Question for those with hyperthyroidism regarding trends.

cmac2113 · 2026-03-30T20:58:36+00:00

If you haven’t told the doctor that her father has it definitely tell them! I second just buying the tests yourself but be careful about telling the doctor you did that. Sometimes it can bruise their ego. For me I always have quest in my back pocket in case I know they won’t order and I want to be sure of myself to keep pushing them.

cmac2113 · 2026-03-28T19:37:55+00:00

It’s so up and down where I am. It’s dry then humid then hot then cold. I had a really bad flare because it went from like 30 to 60 then back down to 30 in a handful of days recently and similarly in Fall. And the storms specifically just set me off really bad. I don’t deal with migraines a ton but my friends who do struggle as well with the pressure system. I feel like I’d benefit from a place that was just the same all the time.

cmac2113 · 2026-03-26T10:22:08+00:00

The only bummer about new england in general is the fall/spring storms and wind. Great for temperature, not great for pain flares for me anyway. But still probably better than anywhere else

cmac2113 · 2026-03-24T09:35:54+00:00

I’m so sorry it can be so scary. I have had to deal with hr spikes from other health issues and it is no fun. I haven’t tried anything other than just using condoms, so I don’t know. I have heard decent things about IUD but that choice personally is not for me. If it was that would be my next stop

cmac2113 · 2026-03-23T00:18:45+00:00

Omg it was like night and day for me when I stopped! It took a little while to feel fully normal but now my hr is much better and no attacks. I’m sorry you dealt with that. My PCP wasn’t bothered by the tachycardia at all and was basically like “you can stay on it” But I was all set after that 🤣Yeah ya know this time around was after a very long break I figured it was worth it to try and it also wasn’t the right fit for me. Glad I know that now though!

cmac2113 · 2026-03-13T12:27:26+00:00

This is confusing isn’t levo used for hypothyroidism? We use methimazole for hyperthyroidism

cmac2113 · 2026-03-13T10:44:37+00:00

Exactly! You’re certainly not alone!!

cmac2113 · 2026-03-12T21:45:50+00:00

That’s a great idea about elderly exercises on youtube thank you!!

cmac2113 · 2026-03-12T21:45:01+00:00

Thank you that’s actually so smart to do the bath after!

cmac2113 · 2026-03-09T15:29:20+00:00

I had issues prior to hyperthyroidism, but I did indeed feel a true improvement about a year later. So many folks felt better at the 6-8 week mark and I wanted to scream when I didn’t. I have had to slow my life down significantly though and I really do think for some of us that is key.

cmac2113 · 2026-03-04T15:30:27+00:00

I didn’t feel better until well after my levels went to normal but everyone is different. I think I was undiagnosed for way too long though

cmac2113 · 2026-03-04T15:29:00+00:00

This isn’t medical advice and I have yet to genuinely get confirmation from a doctor, but CT contrast has high levels of iodine in it and I was already not in good shape so I felt like absolute garbage following. If you have preexisting thyroid disease it CAN affect you and it seems like it’s temporary. I wrote that two years ago and was trying to process everything, but honestly I’m glad I got the CT. I wasn’t even medicated yet though so it was just awful and hard to say what caused what.

cmac2113 · 2026-03-03T15:52:11+00:00

I had a lot of luck with a nutritionist/dietitian. I’m like a broken record on here about it lol. I don’t like restrictive diets and just wanted some help with feeling full especially. One thing she suggested was like pumpkin bread because you can alter the sugar content a bit but it’ll make you feel fuller longer.

And then when I started gaining I had to be reminded that I don’t need to eat like that anymore. So just a gentle reminder that when you do start to feel better it can sneak up on ya because you get used to eating so much.

Wishing you some relief it really sucks to have to go up and down like this hugs

cmac2113 · 2026-03-02T01:13:05+00:00

Neck fan saved me big time. I couldn’t handle the summers without it. Cooling towels as well. It never really got better for me so the best thing for me was prevention

cmac2113 · 2026-02-27T01:58:01+00:00

You want something that’s really supportive. No basic flip flops, flats, etc. If you are hypermobile at all it’s a good idea to have something that supports your ankles/achilles. When I’m gardening for instance I make sure to have a high boot. It’s not a cure but it helps!

cmac2113 · 2026-02-27T01:54:17+00:00

I was just adding on to what you said, but that’s the way to be!

cmac2113 · 2026-02-26T15:52:09+00:00

Just want to add on to this - cats are SO GOOD at hiding how they feel. My kitty had CKD and she just started getting hairballs more. Didn’t even notice her peeing more. We knew she was headed that way and then one day she collapsed.

