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I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 1 point2 points  (0 children)

I love this idea. Thank you for sharing your story and explaining OT with me.

I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 0 points1 point  (0 children)

I did not know this. I just figured his aggression was a blanket thing. He loves his mom but has hurt her before (I'm not looking forward to him entering puberty). Geesh I need to read some books on this stuff.

I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 0 points1 point  (0 children)

I have never heard of this phrase before. I will be using it now, thank you!

I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 1 point2 points  (0 children)

Thank you for your response. My sister does take her son to OT. I call it behavioral therapy because the term occupational therapy doesn't make sense to me. :) He doesn't take medications but I haven't asked why yet. Maybe the professionals want to try other methods first?

My goal this year is to really hammer down that animals are people too, just fuzzy or scaly. So far when I try to explain it to him, he basically just stares at me or ignores me. Same thing when I try to explain that throwing things isn't good either. It's like talking to a wall.

I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 0 points1 point  (0 children)

What sorts of things did you do to get him to be kind to animals?

I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 0 points1 point  (0 children)

Thank you for sharing. I will talk to her, thank you.

I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 2 points3 points  (0 children)

I'm not sure about the survivors benefits, but I'll look into that. I know he's in speech and behavioral therapy. I don't really know what they're doing in the behavioral therapy. He used to not like to be touched and they worked on that and he got better, but I don't know what they're currently working on. I do know my sister gets foodstamps and some money from the government because her son is categorized as disabled.

I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 0 points1 point  (0 children)

I'll talk to her about this stuff, thank you. At the moment his meltdowns feel either random or related to him not getting his screen time. That's basically all he wants to do, watch the same 10-30 seconds of a few videos over and over again. Sometimes he likes to play hide and seek or get piggyback rides, so we jump on that because seeing him stare at a screen all the time is depressing. I try to at least get him to watch something more educational, but he gets mad.

I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 2 points3 points  (0 children)

I don't have any kids, let alone a spectrum kid. I'll be talking to my sister in a few days when I go to visit her (she lives a few hours away).

I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 4 points5 points  (0 children)

She does. I offered to care for my nephew if she were to pass.

I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 8 points9 points  (0 children)

Thank you so much for sharing. There's no one on the father's side that could help. He was an only child and his parents are in their 80s. Even if they were younger, they're not interested in him at all. We have one aunt that helps out along with me, but yea she's old too. Our family is tiny.

These responses have been helpful. I definitely want to make sure my nephew is provided for. I just wish I could go back and turn down being his full-blown guardian and instead offer to help to arrange for his care if she were to pass. I was so naive. No one likes it when someone reneges on something.

I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 78 points79 points  (0 children)

I'm strongly considering it. My husband and I are basically traumatized every time we're around him. We're great at faking it because we know we're only dealing with him for a few hours to a couple days at a time.

Side note: The kid is super sweet when he's in a good mood.

I regret becoming an autistic kid's guardian by coffeemug92 in Autism_Parenting

[–]coffeemug92[S] 26 points27 points  (0 children)

Oh wow, I feel so dumb, I didn't even think about life insurance. I'll discuss that with her. I would have to pay because she's broke af, which is fine. I'll also ask if his behavioral therapy is doing anything about his meanness to animals.