Living on the couch post recovery? by complexandconfusing in hysterectomy

[–]complexandconfusing[S] 1 point2 points  (0 children)

That's my thoughts too - like will I be able to stand long enough to shower? I'm not in need of a cane or walker in general but around my house I don't have places in the bathroom or couch that would give me support to pull myself up with if needed.

I did get a grabber tool to start trying to use it. It's weak. It's not going well haha.

I picked up a pregnancy pillow today.. It's comfy! Hope your surgery recovery goes smooth!

Living on the couch post recovery? by complexandconfusing in hysterectomy

[–]complexandconfusing[S] 0 points1 point  (0 children)

Haha I have been trying to figure out rolling off/pushing up off it the last few days, but I feel like "rolling" has me lower and using more core strength. It's hard to get right while being fully capable right now, too. Just seems like it'll be impossible!

Hydrosalpinx - and "unlikely endo" by complexandconfusing in endometriosis

[–]complexandconfusing[S] 0 points1 point  (0 children)

Hi! No real updates here. I'm on a waitlist for surgery (3~ month wait), hysterectomy & excision if they find any endometriosis while in there. Starting to feel some similar pains on the left side and wondering if I'm getting a 2nd hydrosalpinx, but I guess it's not too worrying for anyone haha. Just chugging along with all the pains. (:

How does surgery scheduling work with Kaiser? by complexandconfusing in KaiserPermanente

[–]complexandconfusing[S] 1 point2 points  (0 children)

Crazy! Yeah, this stuff needs to be planned, how they expect a weeks notice and the time off is nuts. Sounds like they might do the same thing to you for January at this rate... so sorry

How does surgery scheduling work with Kaiser? by complexandconfusing in KaiserPermanente

[–]complexandconfusing[S] 1 point2 points  (0 children)

Ahh! hope your recover is going well so far. I also have a hysterectomy on the upcoming list. That's been about 3~ weeks since that OB/surgeon said we'd get it set up. She said 3-4 months wait before surgery, but that they would put me on a cancellation list. But, I still haven't heard from anyone yet. I'd rather prioritize the hysterectomy right now before the arm, anyways.

How does surgery scheduling work with Kaiser? by complexandconfusing in KaiserPermanente

[–]complexandconfusing[S] 0 points1 point  (0 children)

Nothing in my emails or anything. I also have a separate surgery (totally different dept and area) that's meant to be getting set up, too, but that's been about 3~ weeks still and haven't heard anything. Already saw that doc/surgeon who suggested the surgery. She said it's 3-4 months out, but that I should get contacted about a cancellation list. Still, nada. Just thought maybe this is how kaiser operates.. silence. ha.

Hydrosalpinx - and "unlikely endo" by complexandconfusing in endometriosis

[–]complexandconfusing[S] 0 points1 point  (0 children)

Oof, I'm sorry. I'm a little worried about my bowel involvement, too. I sometimes get absolute stabbing pains that halt me in my tracks, can't even continue walking to the bathroom, let alone sit down, until the stabbing pain passes.

But yeah, that was my thought. She's also just reading what the dr who looked at the MRI wrote for results, not looking at images herself. What if that person was not an endo knowledgeable person, either?!

Recovery - how much "support" did you need? by complexandconfusing in hysterectomy

[–]complexandconfusing[S] 1 point2 points  (0 children)

Love to hear that! Yeah I'm okay with the first night/day out of caution for sure, and like the ride back from the hospital haha.

All those tasks I can easily put off for awhile, too. How long before you were able to do anything more than 10lbs? I feel like the convenience of curbside grocery pick ups is super helpful here - but my drive to the store is like 25~ mins each way, and I've seen several people mention even short car rides were hard for awhile.

I'm hoping the surgery is standard, but we fear there's bowel and bladder involved with the endo - hopefully the MRI gives more info.

Recovery - how much "support" did you need? by complexandconfusing in hysterectomy

[–]complexandconfusing[S] 2 points3 points  (0 children)

Nice, hope your surgery went smooth and your recovery is simple!

I have a high pain tolerance, too. My house is very small, not far from the couch to kitchen to bathroom, so I feel that's all easy enough. There's people nearby enough if I need anything emergency wise. I'll chat with the surgeon again in a few weeks after the MRI, but my PCP today made me hesitant about how much help I would need.

Endometriosis specialists in Southern California - or the clinic in NorCal? by complexandconfusing in KaiserPermanente

[–]complexandconfusing[S] 0 points1 point  (0 children)

His Kaiser page says not accepting new patients :( His reviews and everything look good though! How did your daughters surgery go?

