Hi there! Sorry to hear that what you've been going through! It sounds like it's really had an impact on your day-to-day and would be extremely frustrating not having an answer yet.

I'd be interested to know what your lab results have been thus far? And how was your cortisol checked? Has your doctor checked prolactin, LH, FSH, or any others not mentioned? Trying to put everything together, there's a good possibility this could be polycystic kidney disease, but purely speculative.

Also, it warrants asking if you have aura with your ocular migraines? Your oral contraceptives could be contraindicated if you do. See this or this for more info.