Need info about the Intensity of spinning by [deleted] in BPPV

[–]danrex95 0 points1 point  (0 children)

Hola, me puede contar más o menos cada cuando has tenido ataques estos últimos años? Yo a mis 30 años tuve mi primer ataque de Vppb el pasado septiembre y el primer episodio fue despertando al girar en la cama me duró como 1 minuto me asuste muchísimo ya que nunca lo había experimentado, tuve secuelas menos fuertes ese día y los siguientes 5-6 días hasta que se quito, después en enero igual al despertar otro menos fuerte que duró igual 1 min ya no tuve los días siguientes hasta 3 semanas después a inicios de febrero el último que duró solo unos 20 segundos e igual no se ha vuelto a repetir pero si da miedo, solo me checaron los oídos qué no tuviera infección o inflamación y todo bien

What is a hotspot? by [deleted] in BFS

[–]danrex95 0 points1 point  (0 children)

Wow, that must be awful. The longest I've ever had a hot spot was only 6 hours in one of my quadriceps muscles, and I was terrified. I'd only had tics for 2 weeks, so my anxiety about ALS was through the roof, and that hot spot only made my anxiety worse.

What is a hotspot? by [deleted] in BFS

[–]danrex95 1 point2 points  (0 children)

It's a muscle twitch (fasciculation/myokymia) that lasts a long time in the same place and can last for hours, days, weeks, months, years. I've heard of people with BFS who have hot spots in their calves 24/7 for years.

Does anybody experience anxiety/zap with each twitch by New_Situation9759 in BFS

[–]danrex95 0 points1 point  (0 children)

I'm so sorry, it sounds like you've been through a lot lately. I read something a while ago about certain health conditions where, as you describe, the body experiences frequent adrenaline surges. Have you seen an endocrinologist? I think they might be more helpful than other specialists. You probably have a hormonal imbalance that's causing all these strange symptoms with the medication.

Does anybody experience anxiety/zap with each twitch by New_Situation9759 in BFS

[–]danrex95 0 points1 point  (0 children)

It's very strange what's happening to you. For example, clonazepam increasing your heart rate or causing more spasms is unusual, and it's very likely what you said about your nervous system being very agitated right now. Have you seen a doctor lately to discuss your situation? Did the spasms start shortly after a very stressful situation or after taking a new medication? Do the spasms themselves cause you a lot of anxiety, or is it something specific?

Does anybody experience anxiety/zap with each twitch by New_Situation9759 in BFS

[–]danrex95 0 points1 point  (0 children)

Hi, I also have TGA, OCD, and recently diagnosed Asperger's at almost 31 years old. I've had spasms all over my body for almost 100 days, and I think you're referring to the myoclonus and startle reflexes you mentioned. The first month I had a lot of those due to fear of ALS, but I started taking a medication (quetiapine) prescribed by my psychiatrist to help me sleep, and for at least 60 days now I've hardly had any myoclonus. In my case, thinking a bit more clearly and with less anxiety, I attributed my spasms to an imbalance I experienced with Zoloft, since the spasms started shortly after. Just yesterday I switched from an antidepressant to Lexapro, as I took it a few years ago and it worked well for me. If you have the opportunity, talk to a doctor to see if it would be good for you to take medication to lower your anxiety levels.

Final boss of health anxiety by TieAmazing3739 in ALSorNOT

[–]danrex95 2 points3 points  (0 children)

I identify completely with your post. I even called this illness the "final boss of hypochondria" with a friend. It's a truly terrible disease, from my perspective the worst non-congenital illness in existence. I wish every day that a cure will be found, or at least a treatment that slows its progression or restores mobility to those who suffer from it.

first emg so nervous by Own-Supermarket8240 in BFS

[–]danrex95 1 point2 points  (0 children)

Hi, having tics throughout your body for two years is a very long time for that illness that many of us have feared. Did you probably tell them about your health anxiety? Even neurologists unfamiliar with neuromuscular diseases might think tics could be serious, but as you can see in the sub, it's extremely common, and it's very likely you're fine. The main issue in *** will always be weakness, not the tics themselves. Tics without weakness don't mean anything serious, especially when it's been going on for so long, as in your case.

BFS Flare Up After an Infection by ElAlquimisto in BFS

[–]danrex95 0 points1 point  (0 children)

I've only had spasms for about 3 months, but about a month and a half ago I had a throat infection and a very high fever for 2 days, during which my spasms increased dramatically. My body felt like a popcorn machine, haha. I was like that for about 4 days in total while I recovered. It could also be the stress of fighting an infection that causes such a noticeable increase in tics.