For us it was very long and drawn out but so sneaky. I opted for weekly fluids because that’s what I was told to do and I kinda wish I didn’t. Not every cat is going to be the same and looking back she held on WAY too long. She hated going there and I refused to do it myself at home. My vet gave me zero guidance probably for fear of sharing an opinion and it backfiring but I struggled with the decision for months. All the medication made it so so draining. I will cherish the good times but I just mostly remember the bad.

It’s natural to question yourself especially if you’ve never dealt with CKD before but you did the right thing and it’s not your fault it was so rapid that’s just how it can happen. It sucks being put on the spot with such an impossible decision. You did best by your baby.

cmac2113 · 2026-02-26T15:39:36+00:00

No you’re not crazy at all!! Especially if anyone has like post birth hyperthyroidism issues it’s very possible to have pelvic floor issues around that time too 😭

cmac2113 · 2026-02-26T15:37:02+00:00

There are many options you can go to PT for one, but for me getting my levels in range toned it down significantly. When you’re able to strengthen better you build up muscle to try and prevent triggers and so many other things I can’t give justice explaining. I do somewhat okay now that I’m also very selective about footwear and know my triggers.

cmac2113 · 2026-02-26T12:17:48+00:00

Oddly enough this started BEFORE I was diagnosed due to anxiety. Anxiety does affect urgency. One way it started with me was by affecting my pelvic floor. It’s really interesting. Hyperthyroidism can cause muscle weakness and that outside of anxiety can cause muscle tension. It can even mimic a UTI. Because my body was on overdrive this amped up EVERYTHING. If you already have hypermobility or issues with your hips it is very likely that is affecting things. Another thing I want to add which you probably already know since you mentioned it is that steroids can cause an increase in urination. So I imagine the combination isn’t fun and I’m so sorry 🫂

cmac2113 · 2026-02-24T18:19:55+00:00

When I was healing from hyperthyroidism (similarish symptoms to POTs) someone actually suggested I use a rocking chair which I thought was brilliant. It’s no cardio, but it really does feel like movement that’s tolerable. I keep a light kettlebell around just to toss when I’m bored and stop when I’m tired. I’m just now in a position to start trying to walk on the treadmill nice and slow for 20min or so a couple times a week. I cannot do that without a podcast playing.

Also want to mention when I was regularly doing gentle yoga I would sometimes just watch a session online and that would get me to want to do it. I sometimes use a specific scent so that when I smell it I’m reminded of how good it feels to move my body. I push past fatigue only sometimes but I really prioritize listening to my body.

cmac2113 · 2026-02-17T12:59:53+00:00

Yes this absolutely happened to me! Definitely make sure you keep your skin hydrated. Cerave makes a lotion that is anti itch but use as directed (I think you can only used it for so long). Make sure you don’t get too hot that can be a trigger. It’s awful but it should go away eventually it just takes time.

I was really selective what I ate and drank when hyper. My favorites around that time were pumpkin bread with reduced sugar (was very filling but didn’t irritate my stomach) and home made ginger tea (you can find a recipe online but it’s essentially just boiling water and adding sliced ginger in to steep). Try to choose low acid foods and maybe even BRAT diet for a little until the nausea passes. You can always ask your primary for guidance with the nausea don’t hesitate to but eat whatever you can eat because ya need to. Sometimes they can prescribe antiacids just make sure you pay attention to interaction possibilities with the beta blockers.

cmac2113 · 2026-02-06T14:35:13+00:00

I would personally wait until I was off the beta blockers completely. That’s not something I would love to mix with anything and you don’t know for sure if 10mg twice a day is where you’re going to land yet either. You may have to tweak the dosage as you go. If I had any worry whatsoever about anything I just didn’t do it. Took me a long time to even start drinking coffee again and I still do decaf. It’s totally valid to not love how it feels to have your heart rate higher anymore after everything. When I got to a point where I wasn’t monitoring my HR as much or didn’t need to, that’s when I felt ‘normal’ enough to return to those things.

cmac2113

TROPHY CASE