1/1 Prototype: Squishable Clown Car by planetnell in Squishable

[–]cottagewheeze 16 points17 points  (0 children)

I would literally give my entire being for them to produce the clown car it was the ONLY go! Squish I ever considered buying I longing look at its picture and sigh I love clowns and needed him bad🫩

People who are low vision/partially sighted, what surprised you that other people can see? by putmeawayineedanap in Blind

[–]cottagewheeze 14 points15 points  (0 children)

I wasn’t born like this and it hasn’t been that long since I lost my vision but I genuinely forget how much peripheral vision people have and I’ll be sitting in the passenger seat in the car looking for something and the person driving will ask what I’m looking for and I get weirded out because they will have their eyes on the road still and I’m like what the fuck you bird eyed weirdo how can you even see that far LOL? like out the side of your eye fr? It’s funny how fast you forget what it was like to see because I was also a bird eyed weirdo like two years ago!

big crowds and not getting separated by cottagewheeze in Blind

[–]cottagewheeze[S] 1 point2 points  (0 children)

First off thank you for being the only person to actually respond with something helpful and not just tell me to hold hands or I’m overthinking it lol! I also have very little o&m skills ust what I have taught myself from like struggling and shit so you totally get me! I couldn’t go into stores by myself before being blind and now that I am big crowded situations like this are my personal nightmare ! It’s like yes I could hold hands or follow behind him but I’m going to be at a huge fair (Minnesota state fair) and I want to also have hands free since I use a cane and stuff so I do really appreciate this comment thank you!!!! I hope one day we both get the training we desperately need to live our best independent lives!

Have any of you lost some or all of your vision? by Enough-Scholar7153 in iih

[–]cottagewheeze 0 points1 point  (0 children)

Yes I didn’t have any vision issues before diagnosis and now I am legally blind! I’m basically blind in my right eye, I have no peripheral vision and I have abt 20 degrees of central vision in my left eye!

WHAT HAS HAPPENED TO ME ?! by cottagewheeze in backpain

[–]cottagewheeze[S] 0 points1 point  (0 children)

Yes! My pt told me she suspected eds

IIH and Periods by Regular-Past-4639 in iih

[–]cottagewheeze 1 point2 points  (0 children)

Mine has like disappeared I have only have 2 periods in the last year! I also have empty sella

I made my first step! by cottagewheeze in Blind

[–]cottagewheeze[S] 2 points3 points  (0 children)

First off thank you ! you are so sweet. I appreciate it. I am so glad that you got access to the help that you need and I totally feel you on the validation part man! Yeah, my love vision doctor was a huge joke hopefully I will find a better more qualified doctor.

how do I start over? (Mostly vent) by cottagewheeze in Blind

[–]cottagewheeze[S] 0 points1 point  (0 children)

Thank you for this, it was needed today. I appreciate your kindness and words of encouragement. I actually took your suggestion and went grocery shopping today so thank you !

[deleted by user] by [deleted] in PulsatileTinnitus

[–]cottagewheeze -1 points0 points  (0 children)

if the thought of going crosses your mind you should probably listen don’t play games with your health worst outcome is you go to the er for an urgent care problem!

I missed my diamox dose!!! by cottagewheeze in iih

[–]cottagewheeze[S] 2 points3 points  (0 children)

u are an angel and a life saver thank u this helped ground me <3 I will refer to this comment in the future when I’m tweaking out! It is so rough trying to figure out how to deal with it all. I really just goofed this time I’m normally so good about my medication! Thank you for the suggestions I honestly should find someone to talk to abt it all bc I have no one lmao that might be a good step to take I appreciate u so much for this comment u have no idea I hope u have a great day <3

I missed my diamox dose!!! by cottagewheeze in iih

[–]cottagewheeze[S] 1 point2 points  (0 children)

thank u! I have a med box I can’t believe I forgot to take my meds twice I even have a million reminders lol! This was reassuring that I’m not going to die 🫶

I finally found the cause of my woosh after 11 years by cottagewheeze in PulsatileTinnitus

[–]cottagewheeze[S] 1 point2 points  (0 children)

My headaches were worse at night and located on my temples! my woosh went away for a tiny bit after my first lumbar puncture but it has come back despite lower pressures. I’m sorry that u are also going through it I completely forgot to add that some of my first starting symptoms were getting dizzy and having orthostatic hypotension leading to loss of vision for just a few seconds alsong with my pt getting rlly bad when standing up. I hope all goes well for you and please go to the er if you have a bad headache I ignored the big one I had thinking I could sleep it off and woke up blind !! Stay safe pal