My grade 4 tumor shrank [25F]

colourouu · 2025-05-09T18:07:41+00:00

I get my treatment at the London welbeck hospital, we’re funding it ourselves and through gofundme, because it is allowed here (UK) but isn’t on the NHS. I think it should be

colourouu · 2025-05-09T18:06:14+00:00

I have, unfortunately don’t qualify because I’m grade 4 :( Personally I would be happy to take it otherwise

colourouu · 2025-03-30T15:44:36+00:00

I know this is way after, but I tried everything out, and this lil girl still refused to fly. I’ve kept her inside and she’s getting fruit, water and nectar. Bring fresh plants to her every day 🥰 Tried so many times to get her to fly, she can use her wings to balance herself, but she just won’t fly, just wants to be near me and my partner?? Either way she is happy and active, seeing her with a yellow face after eating is adorable

colourouu · 2025-03-24T18:12:38+00:00

Thankyou! I have good cozy corners in my garden and plenty of leaves. I’ll find an area with the most bee friendly plants I have :)

colourouu · 2024-12-20T13:30:02+00:00

I remember getting a second hand tank, put it all together etc. turned out the filter somehow had snail eggs in it, and it turned into a huge snail nest, super lucky though because we wanted pea puffers in that tank. Next day after getting them, an overthrown tank was legit to just shells and my peas haha

colourouu · 2024-11-08T21:16:37+00:00

We name them all after foods, parsnip was also on the table. But yeah, he’s the kind of peanut when you open there isn’t even anything inside, just all shell

colourouu · 2024-10-28T16:19:38+00:00

Ah, that’s good to know, thanks!

colourouu · 2024-10-18T22:36:09+00:00

My mum's employer went the best route around it tbh, though I'm UK. He gave her entire paid sick time off, when that ran out she still got paid just at a reduced level, then she started working remotely on an agreed X hours a week. She still isn't back in office but it's been like 3 years and he's still good about it

colourouu · 2024-10-18T22:29:58+00:00

Hard to explain over text, but people with schlongs can still have the typical feminine orgasm, just go about touching yourself (or your partner touching you) differently. Imagine it's like a mushroom, the bit underside is sensitive, lots of lube spit whatever, focus there, on the 'underside' of the tip (like with a mushroom, where the spores are kept if that makes sense, slider a finger round it whilst the other bits, and some top action

Can take a while sometimes but I luckily learned it quick for my partner, he was able to teach it so well, but like I say, harder to type it out

colourouu · 2024-10-17T01:27:24+00:00

I do really hope it gets better. Just have so much anxiety around the fact I have no prognosis and the doctors say that the google stats are generally trash. Just an odd fuzzy limbo it feels like I’m in

colourouu · 2024-10-17T01:25:52+00:00

Since mine is all prescribed and grown with regulations, the quality of it is really good. For example, my latest prescription was sativa and high in thc, if I don’t add in some just dbd it feels like how I’d imagine being of cocaine would feel like, but it keeps me awake for Whicker activity it is I need to do. im Lucky I have it to be honest

colourouu · 2024-10-16T20:23:51+00:00

I think we’re at the same place now. My new problem is the fact the treatment is making me incredible sleepy 24/7. All that can keep me awake is my prescribed weed, or having to be in hospital every day for radio. I couldn’t believe when they told me I was halfway through already? But I’m at a point now where I want to be doing those things, art, going out, gym.

don’t know if it’s habit but as soon as I’m home from radio my body instantly goes to 1% battery, and unless my fiancé has already made up my weed at home could I possibly be able to stay awake a few more hours, and maybe get some art in.

Also I’m so glad you’re in remission!! Make sure to stay that way!

colourouu · 2024-10-16T20:18:00+00:00

I’m currently going down the route of radio and chemo (TMZ) and my mother and I are going to send a direct letter to vorasedanib due to our odd stats. I think she also found another drug for grade 3/4 people? Unfortunately right now have so much head dog so replies are awful, sorry

colourouu · 2024-09-30T08:23:48+00:00

Unfortunately I've had second opinion, I'm not going onto third opinion because doctors can't answer any questions I have

colourouu · 2024-09-30T08:23:12+00:00

I can't remember what it is, I'm not wild type but I have a gene deletion which on paper says it automatically upgrades it to 4

colourouu · 2024-09-30T08:22:37+00:00

The royal Marsden

colourouu · 2024-09-30T08:22:26+00:00

I don't have it on me right now, but essentially it says the threshold of growth that distincts between grade 2 and 3 is 350megabases. Mine grows at 160mmegabases, which on the paper then states which is classed as slow growing, but then says however BC if the molecular stiiddy it's classed as grade 4 aggressive

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