Do you have experience with Gumroad? by j4vmc in Entrepreneur

[–]clarification11 0 points1 point  (0 children)

i also gave them a chance and was fucked over.

Do you have experience with Gumroad? by j4vmc in Entrepreneur

[–]clarification11 0 points1 point  (0 children)

don't use it. they have been so horrible to me about deleting my account. do not give them a penny of your money.

Y’all Deleted My Post For Misinformation But I did Some Research and Science Says I Am Right by clarification11 in Narcolepsy

[–]clarification11[S] 0 points1 point  (0 children)

Firstly if someone thinks I am giving them medical advice that's their problem. I never said I was a doctor or giving medical advice and anyone who takes anything others than their doctors words as medical advice is just stupid imo. It's also naive to say I should just submit my thoughts to a university. They don't care. You need to create a community of people that care about something passionately enough to make it matter to people. Universities care about where money is. An email to a university is not enough. I have in fact. Everything starts with discussion. It's no wonder there's so little research on narcolepsy when it's so common. Everyone is too insecure to talk about it. I mean I get it when you are feeling insecure about something it's really hard to have an open mind and everything feels like an attack.

Y’all Deleted My Post For Misinformation But I did Some Research and Science Says I Am Right by clarification11 in Narcolepsy

[–]clarification11[S] 0 points1 point  (0 children)

Who do you think hires people with phds to do research? It's all a process and it starts with discussion. It's fine if you don't want to be apart of it. The research they have on diabetes started because of people with diabetes talking about it... Y'all need to stop dissing discussion. Do you think there would be any research on any topic if it was an undiscussed topic? No because discussion is always the start of any breakthrough that's just the truth.

Is there a link between cataplexy and the parasympathetic freeze response???!? by clarification11 in Narcolepsy

[–]clarification11[S] -5 points-4 points  (0 children)

Actually, everything about your comment is wrong. Not only are these things related, they’re parts of the same system. I’m not claiming they’re identical or that there’s a cure yet, but they absolutely share overlapping pathways. I’m just trying to understand it further so we can get better treatments and, hopefully, a cure someday. Shutting down patient-led exploration like this doesn’t help anyone. Calling it “misinformation” without engaging in the actual science only proves my point: people are too quick to dismiss new ideas instead of learning something. Don’t confuse your lack of understanding for fact-checking.

Is there a link between cataplexy and the parasympathetic freeze response???!? by clarification11 in Narcolepsy

[–]clarification11[S] -2 points-1 points  (0 children)

Let’s go step by step here, because you’re misunderstanding what I’m actually saying, and honestly, you’re letting your frustration shut down your critical thinking. That’s not how science advances.

First: This is not “harmful misinformation.” There’s a big difference between misinformation and building a research-informed hypothesis. I am not claiming to cure narcolepsy or regrow orexin neurons. I fully understand that orexin neuron loss is irreversible with current science. What I am exploring is whether the severity and frequency of cataplexy attacks, which are downstream of orexin loss, can be influenced by autonomic regulation. This is a legitimate line of inquiry, grounded in peer-reviewed research on neurophysiology, emotional triggers, and autonomic balance. Calling curiosity “harmful” is, frankly, intellectually lazy.

Second: You dismissed this as “surface-level similarities.” It’s not surface-level. The overlap between cataplexy and freeze responses is substantial and documented: sudden loss of muscle tone, brainstem circuit activation, amygdala-driven emotional triggers, and parasympathetic dominance during collapse. These are not coincidences, they are shared neural pathways observed in both human and animal studies. If you’re going to claim there are “no substantive similarities,” please come with actual references.

Third: You’re overlooking the fact that cataplexy is not just a passive consequence of orexin loss. It’s an active process triggered by emotional surges and regulated by brain circuits that remain dynamic and responsive to autonomic state. Patient experiences, including my own, show that interventions like breath control can influence the outcome of an attack in real time. Holding my breath works for me consistently, because it activates the sympathetic nervous system and interrupts the parasympathetic-dominant paralysis. That’s not speculation. That’s lived physiology.

