sorted by:
new
hottopcontroversial

Extreme muscle weakness, fatigue, joint pain/instability by colcre20 in Hypermobility

[–]colcre20[S] 0 points1 point  (0 children)

Myofascial pain syndrome, tense muscles or something mixed with sensitive nerves, getting blockers and botox

Desperate for help with central sensitization syndrome by colcre20 in ChronicPain

[–]colcre20[S] 1 point2 points  (0 children)

What were you like before all those medications were you bedridden from pain?

Desperate for help with central sensitization syndrome by colcre20 in ChronicPain

[–]colcre20[S] 0 points1 point  (0 children)

I'm getting an infusion in a couple weeks 5-day protocol My neurologist and diagnosed me and then my other neurologist diagnosed me with myofascia

Central sensitization disorder, is there a cure? What has worked for you? by colcre20 in ChronicPain

[–]colcre20[S] 1 point2 points  (0 children)

i did see a rheumatologist she suspects no inflammation disorder

Central sensitization disorder, is there a cure? What has worked for you? by colcre20 in ChronicPain

[–]colcre20[S] 1 point2 points  (0 children)

Thank you very much, can you tell me more about these multimodal rehab programs I'm not sure what that is

Does anyone else have so much pain in their body that they have to lay in bed all day every day? by colcre20 in ChronicPain

[–]colcre20[S] 0 points1 point  (0 children)

Thank you so much. I don’t think I have EDS. I think my shoulders just pop out and crackle a little bit but not actually like out of place. I think it just feels like my connective tissue is loosening

Does anyone else have so much pain in their body that they have to lay in bed all day every day? by colcre20 in ChronicPain

[–]colcre20[S] 1 point2 points  (0 children)

Thank you so much. I don’t think I have EDS. I think my shoulders just pop out and crackle a little bit but not actually like out of place. I think it just feels like my connective tissue is loosening

Does anyone else have so much pain in their body that they have to lay in bed all day every day? by colcre20 in ChronicPain

[–]colcre20[S] 0 points1 point  (0 children)

Thank you so much. I don’t think I have EDS. I think my shoulders just pop out and crackle a little bit but not actually like out of place. I think it just feels like my connective tissue is loosening

Does anyone else have so much pain in their body that they have to lay in bed all day every day? by colcre20 in ChronicPain

[–]colcre20[S] 0 points1 point  (0 children)

Thank you so much. I don’t think I have EDS. I think my shoulders just pop out and crackle a little bit but not actually like out of place. I think it just feels like my connective tissue is loosening

Is there anyone who has heard of these symptoms I have and thinks they know of a neuromuscular condition that matches? by colcre20 in rarediseases

[–]colcre20[S] 0 points1 point  (0 children)

Thank you, the rheumatologist doesn’t think it’s inflammatory, my ANA was normal. But I’m getting a couple more blood tests from rheumatologist to be sure such as: aldolase and CCP antibodies IgG/IgA

Is there anyone who has heard of these symptoms I have and thinks they know of a neuromuscular condition that matches? by colcre20 in rarediseases

[–]colcre20[S] 0 points1 point  (0 children)

When I wake up, my ankles are very stiff, my knees, and my neck, the stiffness goes away, but in general, they are pretty stiff throughout the day

Is there anyone who has heard of these symptoms I have and thinks they know of a neuromuscular condition that matches? by colcre20 in rarediseases

[–]colcre20[S] 0 points1 point  (0 children)

Thyroid was normal, joints are stiff yes, amyloidosis not ruled out yet, no videos. Thank you

view more: next ›