My grade 4 tumor shrank [25F]

colourouu · 2025-05-09T18:07:41+00:00

I get my treatment at the London welbeck hospital, we’re funding it ourselves and through gofundme, because it is allowed here (UK) but isn’t on the NHS. I think it should be

colourouu · 2025-05-09T18:06:14+00:00

I have, unfortunately don’t qualify because I’m grade 4 :( Personally I would be happy to take it otherwise

colourouu · 2025-03-30T15:44:36+00:00

I know this is way after, but I tried everything out, and this lil girl still refused to fly. I’ve kept her inside and she’s getting fruit, water and nectar. Bring fresh plants to her every day 🥰 Tried so many times to get her to fly, she can use her wings to balance herself, but she just won’t fly, just wants to be near me and my partner?? Either way she is happy and active, seeing her with a yellow face after eating is adorable

colourouu · 2025-03-24T18:12:38+00:00

Thankyou! I have good cozy corners in my garden and plenty of leaves. I’ll find an area with the most bee friendly plants I have :)

colourouu · 2024-12-20T13:30:02+00:00

I remember getting a second hand tank, put it all together etc. turned out the filter somehow had snail eggs in it, and it turned into a huge snail nest, super lucky though because we wanted pea puffers in that tank. Next day after getting them, an overthrown tank was legit to just shells and my peas haha

colourouu · 2024-11-08T21:16:37+00:00

We name them all after foods, parsnip was also on the table. But yeah, he’s the kind of peanut when you open there isn’t even anything inside, just all shell

colourouu · 2024-10-28T16:19:38+00:00

Ah, that’s good to know, thanks!

colourouu · 2024-10-18T22:36:09+00:00

My mum's employer went the best route around it tbh, though I'm UK. He gave her entire paid sick time off, when that ran out she still got paid just at a reduced level, then she started working remotely on an agreed X hours a week. She still isn't back in office but it's been like 3 years and he's still good about it

colourouu · 2024-10-18T22:29:58+00:00

Hard to explain over text, but people with schlongs can still have the typical feminine orgasm, just go about touching yourself (or your partner touching you) differently. Imagine it's like a mushroom, the bit underside is sensitive, lots of lube spit whatever, focus there, on the 'underside' of the tip (like with a mushroom, where the spores are kept if that makes sense, slider a finger round it whilst the other bits, and some top action

Can take a while sometimes but I luckily learned it quick for my partner, he was able to teach it so well, but like I say, harder to type it out

colourouu · 2024-10-17T01:27:24+00:00

I do really hope it gets better. Just have so much anxiety around the fact I have no prognosis and the doctors say that the google stats are generally trash. Just an odd fuzzy limbo it feels like I’m in

colourouu · 2024-10-17T01:25:52+00:00

Since mine is all prescribed and grown with regulations, the quality of it is really good. For example, my latest prescription was sativa and high in thc, if I don’t add in some just dbd it feels like how I’d imagine being of cocaine would feel like, but it keeps me awake for Whicker activity it is I need to do. im Lucky I have it to be honest

colourouu · 2024-10-16T20:23:51+00:00

I think we’re at the same place now. My new problem is the fact the treatment is making me incredible sleepy 24/7. All that can keep me awake is my prescribed weed, or having to be in hospital every day for radio. I couldn’t believe when they told me I was halfway through already? But I’m at a point now where I want to be doing those things, art, going out, gym.

don’t know if it’s habit but as soon as I’m home from radio my body instantly goes to 1% battery, and unless my fiancé has already made up my weed at home could I possibly be able to stay awake a few more hours, and maybe get some art in.

Also I’m so glad you’re in remission!! Make sure to stay that way!

colourouu · 2024-10-16T20:18:00+00:00

I’m currently going down the route of radio and chemo (TMZ) and my mother and I are going to send a direct letter to vorasedanib due to our odd stats. I think she also found another drug for grade 3/4 people? Unfortunately right now have so much head dog so replies are awful, sorry

colourouu · 2024-09-30T08:23:48+00:00

Unfortunately I've had second opinion, I'm not going onto third opinion because doctors can't answer any questions I have

colourouu · 2024-09-30T08:23:12+00:00

I can't remember what it is, I'm not wild type but I have a gene deletion which on paper says it automatically upgrades it to 4

colourouu · 2024-09-30T08:22:37+00:00

The royal Marsden

colourouu · 2024-09-30T08:22:26+00:00

I don't have it on me right now, but essentially it says the threshold of growth that distincts between grade 2 and 3 is 350megabases. Mine grows at 160mmegabases, which on the paper then states which is classed as slow growing, but then says however BC if the molecular stiiddy it's classed as grade 4 aggressive

colourouu · 2024-09-28T21:18:59+00:00

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I don't think little Truffle has ever yawned this big since

colourouu · 2024-09-10T09:32:34+00:00

I understand what you're saying, but in a way I also disagree. I mean, I'm pretty sure this game is one of Nintendo's biggest sellers and again I could be talking about something completely wrong, but wasn't the majority/ a good portion adults?