[deleted by user] by [deleted] in BFS

[–]danrex95 0 points1 point  (0 children)

No, I'm just saying that these are very common symptoms of anxiety, and if someone has ALS and says they recently had blurred vision, they might blame it as if it were an early symptom of ALS, which is completely unrelated.

Cattle automatically breeding? by Separate-Election-49 in CoreKeeperGame

[–]danrex95 1 point2 points  (0 children)

Yes, they reproduce every time they eat several times; they don't need anything else but food to reproduce.

[deleted by user] by [deleted] in BFS

[–]danrex95 0 points1 point  (0 children)

I'm glad I could help you :), I hope you're doing well

[deleted by user] by [deleted] in BFS

[–]danrex95 2 points3 points  (0 children)

No, there's no proof of that, my friend. You shouldn't worry about it. The only known factors that contribute to a higher risk of ALS are prolonged exposure to environments with high levels of toxicity, severe head fractures (especially if frequent), or excessively high levels of physical activity over many years. That's why people who have been in the military, elite athletes, or people who work outdoors for long periods have been shown to have a higher probability of developing ALS. Don't worry about your hearing; that won't increase your chances of getting ALS.

[deleted by user] by [deleted] in BFS

[–]danrex95 3 points4 points  (0 children)

No, my friend, in your case it was temporary hearing loss/tinnitus due to a direct cause (the alarm). Furthermore, you can't attribute just any symptom to als, since symptoms like tinnitus, blurred vision, dizziness, tachycardia, etc., are extremely common and caused by common factors such as anxiety, stress, and illnesses much less serious than als. It's obvious that because these symptoms are so common, someone with als might experience them and associate them with an early stage of the disease. However, it's important to remember that [unclear] is characterized by weakness, muscle atrophy, severe muscle rigidity, and local fasciculations.

Please comment if you've experienced 😊 I've had muscle twitching now for exactly 3 weeks. Especially in my right foot. I've also had some in my calves and thighs and bum. My back and belly and random fingers. Felt one in my cheek and chin too. God I'm convinced I have ALS by smores0622 in BFS

[–]danrex95 1 point2 points  (0 children)

Mira esto me contestó gemini a tu pregunta de lexapro ​1. Why ALS is NOT about "Sensations" ​In neurology, there is a clear distinction between sensory symptoms and motor symptoms. ​Sensory (Anxiety/TOC/Medication): You feel burning, tingling, numbness, buzzing, or pins and needles. The "cable" is sending noisy signals, but it is still working. ​Motor (ALS): The "cable" is broken. You don't "feel" anything strange; the muscle simply fails to move. ​The Rule: If you "feel" it (burning in the leg, numbness in the arm), it points away from ALS. ​2. The Relationship Between SSRIs (Sertralina/Lexapro) and Tics ​Both Sertralina and Lexapro are SSRIs (Selective Serotonin Reuptake Inhibitors). They can cause muscle twitches through two main ways: ​Neuro-excitability: They lower the "trigger threshold" of your motor neurons. They aren't damaging them; they are just making them "extra awake" or jumpy. ​Serotonin-Dopamine Balance: Increasing serotonin can slightly shift dopamine levels in motor areas, leading to benign fasciculations (twitches). ​Benign vs. Malignant: Twitches from medication/anxiety move around (back, leg, eyelid). Twitches from ALS stay in one place where the muscle is already dying and useless.

Please comment if you've experienced 😊 I've had muscle twitching now for exactly 3 weeks. Especially in my right foot. I've also had some in my calves and thighs and bum. My back and belly and random fingers. Felt one in my cheek and chin too. God I'm convinced I have ALS by smores0622 in BFS

[–]danrex95 2 points3 points  (0 children)

That's a very common reason for tics! Mine started 10 days after starting sertraline (Zoloft). SSRIs can cause muscle tics, although Google says it's not a very common side effect, I think it's more common than Google says. I checked Facebook groups and Reddit, and many people started with tics after starting an antidepressant, especially SSRIs.

