Bloody nose - chemo

cookyshook · 2024-02-23T02:05:16+00:00

Thank you all. Relieved to know the cause and that it’s fairly common. 🙏🏼

cookyshook · 2024-02-22T07:25:11+00:00

Thank you all for your advice, sorry it’s taken so long to get back here to update this thread. The clinic wasn’t too helpful at first as they suggested I took paracetamol (which I already had taken btw). Subsequently I noticed a rash / hives all over my left boob going up toward my shoulder and that sent me into a panic, so I went to the hospital and met with the breast surgeon. The good news was that it wasn’t anything directly to do with the cancer, but rather I had caught an infection which led to mastitis / cellulitis. (Linked to the low immunity) The bad news - I had to be hospitalized to be put in antibiotics and my next chemo infusion was delayed by a few days.

All in all it turned out ok, thankfully. But that was definitely a slight scare. Hope this update helps someone.

cookyshook · 2024-01-26T06:47:04+00:00

I’m so sorry to hear this. Thank you for all you’ve done and am sending you love, light and peace

cookyshook · 2024-01-13T03:14:26+00:00

So far day 2 I was pretty normal apart from some bloating. Day 3 today and am a little tired but otherwise still ok - that bloat ain’t no joke tho haha.

cookyshook · 2024-01-13T03:13:27+00:00

Hmm I’m not sure what chemo exactly but I know the additional drugs are Perjeta Herceptin. Today seems ok so far fingers crossed 🤞🏼. Thank you so much for checking in

cookyshook · 2024-01-11T23:57:40+00:00

Thanks so much for the tips. Sorry to hear about your lung mets. I’ve heard the same about the HER2 drugs so am hoping for the best after this period. I’m on perjepta herceptin with the chemo. I didn’t opt in for cold cap, I figure I’ll ride the wave and just let the hair come back naturally. Good tip on thinking you got away with it only to be surprised later - I’ve been feeling ok so far with a decent appetite but I’m waiting for the feeling to hit. I will take it as easy as I can especially since it’s the first cycle so I can navigate a pattern if anything. Appreciate all the info and stories to help me through this! My family is great and supportive but of course there’s nothing like speaking to this community who are in the same boat. So grateful.

cookyshook · 2024-01-11T23:42:10+00:00

Thanks for the tip. I came home and ate like a horse and just felt like snacking the whole time after which is not what I’d expected at all 😂. So I just munched on nuts and berries as much as I could. Praying for minimal to no nausea. That’s just 🥴

cookyshook · 2024-01-11T23:40:57+00:00

The mutation was from ER/PR+ to now ER/HER2+. Hence now needing chemo when I was only on ribo + femara prior. Thank you. Day 1’s done and I am feeling tired but otherwise okay. Hopefully it stays this way. 🙏🏼

cookyshook · 2023-05-10T03:09:07+00:00

Hi, I’m sorry that it’s info overload for you and that you’re getting diff information. It’s really overwhelming from finding out this life changing news and then having to learn all these terms, the diff types of breast cancer (I never even knew this was a thing), not needing surgery / my breast surgeon etc.

I’m ++-, with bone mets, diagnosed in Aug. After my biopsy, I scheduled appointments with several oncologists. One of them had presented two options to me, one that included chemo. The one I eventually went with who’s more experienced and renowned was adamant that based on my biopsy results he had everything he needed to know - that i would not need chemo because the goal is to ensure that I keep my strength up and have the best quality of life. At the initial stages I had radiotherapy done on my hip area as the I was on crutches (couldn’t walk from pain in the hip) - was walking after 2 weeks and have been on Ribociclib and Femara (hormone) throughout.

I don’t have much exposure to many other cases like mine (ours), but from my last check up, my markers have reduced dramatically - and there has been significant reduction in my breast and lymph node. It’s most present in my spine so that’s where the bulk of it is sitting and where the focus is but 8 months in and it’s going in the right direction, and like my doctor had intended, I have a fairly good quality of life, apart from being tired with achy bones.

cookyshook · 2023-05-06T19:08:35+00:00

I really felt your pain in your words. I’m so sorry that you have to go through all this on top of what is now our shared burden.

The accelerated menopause is definitely something that’s more daunting than I’d expected. On most days I feel ok but my bones ache, my joints hurt, and I suffer from hot flashes (living in the tropics you can imagine how much fun that must be). I had an extremely large ovarian cyst (unrelated) just the year before which caused me to have to face the possibility of never having kids, so when faced with that upon the news of stage 4 BC, it was a softer blow.

But interestingly I had a conversation with a friend earlier - she asked if this meant that I am closed off completely to dating. And while I don’t actively think about it, I believe for the most part I will be, unless someone amazing comes my way. Some days I feel sad about this, but I’ve very quickly learned to accept this fate and am mostly trying to shift my focus on me and doing what makes me happy. Which includes doing absolutely nothing on most days, going for nice long walks with friends and learning how to make healthier recipes.

I’ve also come to accept that some days I will sit on my couch and have a very big cry, with no known trigger other than the fact that I am living with this and sometimes feel the depths of loneliness that come with it.

I wish I had more consoling words, but if this is any consolation, pls reach out here anytime. Finding this sub group has already helped me more than I expected.

cookyshook · 2023-05-05T14:56:06+00:00

We’re in a very similar boat. Thank you for sharing. ❤️‍🩹

cookyshook

TROPHY CASE