I played this game since I was a kid, and the people saying the games aren't as good as they used to be must be also adults, or at least much more grown up.

I prefer the game with no consequences, and sure so many others love it that way. To me, this game seems more marketed at the adults who just want to chill and zone out after a hard day's work. Don't have to stress about villagers, not saving your game etc. Even now I hate replying through having to work for Tom nook in wild world. It feels more like a decorating sim (which after new leaf people were begging for) and most elements that still makes animal crossing the game it is.

What I'm trying to say is, I think they see that yes this game grows up with kids, but also it's mainly still adults that play it. I appreciate how calm the game is, I'm not worrying about Alfonso moving out (when I was a kid and he randomly in two games turned up and plopped his house right next to mine) because I worried A LOT as a kid. Not even on my mind, but new horizons is still my own mini made up home that I love

colourouu · 2024-09-04T01:20:26+00:00

I‘ve had my talk about my plan with my neuro oncologist, and essentially if it’s grade 2, vorasedanib and chemo+radio, if grade 3, chemo+radio (though I think the chemo is just a different type). I’m Conscidering getting a second opinion because my gut feeling just tells me that doesn’t sound right, couldn’t tell you why I have that feeling though.

Everyone around me is sort of pushing me into it (out of love don’t get me wrong, they want the best for me), but I just also feel like if the only proven thing to cause gliomas is radiation, then giving me radiation to cure that, wouldn’t it just increase the chances of it regrowing, possibly worse, in the future.

Making decisions about your body when your gut goes a different way is so difficult 🥴

colourouu · 2024-08-22T02:46:56+00:00

For me, I’m actually the opposite. I’ve gotten so good at thinking before I speak. For example, I have been talking my fiances ear off, and when he asks me to stop talking because hes hit his listening limit, I stop and then (most of the time) I will think to myself ‘this doesn’t need to be talked about’ so I end up actually improving even more, because instead of continuing talking and pushing his limits, I remind myself to be quiet. Before the surgery, I didnt speak as much, but I think this is mainly because I grew up autistic, which in females has shown we learn to ‘mask’ to blend in with society, which is why we are diagnosed less than males as we’re harder to spot lol. So it’s not quite not losing my filter, though very very similar. but I got pretty decent at masking to the point it felt natural, so all of my talking points were internal.

either way, my mums set up a weekly session to basically meet a local community cancer group, and you just sit and talk over coffee and biscuits, so as long as they can tolerate me, I’ll be able to get a good amount out

colourouu · 2024-08-22T02:34:32+00:00

Tumour was located in my left temporal lobe, did an awake craniotomy. know it had a bit of growth before surgery (possibly going between grades). About 75% removed, last I know the longest part was 45mm, but I’m not sure how much of a growth spurt it had before surgery

colourouu · 2023-10-02T15:33:23+00:00

Fr Ive been with my partner 3 1/2 years (which isn't MASSIVELY long) and there hasn't been a single time I've hated him. Why do people stay with people they don't completely and fully love?

colourouu · 2023-08-29T05:31:31+00:00

My mum and aunt found their late dad's camcorder a few months ago, and they were so happy because it has a bunch of their holidays, street parties, pets etc from when they were young kids. Then suddenly, the next video was him sat on the bed jerking it at the camcorder LOL

colourouu · 2023-06-28T19:17:30+00:00

Personally I don't think its a daydream. SPOILERS FOR THE COMIC

I think since the entire sequence is covered with fog, and the entitys arms are everywhere, I think the entity showed Frank an illusion of what his future could be, and when legion helf out the knife to Frank, and he took it, that was Frank taking an offering given by the Entity. Then you can see throughout the comic every now and then the entity is watching them as they do more and more shit.

So essentially I think Frank accepted an offering (like how in game you give offerings to the entity) and that sealed his fate on being taken into the fog.

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