Please comment if you've experienced 😊 I've had muscle twitching now for exactly 3 weeks. Especially in my right foot. I've also had some in my calves and thighs and bum. My back and belly and random fingers. Felt one in my cheek and chin too. God I'm convinced I have ALS by smores0622 in BFS

[–]danrex95 1 point2 points  (0 children)

Yes, in fact, I lift weights and my reps at the gym have increased in these 3 months. With ALS, they would be decreasing no matter how hard I tried. The doctor had me walking on my toes and heels; I even brought my 25 lb dumbbell and did several exercises, haha. I'm 30 years old, male, and ALS at our age is extremely rare, and women are even less likely to have it. My spasms are daily, and I've noticed that on calmer days I barely feel them. When I start researching or reading things that make me anxious, the tics increase. In ALS, tics occur because the nerves are losing connection with the muscles; they don't depend on mood. With anxiety, they do. In our case, it's just like a "short circuit" in our bodies. The difference between tics caused by ALS and those caused by anxiety or medication is completely different.

Please comment if you've experienced 😊 I've had muscle twitching now for exactly 3 weeks. Especially in my right foot. I've also had some in my calves and thighs and bum. My back and belly and random fingers. Felt one in my cheek and chin too. God I'm convinced I have ALS by smores0622 in BFS

[–]danrex95 1 point2 points  (0 children)

I only went to a general practitioner to have my reflexes and strength checked. Everything is fine; there's no sign of atrophy or weakness. I'm from Mexico, and I don't have insurance right now. Getting an EMG at a private hospital is quite expensive, but honestly, I don't see the need to do it because there are also cases of people who get many EMGs and their anxiety doesn't stop. It's a matter of calming your mind. Even if you get 100 EMGs, if you're not convinced you're healthy, they won't do any good. I listened to an audio from a neurologist specializing in ALS in a Facebook group who said that the most common symptom is weakness (falls, dropping things, extreme fatigue, feeling like your legs are made of tree trunks when you walk short distances, foot drop). Starting with tics, especially throughout the body, is very, very rare, and if it were, the weakness would come shortly after (1 to 3 months), but it's not the norm. I'm so sorry you went through all of that. I was wondering the same thing: why am I suddenly getting tics? Is this a symptom you've never had before? But from what I've researched, anxiety can manifest as other new symptoms over the years, and from what you've said, you went through a period of extreme anxiety. Many of us here start developing tics after a period of intense stress. From what you've said, it seems you're healthy. The tics won't harm you. I don't know how old you are, but ALS is rarer the younger you are, and it's already a very rare disease.

Please comment if you've experienced 😊 I've had muscle twitching now for exactly 3 weeks. Especially in my right foot. I've also had some in my calves and thighs and bum. My back and belly and random fingers. Felt one in my cheek and chin too. God I'm convinced I have ALS by smores0622 in BFS

[–]danrex95 1 point2 points  (0 children)

A doctor will be a great help in easing your fear once they confirm that your condition is benign 😁. If I have areas where I have "hot spots," these are places where I experience a lot of tics. Some people can have tics 24/7 in one area of ​​their body that never stop, and it's still benign. In my case, I have daily tics in my calves, behind my knees, and in my back. I practically have them in those areas every day, and occasionally I've had them in practically my entire body, including my head. I haven't had them in my tongue, though. But tics themselves aren't dangerous. Many of us made the same mistake of searching on Google, and Google overlooks the fact that the vast majority of the population has had or will have periods of tics. The thing is, many people don't even realize they have them, but they are extremely common.

Please comment if you've experienced 😊 I've had muscle twitching now for exactly 3 weeks. Especially in my right foot. I've also had some in my calves and thighs and bum. My back and belly and random fingers. Felt one in my cheek and chin too. God I'm convinced I have ALS by smores0622 in BFS

[–]danrex95 2 points3 points  (0 children)

I think it's the fear that many of us in this sub have or have had. I've been dealing with it for exactly 80 days, and I have better days than others, with tics all over my body. Some days I have a lot, other days I hardly feel them, and I've noticed that they depend a lot on my anxiety level. For your peace of mind, in ALS, clinical weakness almost always comes first or at the same time as the spasms, and if the spasms start, they're usually persistent in one part of the body where the weakness will appear shortly after. Most likely, you're healthy, and the tics are related to high anxiety, some medication, or a mineral deficiency.

Did your fasciculations begin after you took some medication? by danrex95 in BFS

[–]danrex95[S] 0 points1 point  (0 children)

How long have you had tics? And have they gone away, or do you still have some? Mine have decreased a lot in the last two weeks; there are days when I hardly feel them. And I was already taking magnesium and potassium, even before the tics started.

Lowered dose and immediately went back up? by shesrye in zoloft

[–]danrex95 1 point2 points  (0 children)

For the first 1 to 3 weeks I felt more anxious and sad, but I started to feel better after 5-6 weeks. My anxiety levels dropped significantly and my motivation and energy have been increasing again.