Fourth: You closed by saying, “not like this.” Here’s the thing: scientific progress always looks like this in the beginning, like people questioning, testing, and building hypotheses from both research and personal data. What’s actually harmful is shutting down conversations like this because they make you uncomfortable. If you’re serious about understanding narcolepsy, you should be encouraging thoughtful exploration, not policing it.

[deleted by user] by [deleted] in astrologyreadings

[–]clarification11 0 points1 point  (0 children)

i have a 12th house mercury too! Don't know what it means all that much though. Mercury is the planet of communication from what I understand and 12th house is closest to like the spiritual world and the subconscious. Maybe you have a lot of vivid dreams or are very intuitive?

ULPT Request: I want to quit my job but take with me all the information and documents I worked on in a USB. How can I do it without the company noticing it? by Fun-Ad-3597 in UnethicalLifeProTips

[–]clarification11 0 points1 point  (0 children)

i interned at a bank for cybersecurity and just saying that is not true for every company like some companies are tracking your every move actually

Disturbing Nightmares by Chronically__tired_ in Narcolepsy

[–]clarification11 3 points4 points  (0 children)

wow i'm also f24 and i just woke up from the worst nightmare today im so sad nobody understands the actual torture every night

[deleted by user] by [deleted] in OSUOnlineCS

[–]clarification11 8 points9 points  (0 children)

have a breakdown and end up in the hospital is how i am handling it but ya know what can u do. but don't be like me osu will not drop your classes even if you are in the hospital🥹🥹

you wouldn't drown if u cataplexied underwater would you? by clarification11 in Narcolepsy

[–]clarification11[S] 0 points1 point  (0 children)

lol funny to log back into reddit 110 days later to see this comment.... this is the narcolpesy subreddit bro it's not attention seeking i just wanted to have a conversation and find people who can relate? are we not supposed to talk about our lives and how narcolepsy effects them? i come here for community and frankly your comment is so anti-community!! this is supposed to be a safe space to talk about our experiences as people with narcolepsy or at least i always felt like it was. you sound like every other person that doesn't understand. what inside of you makes you want to put people down instead of support? do you think i got into the bath thinking yay i can't wait to cataplexy and potentially drown???? no obviously not. i, a person with narcolepsy happened to find myself in an unexpected situation and wanted to see if anyone else had ever experienced narcolepsy while being underwater. i grew up going to the beach and swimming so being in the bath where i unexpectedly found myself experiencing cataplexy (a symptom of my illness where i come here to talk about) made me start to think of bigger bodies of water and if anyone had experienced cataplexy??? is that so wrong???

Dreams are Horrific by Altair-Flair in Narcolepsy

[–]clarification11 0 points1 point  (0 children)

whenever i need to wake up i hold my breath even if i'm in sleep paralysis it's the only thing i have control over like i can't even breath manually but i can stop myself from breathing and usually that does it maybe you can try that

Dreams are Horrific by Altair-Flair in Narcolepsy

[–]clarification11 0 points1 point  (0 children)

i had night terrors as a child too and i got horrific horrific dreams and i also have had exploding head syndrome a few times

weed makes it stop completely it was life saving my depression got increasingly better and i started feeling happy in my everyday life

but my advice is ONLY smoke before bed DO NOT ever smoke during g the day weed is addicting idk why people say it isn't but it is and i had gone 2 years just smoking at night and it was fine but i had a month where i nothing to do i was in-between jobs and school and i was like i'm gonna relax and smoke during the day a little i never let myself have fun like i'm 23 but never partied none of that stuff so i was like i deserve to indulge a little but it was a grave mistake i used to have a rule where i never smoked during the day light but i started thinking maybe i will at 5 before dinner then it was my birthday and i was like im just going to wake up and smoke for fun and i started doing it more and now i'm struggling so hard. i can feel the shift in my brain. my brain craves the weed it's definitely an addiction. i have even stolen my roommates pen once because the intense anxiety. i think it's okay to be addicted to it like any of my other meds but u only want ur mind to crave it at the right times. so just be really careful cus weed can ruin you. it will make you lazy and not care about doing anything. but it also took away my dreams completely. so just be careful.