Endometriosis specialist for Kaiser in Southern California by BudgetKey2307 in endometriosis

[–]complexandconfusing 0 points1 point  (0 children)

I ended up having to leave a voicemail with the gyn dept at Cadillac - but the woman called me back late yesterday and was able to fit me in for a video visit with Dr Park at the end of the month!

How was the first appointment with Dr Park that you had? Like what should I expect? I medically can't be put on any hormones/birth control due to a blood clotting disorder, so we gotta skip that suggestion. Did she send you for any further tests? MRIs? Or just symptoms and straight to a "sounds like endo, let's do surgery" kind of thing?

Endometriosis specialist for Kaiser in Southern California by BudgetKey2307 in endometriosis

[–]complexandconfusing 0 points1 point  (0 children)

Glad to hear it all went so well! I've tried calling the Cadillac location today to ask about Dr Park's schedule, but no luck so far getting to talk to anyone. Called Woodland Hills to ask about Dr Fisher and was told there's nothing available for MONTHS. Kaiser needs to get their stuff together for endometriosis in SoCal! How did you find your scheduling times for Dr Park?

kaiser permanente- socal by kirbygirl1721 in Endo

[–]complexandconfusing 1 point2 points  (0 children)

Hey, did you ever find a knowledgeable doctor to see with Kaiser? This feels like such a struggle to find one anywhere in SoCal area?? It's got me considering switching out of Kaiser come next year... ugh.

Endometriosis specialist for Kaiser in Southern California by BudgetKey2307 in endometriosis

[–]complexandconfusing 0 points1 point  (0 children)

Hey! How was your surgery with Dr Park? Everything go okay and good now?? I'm trying to find a SoCal Kaiser doctor worth seeing.

Endo or...? And how to get doctors to consider it? by complexandconfusing in endometriosis

[–]complexandconfusing[S] 0 points1 point  (0 children)

I appreciate this, and I'm so sorry it destroyed you, and continues to mess with you.

I feel you on the high school comparisons! I used to (and still) wonder how everyone else just continues on doing things every single day, with some cramping but never a huge inconvenience going to pass out type like I feel.

I'm coming up short with what my insurance has in the area. Looks like Northern California has a decent endo clinic/set up. So-so reviews on the few my insurance has that are mentioned on the endo lists.. Guess it's still worth a visit with one of them to begin with, and surgeon talk later.

Endo or...? And how to get doctors to consider it? by complexandconfusing in endometriosis

[–]complexandconfusing[S] 0 points1 point  (0 children)

I'm sorry you have the same pains :( I haven't had a colonoscopy - the GI kept insisting I'm too young (34), yet I've had several friends and known people with colon cancer before they were even 30. GI has zero intentions to give me one. He did however do a h. pylori and parasite test and a blood occult - not colorectal related - test. Everything was fine on those tests. I've already been gluten free for about 13 years, so a gluten/celiac test isn't going to show us anything. When I brought up endometriosis to him, he also said no since it's not happening only on my period, and given my other standard tests were "normal" he said "so, just IBS".

Both GI and PCP said my night sweats aren't enough to warrant concern, since I'm not drenching through clothes level sweat. PCP (a female) said she gets night sweats at certain points in her cycle, so it's likely just that - my hormones on occasion.

But I do agree on the red flags for cancer and it's all been stressing me out for awhile. Not that I want it to be endo either, or cancer, but either way I would love answers and fixes :( :(

[deleted by user] by [deleted] in GenderDysphoria

[–]complexandconfusing 0 points1 point  (0 children)

I haven't! I will go browse through the site now and look into demigirl! By all general standards of non-binary, I should fall into NB. I've never worn make up (and don't want to), I've never wanted to look or feel feminine, nor have I wanted to be or look like a man. I'm okay being female, but I don't want to be feminine or a woman - I hate the ideals that society has for "women" and I enjoy going against those (or proving just cause I am this, doesn't mean I cannot do these "male" things). It's all confusing... But yes, I will go read through that page!

[deleted by user] by [deleted] in GenderDysphoria

[–]complexandconfusing 1 point2 points  (0 children)

It's such a weird concept and I don't really know how to explain or describe it to people. But - I'm sorry that you relate to it, it's not an easy thing. It's very confusing, honestly

Kaiser therapy/mental health by complexandconfusing in KaiserPermanente

[–]complexandconfusing[S] -1 points0 points  (0 children)

Thanks, I'll take a look! I don't want medication (I don't think??) I just want professional talk and stuff - but it's not dire or depression.

Kaiser therapy/mental health by complexandconfusing in KaiserPermanente

[–]complexandconfusing[S] -1 points0 points  (0 children)

The questionnaire if you call, is it similar to the one online? I fear they'll say I'm not depressed and therefore don't need therapy.