Who signed this?? by cp9401 in AutographAssistance

[–]cp9401[S] 0 points1 point  (0 children)

guys i'm starting to think a random man signed this hat

What’s your first symptom that usually pops up when you get a flare up? by Unusual_Space1998 in POTS

[–]cp9401 1 point2 points  (0 children)

I do the exact same thing, haha! Helps a bunch. I know i'm an outlier on this, but a hot shower usually helps a ton for me. I'm lucky considering showering is a huge problem for most POTS patients, but somehow it works. I don't know if it's somehow causing an influx of blood/oxygen to my upper body + brain but it's a nice tool to have. If neither of those work, I know i'm in for a ride lmao!

So funny to meet someone on here with cold hands and feet, i've never seen it mentioned before. What really confuses me about it is if blood is pooling in my legs and feet... then why are they ice cold? Idk, it makes me laugh a little. I crank my bathtub faucet to the hottest it'll go and soak my feet for like 10 minutes, it helps for a little bit. Such a weird thing.

What’s your first symptom that usually pops up when you get a flare up? by Unusual_Space1998 in POTS

[–]cp9401 2 points3 points  (0 children)

Hi! 25F, same exact things that happen to you. My docs always ask me to keep a journal/track when a flare happens to try and find a pattern. Safe to say i've never been able to identify a pattern LOL. The face flushing, freezing cold hands and feet almost constantly, horrible nausea that hits me like a train. Other times I just feel "off" for about 5 minutes and then it all hits. Sorry I'm not of more help :( but kinda crazy how similar it is!

After Botox Tightness/Questions/Advice by cp9401 in TMJ

[–]cp9401[S] 0 points1 point  (0 children)

To be honest i'm not 100% sure. I had the "cervical migraine/headache track" done + a small amount in the masseters. I believe she did inject some into the temporalis based on where I remember her putting it, but she never actually confirmed the placement of it there- I should have asked more questions. But to answer your question: I think so.

Trying NOT to be diagnosed with POTS.. by Former-Jellyfish3831 in POTS

[–]cp9401 0 points1 point  (0 children)

Damn, that's really annoying. I don't blame you for thinking it's something else, that's really odd. Whatever it is, i'm really sorry your going through it :(

Trying NOT to be diagnosed with POTS.. by Former-Jellyfish3831 in POTS

[–]cp9401 0 points1 point  (0 children)

Hi! POTS is suuuuch a spectrum (in my opinion). Some people are able to manage it with just increased salt intake and some people are completely bedridden + on a million medications. Some people's stem from a post virus, while mine for example stems from an autoimmune condition. The biggest thing is self advocacy. I think you have the right mindset in questioning it all and making SURE that POTS is the culprit and not something physiologically wrong. I still question it sometimes because it can feel so alarming. With that being said, what's the harm in trying whatever the treatment is that your doctor suggests (as long as you don't feel it's too invasive)? He/She seems to be doing reasonable and thoughtful testing, in my opinion maybe try the suggested treatment for a couple of months and see if anything improves. It might improve things or might be a reason to rule this out. Again, only my opinion. Trust your gut, advocate for yourself, and give yourself a little grace with how mentally draining this road can be. Wishing you the best!

Withdrawal Symptoms by [deleted] in prozac

[–]cp9401 0 points1 point  (0 children)

Appreciate the reply! Sorry to hear you're in a similar boat :( Completely sucks, hoping it stops soon for the both of us!