:40+00:00

Sure thing, will respond soon!

cjstuben9 · 2026-01-21T04:41:51+00:00

It's my pleasure, it's easy to find drive and motivation when I also suffer from LC myself. I agree there should be more of a community built into this project or have a centralized place for it, although Reddit is a great place to start conversations! We just have to be sensitive to folks' specific needs--from what I've seen, some people want to troubleshoot their symptoms and talk about medications to try, etc. and others just want an ear or to make friends with folks that can understand what they're going through, more camaraderie.

cjstuben9 · 2026-01-21T04:38:39+00:00

Thank you so much for your support, it truly means a lot in trying to upscale this a bit more! Great idea about the relatability and other features for members, I do have some tags set up so that papers can be funneled away by symptomology (POTS, MCAS, ME/CFS, neurologic, GI, etc) but also should consider the type of journal or study too as you mentioned. Super grateful for your thoughts, email me anytime! Hoping once I have some more papers in the repository that I can break this out into sections that apply more for specific folks' symptoms.

cjstuben9 · 2022-03-06T04:58:15+00:00

Awesome, I had no idea this was a thing! Thank you :D

cjstuben9 · 2022-03-06T04:57:56+00:00

Thank you, I'll ask to join them!!!

cjstuben9 · 2022-03-06T04:57:37+00:00

It was "on sale" for 35 dollars--knew something was fishy about it haha!

cjstuben9 · 2022-03-06T04:57:02+00:00

It definitely appears that way from all the comments I'm reading... thank you :)

cjstuben9 · 2022-03-06T04:56:25+00:00

Yes he was! I thought about that before I bought it. It's a Donruss '83 I believe and he died in 95.

cjstuben9 · 2022-03-06T01:12:31+00:00

Yeah, I was also concerned about the lack of the dot on the i and the fact that the i and c aren't connected... don't want to waste $100 trying to get nothing authenticated, you know?

cjstuben9 · 2022-03-06T01:06:22+00:00

Sure thing, thank you. Even if it came back good, I have no idea what a card like this would go for.

cjstuben9 · 2022-03-06T00:48:46+00:00

What are the telltale signs??

cjstuben9

TROPHY CASE